Expectations and Needs of a Glioblastoma Caregiver

NCT06490497 | Completed

• 1 other identifier: 2023-04
• Study Type: observational
• Target: 9
• Locations: 1 country
• Sites: 1

Brief Summary

Cancers of the central nervous system have a poor prognosis. Glioblastoma is most common glial tumor of the central nervous system. The presence of a tumour in the brain determines the particular and specific nature of care for these patients and their families. Symptoms affect daily life and the balance of the family sphere.It's easy to imagine a difficult and disturbed family's daily routine. Caregivers find themselves in great distress but can still benefit from support to lighten the domestic burden, and financial burden, thanks to the various recommendations of successive Cancer Plans. In fact, support for patients and their families during the illness and after is one of the key points of the programs in place. The aim of this research will be to provide food for thought in order to improve the support provided to family and friends.

Conditions

Glioblastoma

Keywords

family caregiver

Outcome Measures

Primary Outcomes (1)

• Difficulties and specific needs of a caregiver

  Identify the difficulties and specific needs of a caregiver in the particular context of a person with glioblastoma.

  Day 1

Study Arms (1)

Caregiver of a glioblastoma patient undergoing glioblastoma treated in oncology

Other: Interview

Interventions

Interview OTHER

individual interviews semi-directive

Caregiver of a glioblastoma patient undergoing glioblastoma treated in oncology

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Caregivers of a person with glioblastoma glioblastoma undergoing oncology treatment

You may qualify if:

• Caregivers of a person with glioblastoma glioblastoma undergoing oncology treatment
• Caregivers aged 18 and over

You may not qualify if:

• \- Patient's opposition to participating in the study

Sponsors & Collaborators

• Hopital Nord Franche-Comte: lead

Study Sites (1)

Hôpital Nord Franche-Comté

Trévenans, 90400, France

Location

MeSH Terms

Conditions

Glioblastoma

Interventions

Interviews as Topic

Condition Hierarchy (Ancestors)

Astrocytoma; Glioma; Neoplasms, Neuroepithelial; Neuroectodermal Tumors; Neoplasms, Germ Cell and Embryonal; Neoplasms by Histologic Type; Neoplasms; Neoplasms, Glandular and Epithelial; Neoplasms, Nerve Tissue

Intervention Hierarchy (Ancestors)

Data Collection; Epidemiologic Methods; Investigative Techniques; Health Care Evaluation Mechanisms; Quality of Health Care; Health Care Quality, Access, and Evaluation; Public Health; Environment and Public Health

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: June 24, 2024
• First Posted: July 8, 2024
• Study Start: January 26, 2024
• Primary Completion: April 16, 2024
• Study Completion: June 20, 2024
• Last Updated: July 8, 2024

Record last verified: 2024-06

Data Sharing

• IPD Sharing: Will not share

Locations

FR (1)