National Survey on Physical and Sports Activity of Adults With Epilepsy

NCT07075380 | Recruiting

• 1 other identifier: NMR_2025_3
• Study Type: observational
• Target: 400
• Locations: 1 country
• Sites: 1

Brief Summary

Epilepsy affects nearly 600,000 people in France and causes neurological seizures that can lead to lasting impairments and stigma. Physical activity provides many benefits, including improved quality of life, social participation, and reduced stress and seizure frequency. Despite these benefits, people with epilepsy tend to be less active than the general population due to barriers such as fear of seizures during exercise, fatigue, and negative beliefs about the disease. Psychological factors and stigma influence physical activity engagement and affect how the disease is integrated into personal identity, impacting quality of life and treatment adherence. Studying the role of anxiety, stigma, and illness identity, as well as their interaction with physical activity identity, is essential to better understand and promote physical activity among people with epilepsy.

Conditions

Epilepsy

Outcome Measures

Primary Outcomes (1)

• maintained physical activity

  Physical activity level will be measured using an adapted version of the Modifiable Activity Questionnaire (MAQ) at inclusion and 6 months later as a criterion for behavior maintenance. MAQ ranges starts from 0 with no maximum limit. A higher value means a higher physical activity level.

  Day 0 and Month 6

Study Arms (1)

patients with epilepsy

Behavioral: online questionnaire

Interventions

online questionnaire BEHAVIORAL

Online questionnaire assessing physical activity level, completed twice at a 6-month interval.

patients with epilepsy

Eligibility Criteria

• Sex: all
• Healthy Volunteers: No
• Age Groups: Child (0-17), Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Epileptic person willing to complete an online questionnaire about their physical activity

You may qualify if:

• Individuals self-reporting as over 18 years old
• Individuals self-reporting having epilepsy

Sponsors & Collaborators

• Fondation Ophtalmologique Adolphe de Rothschild: lead

Study Sites (1)

Institut La Teppe

Tain-l'Hermitage, 26600, France

RECRUITING

MeSH Terms

Conditions

Epilepsy

Condition Hierarchy (Ancestors)

Brain Diseases; Central Nervous System Diseases; Nervous System Diseases

Central Study Contacts

Amelie Yavchitz, Dr

CONTACT

+33148036454; ayavchitz@for.paris

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: PROSPECTIVE
• Sponsor Type: NETWORK
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: July 11, 2025
• First Posted: July 20, 2025
• Study Start: November 10, 2025
• Primary Completion (Estimated): May 1, 2027
• Study Completion (Estimated): May 1, 2027
• Last Updated: December 10, 2025

Record last verified: 2025-12

Locations

FR (1)