Myasthenia Gravis Foundation of America Global MG Patient Registry
MGFAPR
MGFAPR
Sponsor study identifier
observational
3,800
1 country
1
Study Start
October 12, 2013
Actual (reported)Primary Completion
September 19, 2029
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Study Completion
September 19, 2029
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
September 19, 2029
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
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Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
October 12, 2013
Actual (reported)September 26, 2024
Actual (reported)September 27, 2024
Actual (reported)September 19, 2029
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
September 19, 2029
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Diagnosis of MG
Whether the patient has a confirmed MG diagnosis.
At enrollment
Those with Myasthenia Gravis
Participants with access to a mobile device or desktop computer with internet connection are eligible to participate in this study
Myasthenia Gravis Foundation of America
Westborough, Massachusetts, 01581, United States
Patient Registry PI
Yale University
First Submitted
September 26, 2024
First Posted
September 27, 2024
Study Start
October 12, 2013
Actual (reported)Primary Completion
September 19, 2029
EstimatedContact the study team to confirm eligibility.
Planned date reported by the registry; this milestone is not confirmed as achieved.
Study Completion
September 19, 2029
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Last Updated
September 27, 2024
Record last verified: 2024-09
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Source: ClinicalTrials.gov.
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