Psychosocial Burden of Epilepsy

NCT07449871 | Completed

• 1 other identifier: 2026/01-14
• Study Type: observational
• Target: 90
• Locations: 1 country
• Sites: 1

Brief Summary

This study aims to investigate the educational, occupational, and social challenges experienced by individuals with epilepsy using structured questionnaires developed by the research team. Despite advances in diagnosis and treatment, people with epilepsy may continue to face difficulties related to stigma, access to opportunities, and daily functioning. Participants will complete survey forms designed to assess barriers encountered in school, workplace, and social environments, as well as their perceptions and experiences related to living with epilepsy. The findings are expected to provide insight into unmet needs and inform strategies to improve support and quality of life for individuals with epilepsy.

Conditions

Epilepsy

Outcome Measures

Primary Outcomes (1)

• Educational, occupational, and social difficulties

  The proportion and severity of self-reported difficulties experienced by individuals with epilepsy in educational settings, workplace participation, and social life, as measured by structured survey forms designed by the research team.

  At study enrollment (single assessment)

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Adults with a clinical diagnosis of epilepsy who are under follow-up at a tertiary neurology clinic will be invited to participate. The study population consists of individuals receiving routine clinical care who are able to complete structured questionnaires assessing educational, occupational, and social experiences related to living with epilepsy. Participants are expected to represent a broad range of demographic and clinical characteristics reflective of real-world epilepsy care.

You may qualify if:

• Adults aged 18 years or older
• Clinical diagnosis of epilepsy confirmed by a neurologist
• Able to understand and complete the questionnaire
• Willing to provide informed consent

You may not qualify if:

• Severe cognitive impairment preventing reliable questionnaire completion
• Acute medical or psychiatric condition interfering with participation
• Inability to communicate effectively in the study language

Sponsors & Collaborators

• Saglik Bilimleri Universitesi: lead

Study Sites (1)

Saglik Bilimleri University Izmir Faculty of Medicine Department of Neurology

Izmir, Turkey (Türkiye)

Location

MeSH Terms

Conditions

Epilepsy

Condition Hierarchy (Ancestors)

Brain Diseases; Central Nervous System Diseases; Nervous System Diseases

Study Design

• Study Type: observational
• Observational Model: OTHER
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: February 26, 2026
• First Posted: March 4, 2026
• Study Start: February 1, 2026
• Primary Completion: March 1, 2026
• Study Completion: April 1, 2026
• Last Updated: April 30, 2026

Record last verified: 2026-02

Locations

TU (1)