Dementia and Storytelling in Vietnam
Digital Storytelling to Promote Early Dementia Diagnosis in Rural Vietnam
2 other identifiers
interventional
100
1 country
1
Brief Summary
This project aims to improve knowledge regarding Alzheimer's dementia and related dementias (ADRD) among older adults and their caregivers in Vietnam and promote the early diagnosis of ADRD using a digital storytelling intervention.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P50-P75 for not_applicable
Started Oct 2026
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
First Submitted
Initial submission to the registry
February 6, 2026
CompletedFirst Posted
Study publicly available on registry
February 24, 2026
CompletedStudy Start
First participant enrolled
October 1, 2026
ExpectedPrimary Completion
Last participant's last visit for primary outcome
October 31, 2027
Study Completion
Last participant's last visit for all outcomes
October 31, 2027
February 24, 2026
February 1, 2026
1.1 years
February 6, 2026
February 18, 2026
Conditions
Keywords
Outcome Measures
Primary Outcomes (6)
Intervention Feasibility: Participant Recruitment and Retention
Feasibility will be assessed using recruitment and retention records, including the number of participants approached, reasons for ineligibility or refusal, and study completion rates.
Baseline, Month 3, Month 6
Intervention Engagement: Interaction Records from CIAS
Engagement will be assessed using the number of videos watched.
Month 3, Month 6
Intervention Engagement: Exit Interview
Information on participants' experiences with the intervention will be collected through exit interviews.
Month 6
Intervention Acceptability: System Usability Scale (SUS)
SUS is a 10-item, 5-point Likert scale for subjective assessment of usability. The SUS scores range from 0 to 100. A score of \> 50 indicates that the technology-based interventions are acceptable.
Month 3, Month 6
ADRD Knowledge: Dementia Knowledge Assessment Scale (DKAS)
DKAS is a 25-item scale that evaluates dementia knowledge. Total scores range from 0 to 50, with higher scores indicating greater knowledge.
Baseline, Month 3, Month 6
Attitudes: Dementia Attitude Scale (DAS)
DAS is a 20-item, 7-point Likert scale assessing attitudes toward dementia and people living with dementia. Items are summed, with selected items reverse-coded as appropriate, to calculate a total score (range: 20-140). Higher scores indicate more positive attitudes.
Baseline, Month 3, Month 6
Secondary Outcomes (3)
ADRD Screening/Diagnosis
Month 3, Month 6
Quality of Life: SF-12
Baseline, Month 3, Month 6
Self-Care: The Self-Care of Chronic Illness Inventory (SC-CII)
Baseline, Month 3, Month 6
Study Arms (2)
Control
ACTIVE COMPARATORParticipants in this arm will receive basic information.
Intervention
EXPERIMENTALParticipants in this arm will receive the storytelling intervention.
Interventions
Participants will receive a digital storytelling intervention featuring narratives from older adults with mild to moderate Alzheimer's disease and related dementias (ADRD) and their caregivers who have successfully managed the condition. The stories highlight the benefits of early ADRD diagnosis and strategies for managing diagnostic and care-related challenges. The intervention will be delivered at baseline and biweekly thereafter for three months via CIAS, with didactic "Learn More" modules provided following the stories.
Participants will receive basic information about Alzheimer's disease and related dementias (ADRD), issued by the Vietnam Ministry of Health (usual care), at baseline and at Month 3.
Eligibility Criteria
You may qualify if:
- Older adults (age ≥ 60 years) residing in one of the four participating communities (communities in rural areas of Phu Tho province with minimum distance of 10 km between participating communities)
- Concern about mild cognitive impairment expressed by the participant, caregiver, or healthcare provider, with no formal screening for ADRD
- Ability and willingness to provide informed consent
- Caregivers of eligible participants will be invited to participate after providing written consent.
You may not qualify if:
- Current participation in another ADRD study
- Severe cognitive impairment as evaluated by study co-investigators
- Enrollment in palliative care or diagnosis of a terminal illness
- Previous exposure to digital storytelling modules
- Prior participation in the digital storytelling development.
Contact the study team to confirm eligibility.
Sponsors & Collaborators
- University of Massachusetts, Worcesterlead
- Alzheimer's Associationcollaborator
Study Sites (1)
Vietnam National Geriatric Hospital
Hanoi, Vietnam, Vietnam
Related Publications (4)
Khanh, D. V. D., Van Thang, V., Dung, H., & BinhThang, T. (2015). Prevalence of dementia among the elderly and health care needs for people living with dementiain an urban community of central Vietnam. Vietnam Journal of Public Health-www. vjph. org, 3(1).
BACKGROUNDNguyen HL, Ha DA, Tran OT, Phan VH, Nguyen CT, Nguyen GH, Nguyen TT, Le TT, Goldberg RJ, Wang B, Tang ET, Chiriboga G, Budhwani H, Allison JJ. Conquering hypertension in Vietnam: 12- month follow up results from a cluster-randomised controlled trial. Lancet Reg Health West Pac. 2024 Jul 1;48:101123. doi: 10.1016/j.lanwpc.2024.101123. eCollection 2024 Jul.
PMID: 39045484BACKGROUNDNguyen HL, Ha DA, Goldberg RJ, Kiefe CI, Chiriboga G, Ly HN, Nguyen CK, Phan NT, Vu NC, Nguyen QP, Allison JJ. Culturally adaptive storytelling intervention versus didactic intervention to improve hypertension control in Vietnam- 12 month follow up results: A cluster randomized controlled feasibility trial. PLoS One. 2018 Dec 31;13(12):e0209912. doi: 10.1371/journal.pone.0209912. eCollection 2018.
PMID: 30596749BACKGROUNDHuynh-Truong HL, Shyu YL, Tran TKL, Huang HL, Do VA. Dementia care practices among community healthcare workers in Vietnam: a qualitative descriptive study. BMC Geriatr. 2023 Sep 14;23(1):562. doi: 10.1186/s12877-023-04199-0.
PMID: 37710164BACKGROUND
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Hoa Nguyen, PhD
University of Massachusetts, Worcester
Central Study Contacts
Study Design
- Study Type
- interventional
- Phase
- not applicable
- Allocation
- RANDOMIZED
- Masking
- SINGLE
- Who Masked
- PARTICIPANT
- Purpose
- DIAGNOSTIC
- Intervention Model
- PARALLEL
- Sponsor Type
- OTHER
- Responsible Party
- PRINCIPAL INVESTIGATOR
- PI Title
- Professor
Study Record Dates
First Submitted
February 6, 2026
First Posted
February 24, 2026
Study Start (Estimated)
October 1, 2026
Primary Completion (Estimated)
October 31, 2027
Study Completion (Estimated)
October 31, 2027
Last Updated
February 24, 2026
Record last verified: 2026-02
Data Sharing
- IPD Sharing
- Will share
- Shared Documents
- STUDY PROTOCOL, SAP
- Time Frame
- The final dataset will be available from January 2028 to January 2037.
- Access Criteria
- The data and associated documentation will be available to qualified academic investigators for non-commercial research under a data-sharing agreement that provides for: (1) a commitment to using the data only for research purposes and not to identify any individual participant; 2) a commitment to securing the data using appropriate computer technology; and 3) a commitment to destroying or returning the data after analyses are completed.
De-identified participant data that will be collected for this study can be obtained by contacting the study PI.