NCT06970522

Brief Summary

The purpose of this study is to see if wearable sensor technology can be used to evaluate muscle activity and/or identify atypical muscle tone in infants up to 48 weeks postmenstrual age (8 weeks corrected age). These sensors are placed on the surface of the skin and record data about a child's body movements and muscle activity.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
40

participants targeted

Target at P25-P50 for all trials

Timeline
7mo left

Started Jun 2025

Geographic Reach
1 country

2 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

Study Progress57%
Jun 2025Dec 2026

First Submitted

Initial submission to the registry

May 6, 2025

Completed
8 days until next milestone

First Posted

Study publicly available on registry

May 14, 2025

Completed
1 month until next milestone

Study Start

First participant enrolled

June 25, 2025

Completed
1.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 31, 2026

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 31, 2026

Last Updated

March 25, 2026

Status Verified

March 1, 2026

Enrollment Period

1.5 years

First QC Date

May 6, 2025

Last Update Submit

March 24, 2026

Conditions

Keywords

Early DetectionWearable Sensors

Outcome Measures

Primary Outcomes (1)

  • Correlation Between EMG Data and Observed Muscle Tone Before 8 Weeks Corrected Age

    Correlation of EMG sensor data and Hammersmith Neonatal Neurological Exam (HNNE) short form score, assessed before 8 weeks corrected age.

    Before 8 weeks corrected age

Secondary Outcomes (1)

  • Estimation of Clinical Scores Performed Before 8 Weeks Corrected Age Using EMG Data

    Before 8 weeks corrected age

Study Arms (2)

Infants with Typical Tone

Infants with Low Tone

Eligibility Criteria

Age0 Months - 8 Weeks
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)
Sampling MethodNon-Probability Sample
Study Population

Infants presenting with atypical muscle tone based on clinical expertise along with infants expected to have typical development.

You may qualify if:

  • For Infants with low tone:
  • Hospitalized in the NICU
  • AND \>38 weeks post-menstrual age
  • AND abnormal normal brain imaging OR Apgar score \<7 at five minutes with umbilical cord pH (if obtained) \<7.15
  • AND 2 or more warning signs for muscle tone or posture using the HNNE short form
  • AND legal guardian able and willing to give written consent and comply with study procedures
  • For Infants with typical tone:
  • Born at 38-41 weeks of gestation
  • AND hospitalized after birth in the NICU OR well newborn nursery
  • AND infants with appropriate for gestational age birth weight
  • AND HNNE exam (short proforma) normal with no warning signs for any parameter
  • AND legal guardian able and willing to give written consent and comply with study procedures.

You may not qualify if:

  • Infants of Both Low Tone and Typical Tone Cohorts:
  • Missing or incomplete limbs (such as from amputation or congenital limb defects).
  • Open wounds or skin breakdown on the limbs or torso.
  • Presence of known genetic syndrome or congenital anomalies requiring surgery or affecting function
  • Use of sedative medications (may include phenobarbital if level stable and therapeutic)
  • Legal guardian unable to give written consent and comply with study procedures.
  • Does not receive medical clearance from a physician to participate in the study if the individual is receiving inpatient care.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (2)

Ann & Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, 60611, United States

RECRUITING

Shirley Ryan AbilityLab

Chicago, Illinois, 60611, United States

RECRUITING

MeSH Terms

Conditions

Neuromuscular Diseases

Condition Hierarchy (Ancestors)

Nervous System Diseases

Study Officials

  • Arun Jayaraman, PT, PhD

    Shirley Ryan AbilityLab

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Rachel Andersen

CONTACT

Megan O'Brien, PhD

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
CROSS SECTIONAL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Principal Investigator

Study Record Dates

First Submitted

May 6, 2025

First Posted

May 14, 2025

Study Start

June 25, 2025

Primary Completion (Estimated)

December 31, 2026

Study Completion (Estimated)

December 31, 2026

Last Updated

March 25, 2026

Record last verified: 2026-03

Locations