The Relationship Between Education Status and Care Burden of Mothers of Individuals With Cerebral Palsy

NCT06635070 | Not Yet Recruiting

• 1 other identifier: Cerebral Palsy
• Study Type: observational
• Target: 120
• Locations: 0 countries
• Sites: N/A

Brief Summary

This study, examines how maternal education affects caregiving burdens for children with cerebral palsy. Cerebral palsy requires long-term, intensive care, often leading to significant physical, emotional, and financial strain on caregivers. The study aims to assess whether higher maternal education is associated with lower care burdens, possibly due to increased access to resources or coping strategies, and whether lower educational levels result in greater challenges. A survey, combined with standardized measures such as the Caregiver Burden Scale, will be used to quantify the caregiving burden. The results are expected to inform policies or interventions aimed at reducing caregiver strain.

Conditions

Cerebral Palsy

Keywords

Cerebral palsy; Caregiver Burden; Mother; Educational Status

Outcome Measures

Primary Outcomes (1)

• Zarit Caregiver Burden Interview

  This scale was developed to assess the stress experienced by those who provide care to a person in need of care or to an elderly person. This scale can be completed by the caregivers themselves or by the researcher. It consists of 22 questions that determine the effect of caregiving on the person's life. The items in the scale are mostly emotional and social. The Turkish validity and reliability were made by Özer et al. in 2006. The scale is graded on a score of 0-4 for each question. Verbal use in the survey is never, rarely, sometimes, often, almost always. Total scores between 0-21 are classified as low or none, between 21-40 as mild or moderate, between 41-60 as moderately severe, and between 61-88 as severe burden. A high scale score indicates that the caregiver is experiencing a lot of distress.

  one month

Eligibility Criteria

• Age: 20 Years - 65 Years
• Sex: female
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Probability Sample

Study Population

Mothers of individuals with cerebral palsy

You may qualify if:

• Having a child who is receiving education in special education institutions
• The child's diagnosis was made at least 6 months ago
• The disabled individuals must be between the ages of 0-18

Sponsors & Collaborators

• Muş Alparslan University: lead

MeSH Terms

Conditions

Cerebral Palsy; Caregiver Burden

Condition Hierarchy (Ancestors)

Brain Damage, Chronic; Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Stress, Psychological; Behavioral Symptoms; Behavior

Study Design

• Study Type: observational
• Observational Model: OTHER
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: October 7, 2024
• First Posted: October 10, 2024
• Study Start: October 21, 2024
• Primary Completion: December 9, 2024
• Study Completion: December 16, 2024
• Last Updated: October 10, 2024

Record last verified: 2024-10