Endometriosis Self-Management Strategies

NCT07591441 | Recruiting DMC

• 2 other identifiers: 2025-118-A2101157146
• Study Type: observational
• Target: 150
• Locations: 1 country
• Sites: 1

Brief Summary

The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: \[How\] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis? Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.

Conditions

Self-management; Endometriosis

Outcome Measures

Primary Outcomes (1)

• Lived experiences self-managing endometriosis (Qualitative narratives through interviews and diary studies)

  People will discuss their lived experiences self-managing endometriosis, discussing what everyday actions they do to feel their best (qualitative narratives, lived experiences collected through interviews and diary studies)

  From enrollment until the end of focus group participation, up to four years

Study Arms (1)

People living with endometriosis across Europe

Qualitative data collection- no intervention of interest

Eligibility Criteria

• Age: 16 Years+
• Sex: female
• Healthy Volunteers: No
• Age Groups: Child (0-17), Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

People living with endometriosis who are above 16 years of age and residing in Europe; family/friends/partners of people living with endometriosis. Also, healthcare providers and policymakers.

You may qualify if:

• living in a European country
• years or older
• having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis
• fluent in a language spoken by the research team

Sponsors & Collaborators

• Wageningen University and Research: lead
• University of Edinburgh: collaborator

Study Sites (1)

Leeuwenborch

Wageningen, 6706 KN, Netherlands

RECRUITING

MeSH Terms

Conditions

Endometriosis

Condition Hierarchy (Ancestors)

Genital Diseases, Female; Female Urogenital Diseases; Female Urogenital Diseases and Pregnancy Complications; Urogenital Diseases; Genital Diseases

Central Study Contacts

Erica I Selznick, MSPH

CONTACT

+32471854659; erica.selznick@wur.nl

Study Design

• Study Type: observational
• Observational Model: ECOLOGIC OR COMMUNITY
• Time Perspective: RETROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Erica Selznick, PhD Candidate

Study Record Dates

• First Submitted: January 21, 2026
• First Posted: May 15, 2026
• Study Start: January 19, 2026
• Primary Completion (Estimated): December 31, 2027
• Study Completion (Estimated): December 31, 2029
• Last Updated: May 15, 2026

Record last verified: 2026-05

Data Sharing

• IPD Sharing: Will not share

Locations

NL (1)