Which Health-care Professional(s) to Talk About Advance Care Planning ?

NCT06376799 | Recruiting

• 2 other identifiers: 38RC23.04372024-A00485-42
• Study Type: observational
• Target: 240
• Locations: 1 country
• Sites: 1

Brief Summary

The goal of this descriptive observational study is to evaluate the preference of French adult patients followed in the context of a oncological disease, regarding the choice of the preferred healthcare professional to discuss advance care planning. To this end, voluntary participants will be asked to indicate their preferences by answering a self-questionnaire available in electronic or paper format.

Conditions

Advance Care Planning; Patient Preference

Keywords

Advance care planning; Patient preference

Outcome Measures

Primary Outcomes (1)

• Determining the healthcare professional preferred by cancer patients to talk about advance care planning

  Hierarchical classification of healthcare professionals preferred by the patient via a self-questionnaire

  Six months

Secondary Outcomes (2)

• Determining cancer patients' second choice of healthcare professional to talk about advance care planning

  Six months

• Evaluation of patient preferences regarding advance care planning, concerning the form, the moment it should be carried out, whether or not they wish to be accompanied by a relative, and the benefit of systematization

  Six months

Study Arms (1)

French adult patients followed in the context of a oncological disease,

French-speaking adult patients willing to participate in this study. Patients being treated for oncological disease, in a curative, palliative, or remission phase.

Other: Self-questionnaire

Interventions

Self-questionnaire OTHER

Provision of a self-questionnaire in digital or paper format for the patient. The patient will be asked to indicate their preferences regarding the primary and secondary objectives of the study.

French adult patients followed in the context of a oncological disease,

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

The source population corresponds to the French-speaking population of the Grenoble metropole area, followed in the context of cancer and treated by community medicine and/or healthcare structures.

You may qualify if:

• Patients with neoplasic disease (under treatment, in exclusive palliative phase, under surveillance or in remission)
• French-speaking patients

Sponsors & Collaborators

• University Hospital, Grenoble: lead

Study Sites (1)

CHU Grenoble Alpes

Grenoble, France

RECRUITING

Related Publications (4)

• Rietjens JAC, Sudore RL, Connolly M, van Delden JJ, Drickamer MA, Droger M, van der Heide A, Heyland DK, Houttekier D, Janssen DJA, Orsi L, Payne S, Seymour J, Jox RJ, Korfage IJ; European Association for Palliative Care. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol. 2017 Sep;18(9):e543-e551. doi: 10.1016/S1470-2045(17)30582-X.

  PMID: 28884703 BACKGROUND

• Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med. 2014 Sep;28(8):1000-25. doi: 10.1177/0269216314526272. Epub 2014 Mar 20.

  PMID: 24651708 BACKGROUND

• Peck V, Valiani S, Tanuseputro P, Mulpuru S, Kyeremanteng K, Fitzgibbon E, Forster A, Kobewka D. Advance care planning after hospital discharge: qualitative analysis of facilitators and barriers from patient interviews. BMC Palliat Care. 2018 Dec 5;17(1):127. doi: 10.1186/s12904-018-0379-0.

  PMID: 30518345 BACKGROUND

• Kubi B, Istl AC, Lee KT, Conca-Cheng A, Johnston FM. Advance Care Planning in Cancer: Patient Preferences for Personnel and Timing. JCO Oncol Pract. 2020 Sep;16(9):e875-e883. doi: 10.1200/JOP.19.00367. Epub 2020 Apr 13.

  PMID: 32282265 BACKGROUND

MeSH Terms

Conditions

Patient Preference

Condition Hierarchy (Ancestors)

Patient Satisfaction; Treatment Adherence and Compliance; Health Behavior; Behavior

Central Study Contacts

Jérémy Lascaux, Master

CONTACT

0630865262; lascaux.jeremy@hotmail.fr

Study Design

• Study Type: observational
• Observational Model: OTHER
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: April 16, 2024
• First Posted: April 19, 2024
• Study Start: April 19, 2024
• Primary Completion: November 1, 2024
• Study Completion: November 2, 2024
• Last Updated: June 3, 2024

Record last verified: 2024-05

Locations

FR (1)