Wellness in PSP and CBD

NCT07844655 | Recruiting

• 1 other identifier: H26-00263
• Study Type: interventional
• Target: 30
• Locations: 1 country
• Sites: 1

Brief Summary

The goal of this interventional study is to evaluate the feasiblity and effectiveness of a multimodal lifestyle program for individuals living with Progressive Supranuclear Palsy or Corticobasal Deneration. The main objectivess of the study are to:

1. 1.Assess the feasibility of the program
2. 2.Assess the effects of the program on emotional wellbeing and quality of life
3. 3.Assess the effects of the program on caregiver burden

Conditions

Progressive Supranuclear Palsy; Corticobasal Degeneration

Keywords

Atypical Parkinsonism; Taopathy; Progressive Supranuclear Palsy; Corticobasal Degeneration; Lifestyle Intervention

Outcome Measures

Primary Outcomes (1)

• Attendance and retention rates

  From enrollment to completion of post- intervention questionnaires

Study Arms (1)

Intervention

EXPERIMENTAL

Behavioral: Exercise and Peer Support

Interventions

Exercise and Peer Support BEHAVIORAL

Chair yoga, and SongShine vocal strengthening, and. peer support groups,

Intervention

Eligibility Criteria

• Age: 19 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)

You may qualify if:

• Age over 18 years.
• PSP or CBD diagnosis based on Movement Disorder Society criteria.

You may not qualify if:

• Significant cognitive impairment.
• Inability to fill in electronic questionnaires or understand study instructions.
• Any contraindication for exercise based on the Physical Activity Readiness for Everyone Questionnaire (PAR-Q+).

Sponsors & Collaborators

• Silke Cresswell: lead
• University of California, San Diego: collaborator
• Parkinson Canada: collaborator
• Pacific Parkinson's Research Centre: collaborator
• CurePSP: collaborator

Study Sites (1)

Pacific Parkinson's Research Centre

Vancouver, British Columbia, V6E 4N2, Canada

RECRUITING

MeSH Terms

Conditions

Supranuclear Palsy, Progressive; Corticobasal Degeneration

Interventions

Exercise

Condition Hierarchy (Ancestors)

Basal Ganglia Diseases; Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Movement Disorders; Ophthalmoplegia; Ocular Motility Disorders; Cranial Nerve Diseases; Tauopathies; Neurodegenerative Diseases; Paralysis; Neurologic Manifestations; Eye Diseases; Signs and Symptoms; Pathological Conditions, Signs and Symptoms

Intervention Hierarchy (Ancestors)

Motor Activity; Movement; Musculoskeletal Physiological Phenomena; Musculoskeletal and Neural Physiological Phenomena

Central Study Contacts

Sahib Dhaliwal

CONTACT

604-827-1353; sahib.dhaliwal@ubc.ca

Study Design

• Study Type: interventional
• Phase: not applicable
• Allocation: NA
• Masking: NONE
• Purpose: BASIC SCIENCE
• Intervention Model: SINGLE GROUP
• Sponsor Type: OTHER
• Responsible Party: SPONSOR INVESTIGATOR
• PI Title: Principal Investigator

Study Record Dates

• First Submitted: September 22, 2026
• First Posted: September 28, 2026
• Study Start: April 10, 2026
• Primary Completion (Estimated): December 31, 2027
• Study Completion (Estimated): December 31, 2027
• Last Updated: September 28, 2026

Record last verified: 2026-09

Data Sharing

• IPD Sharing: Will not share

Locations

CA (1)