DST in Reducing Depressive Symptoms, Enhancing Self-esteem, and Promoting Quality of Life Among CCSs
Listening to the Patient's Cancer Journey: A Randomised Controlled Trial of Digital Storytelling (DST) in Reducing Depressive Symptoms, Enhancing Self-esteem, and Promoting Quality of Life Among Hong Kong Chinese Childhood Cancer Survivors
1 other identifier
interventional
248
1 country
1
Brief Summary
This study aims to examine the effectiveness of Digital storytelling (DST) in reducing depressive symptoms, enhancing self-esteem, and promoting quality of life among Chinese survivors of childhood cancer. Participants in the experimental group will be divided into groups of 6 to 8 childhood cancer survivors to receive the intervention, which comprises four workshops. Each workshop will last 2.5 hours and will be conducted by a qualified interventionist. Parents are not required to attend the workshop. The investigators will provide a waiting room for them. Parents will also be provided with a leaflet developed by Hong Kong Department of Health which contains self-help material for depression. No intervention will be carried out among participants in the control group. However, customary care including medical follow-up, medication prescription, and nursing interventions will be provided, as usual. Parents will also be provided with a leaflet containing self-help materials for depression.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for not_applicable cancer
Started Oct 2023
Typical duration for not_applicable cancer
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
Study Start
First participant enrolled
October 16, 2023
CompletedFirst Submitted
Initial submission to the registry
June 26, 2025
CompletedFirst Posted
Study publicly available on registry
July 4, 2025
CompletedPrimary Completion
Last participant's last visit for primary outcome
September 12, 2026
ExpectedStudy Completion
Last participant's last visit for all outcomes
September 12, 2026
March 12, 2026
March 1, 2026
2.9 years
June 26, 2025
March 10, 2026
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Depressive symptoms: Chinese version of the Center for Epidemiological Studies Depression Scale for Children (CES-DC)
The CES-DC will be used to assess the number of depressive symptoms among participants. This instrument contains 20 items evaluated on a 4-point scale, from 0 (not at all) to 3 (a lot). The possible range of scores is between 0 and 60, with higher scores indicating more depressive symptoms. The cut-off score is 15. Participants with scores higher than 15 are considered to be experiencing significant levels of depressive symptoms. This scale has been widely applied in studies among Hong Kong Chinese children with cancer, and its psychometric properties have been well-established in this population.
The CES-DC will be conducted immediately after the completion of the intervention, and at 1-, 3- and 6-month follow-up via telephone interview.
Secondary Outcomes (2)
Self-esteem: Chinese version of the Rosenberg Self-Esteem Scale (RSES)
The RSES will be conducted immediately after the completion of the intervention, and at 1-, 3- and 6-month follow-up via telephone interview.
Quality of life: Chinese version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scale (PedsQL 4.0)
The PedsQL 4.0 will be conducted immediately after the completion of the intervention, and at 1-, 3- and 6-month follow-up via telephone interview.
Study Arms (2)
Intervention: Digital storytelling
EXPERIMENTALParticipants in the experimental group will receive the DST intervention, which comprises four workshops. Each workshop will last 2.5 hours and will be conducted by a qualified interventionist. In the workshops, a group of 6-8 participants will first share their personal cancer experiences and offer feedback to other participants in the context of a story circle. A set of guiding questions will be used to facilitate participants in telling their own stories. Particularly, probing will be used to guide the child participants to share their own experiences. Open-ended questions such as 'How do you think about your cancer experience?' will be asked. Subsequent supplementary questions, such as 'What makes you feel in this way?' and 'can you give me some examples' will be asked to encourage more sharing. Afterwards, participants wil be encouraged to write their own script and storyboard, record their stories using a microphone, and choose photos and videos to illustrate their stories.
No Intervention: Standard of care
NO INTERVENTIONNo intervention will be carried out among participants in the control group. However, customary care including medical follow-up, medication prescription, and nursing interventions will be provided, as usual.
Interventions
DST is an intervention that can potentially mitigate the psychological impact of traumatic experiences. People can usually find positive meaning in a traumatic experience by communicating their experience using narratives like storytelling. In particular, by externalising the traumatic experience in the form of a narrative, the individual can become an objective agent, distancing themselves from negative meanings attached to the experience. This lowers people's resistance to and defence against the experience, assisting them to explore alternative perspectives regarding the experience and to identify its positive aspects, which boost self-esteem. Likewise, storytelling engages different areas of the brain, including those responsible for visual, language, and hearing functions, to reorganise the disorganised traumatic experience into a coherent story, facilitating integration of the experience into existing memories.
Eligibility Criteria
You may qualify if:
- (1) age between 13 and 18 years;
- (2) able to speak Cantonese and read Chinese; and
- (3) completed the active treatment of cancer.
You may not qualify if:
- survivors with mental and behavioural problems documented in their medical records.
Contact the study team to confirm eligibility.
Sponsors & Collaborators
- Hong Kong Children's Hospitalcollaborator
- Research Grants Council, Hong Kongcollaborator
- The Hong Kong Polytechnic Universitylead
Study Sites (1)
The Hong Kong Polytechnic University,
Hong Kong, Hong Kong
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Ka Yan Ho, phd
The Hong Kong Polytechnic University
Central Study Contacts
Study Design
- Study Type
- interventional
- Phase
- not applicable
- Allocation
- RANDOMIZED
- Masking
- SINGLE
- Who Masked
- OUTCOMES ASSESSOR
- Purpose
- SUPPORTIVE CARE
- Intervention Model
- PARALLEL
- Sponsor Type
- OTHER
- Responsible Party
- PRINCIPAL INVESTIGATOR
- PI Title
- associate professor
Study Record Dates
First Submitted
June 26, 2025
First Posted
July 4, 2025
Study Start
October 16, 2023
Primary Completion (Estimated)
September 12, 2026
Study Completion (Estimated)
September 12, 2026
Last Updated
March 12, 2026
Record last verified: 2026-03