Cultural Adaptation of an Educational Tool in Medullary Thyroid Cancer

NCT07142005 | Recruiting DMC

• 2 other identifiers: 2025-0198NCI-2025-04498
• Study Type: observational
• Target: 40
• Locations: 1 country
• Sites: 1

Brief Summary

To find good information about medullary thyroid cancer that is easy to understand and reliable, so researchers aim to design some new educational materials to help.

Conditions

Medullary Thyroid Cancer (MTC); Cultural Adaptation

Outcome Measures

Primary Outcomes (1)

• Questionnaires/Survey Measures

  Through study completion; an average of 1 year

Interventions

Interviews OTHER

* Questionnaires/Survey Measures * Qualitative Instruments

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

MD Anderson Cancer Center

You may qualify if:

• Provision of signed and dated informed consent form
• Males and females; Age: ≥18 years old
• Identified ethnicity as "Hispanic" or "Latino/Latina"
• Ability to read, write, and speak Spanish
• Those who are pregnant are eligible to participate
• Have or will face this decision, including: a. Participant/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in Multi-Institutional Medullary Thyroid Cancer Collaborative Registry; b. Caregiver/family member - of Participant/survivor who has medullary thyroid carcinoma, as nominated by the Participant/survivor

You may not qualify if:

• Those \< age 18
• Ethnic identity as non-Hispanic or non-Latino/a individual
• Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness as documented in the registry

Sponsors & Collaborators

• M.D. Anderson Cancer Center: lead

Study Sites (1)

MD Anderson Cancer Center

Houston, Texas, 77030, United States

RECRUITING

Related Links

• MD Anderson Cancer Center

MeSH Terms

Conditions

Carcinoma, Medullary

Interventions

Interviews as Topic

Condition Hierarchy (Ancestors)

Carcinoma, Neuroendocrine; Neuroendocrine Tumors; Neuroectodermal Tumors; Neoplasms, Germ Cell and Embryonal; Neoplasms by Histologic Type; Neoplasms; Adenocarcinoma; Carcinoma; Neoplasms, Glandular and Epithelial; Neoplasms, Ductal, Lobular, and Medullary; Neoplasms, Nerve Tissue

Intervention Hierarchy (Ancestors)

Data Collection; Epidemiologic Methods; Investigative Techniques; Health Care Evaluation Mechanisms; Quality of Health Care; Health Care Quality, Access, and Evaluation; Public Health; Environment and Public Health

Study Officials

• Elizabeth Grubbs, MD

  eggrubbs@mdanderson.org

  PRINCIPAL INVESTIGATOR

Central Study Contacts

Elizabeth Grubbs, MD

CONTACT

713-792-0665; eggrubbs@mdanderson.org

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: June 20, 2025
• First Posted: August 26, 2025
• Study Start: August 15, 2025
• Primary Completion: March 31, 2026
• Study Completion (Estimated): March 31, 2028
• Last Updated: April 2, 2026

Record last verified: 2026-03

Locations

US (1)