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ENDO-RM
Optimizing Care and Improving Access to Pelvic Health Physiotherapy for Women Living With Endometriosis: A Portrait of the Current Situation and Recommendations for Possible Solutions in Quebec (Canada)
Sponsor study identifier
observational
264
1 country
1
Study Start
July 28, 2026
Actual (reported)Primary Completion
March 29, 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Study Completion
March 29, 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
This is a mixed-methods study aimed to generate new evidence to help optimize access to pelvic health physiotherapy (PHPT) for women living with endometriosis in the province of Quebec (Canada). Specifically, the objectives are to: Obj. 1: Understand the patient journey of women living with endometriosis, including their experiences accessing PHPT. Obj. 2: Describe current PHPT clinical practices and service delivery for women living with endometriosis in Quebec. Obj. 3: Identify barriers, facilitators and potential strategies to improve access to PHPT services and optimize the patient journey of women living with endometriosis in Quebec. Findings will inform clinical, organizational and policy recommendations to strengthen the integration of PHPT within multidisciplinary endometriosis care. The project is divided into three sequential parts: Part 1: Semi-structured individual interviews (open-ended questions) will be conducted with women living with endometriosis to explore their journey to obtain endometriosis care, experiences accessing PHPT and perceived barriers and facilitators. Approximately 15-20 participants will be recruited until data saturation is reached. Part 2: An online cross-sectional survey will be conducted among pelvic health physiotherapists practicing in the province of Quebec, Canada to describe current clinical practices, service delivery and challenges related to the management of women living with endometriosis. The minimum expected sample size is 225 physiotherapists . Part 3: Semi-structured focus groups (open-ended questions) will be conducted with women living with endometriosis, pelvic health physiotherapists, physicians and healthcare managers to identify and prioritize strategies to improve access to PHPT services. Approximately 24-32 participants will be recruited across four focus groups. Across all three parts, recruitment strategies will aim to ensure diversity in participant characteristics, including geographic region, sociodemographic characteristics and healthcare experiences, to capture a broad range of perspectives.
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
March 29, 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
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Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
July 23, 2026
Actual (reported)July 28, 2026
Actual (reported)July 28, 2026
Actual (reported)March 29, 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
March 29, 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Patient journey and experiences of women living with endometriosis
Patient journey, healthcare experiences and use of pelvic health physiotherapy will be explored through semi-structured individual interviews with women living with endometriosis.
Baseline
Barriers to accessing pelvic health physiotherapy
Assessed through the online survey, semi-structured individual interviews and group discussion with patients living with endometriosis, healthcare providers and healthcare managers.
Baseline
Facilitators to accessing pelvic health physiotherapy
Assessed through the online survey, semi-structured individual interviews and group discussion with patients living with endometriosis, healthcare providers and healthcare managers.
Baseline
Pelvic health physiotherapy clinical practices and service delivery
Part 1 will include women living with confirmed or suspected endometriosis in Quebec, Canada. Part 2 will include pelvic health physiotherapists practicing in Quebec, Canada who provide care to women with confirmed or suspected endometriosis. Part 3 will include women living with confirmed or suspected endometriosis, healthcare professionals and healthcare managers involved in the organization, delivery or support of endometriosis care in the province of Quebec.
Centre hospitalier universitaire de Sherbrooke
Sherbrooke, Quebec, J1H5N4, Canada
Mélanie Morin, PhD, PT
Full professor, Researcher, Director of the Pelvic Health Research Laboratory, Canada Research Chair in Women's pelvic health, Faculty of Medicine and Health Sciences, University of Sherbrooke and Research Centre of the CHUS
First Submitted
July 23, 2026
First Posted
July 28, 2026
Study Start
July 28, 2026
Actual (reported)Primary Completion
Assessed through the online survey.
Baseline
Recommendations to improve access to pelvic health physiotherapy
Assessed through the online survey and focus group discussion with patients, healthcare providers and healthcare managers.
Baseline
Contact the study team to confirm eligibility.
March 29, 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Study Completion
March 29, 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Last Updated
July 30, 2026
Record last verified: 2026-07
Due to the sensitive information collected, individual participant data will not be shared in order to protect participant confidentiality. Study findings will be reported in aggregate form through scientific publications and presentations.
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Source: ClinicalTrials.gov.
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