A Digital Life Story to Support Person-centred Care for Older Adults With Dementia Perspectives

NCT06337201 | Recruiting

• 1 other identifier: BTH-6.1.1-0138-2023
• Study Type: observational
• Target: 30
• Locations: 1 country
• Sites: 1

Brief Summary

Person-centred care can be supported when healthcare professionals access and actively use the information recorded in a life story. Active use of the life story can create security for a person with dementia and their carers. The written life story describes the person and their life experiences, which can define the person's identity. National guidelines for care and nursing in dementia and Blekinge's regional guidelines emphasise the importance of care and nursing for people with dementia, which should be given with a person-centred approach, where the life story becomes a tool for healthcare professionals. Research shows that a life story can be designed in several ways. For example, in book form, as a brochure, collage, memory box or electronically. The life story is also intended as a tool for healthcare professionals to create security and facilitate communication with the individual. As more and more older adults are using computers and tablets as assistive devices, and it is also becoming more common for healthcare professionals to use, for example, tablets as assistive devices in nursing care, the life story could be shared in digital form as an application and become a living document. Overall aim: To test an application for the life story with the intention of supporting person-centred care for older adults with dementia and to test whether the application can replace the written completion document. Study I: Exploring the research area of the life story in digital form. Study II: Focus group interviews with healthcare professionals. Study III: Test the application, Min Memoria. Study IV: Observations on the use of the application.

Conditions

Cognitive Impairment; Dementia

Outcome Measures

Primary Outcomes (3)

• Healthcare professionals' experiences using a written life story in the daily care of older adults with dementia

  Focus group interviews

  From October 2023 - August 2024

• Data on the use of a digital life story tool.

  Explore the usability, accessibility and positive and negative effects on daily care. Data will be collected through a survey with healthcare professionals (participants).

  September 2024 - August 2025

• Observation when using a digital life story

  Data will be collected through non-participant observations. Observing communication and interactions between the healthcare professionals and the older adults when using the digital tool.

  September 2025 - December 2026

Study Arms (1)

Healthcare professionals working in daycare center and residential care.

Device: Test of the application Min Memoria

Interventions

Test of the application Min Memoria DEVICE

Focus group interviews will be conducted to reach healthcare professionals' experiences using a written life story in daily care. Then, the information from the written life story will be transferred to the application, and the healthcare professionals will test a digital life story (the application) in daily care instead. Observation studies will be conducted to observe the use of the digital life story. What can be seen in the communication and the interaction, and in what situations is the digital life story used?

Healthcare professionals working in daycare center and residential care.

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Healthcare professionals working in daycare center and residential care.

You may qualify if:

• Healthcare professionals using a life story in daily care.

You may not qualify if:

• N/A

Sponsors & Collaborators

• Blekinge Institute of Technology: lead

Study Sites (1)

Blekinge Institute of Technology

Karlskrona, Blekinge County, 37179, Sweden

RECRUITING

MeSH Terms

Conditions

Cognitive Dysfunction; Dementia

Condition Hierarchy (Ancestors)

Cognition Disorders; Neurocognitive Disorders; Mental Disorders; Brain Diseases; Central Nervous System Diseases; Nervous System Diseases

Central Study Contacts

Helén D Dellkvist, PhD student

CONTACT

+46732313417; helen.dellkvist@bth.se

Peter Anderberg, Professor

CONTACT

+46734223736; peter.anderberg@bth.se

Study Design

• Study Type: observational
• Observational Model: OTHER
• Time Perspective: OTHER
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: January 29, 2024
• First Posted: March 29, 2024
• Study Start: August 15, 2022
• Primary Completion: January 1, 2026
• Study Completion (Estimated): June 1, 2027
• Last Updated: March 29, 2024

Record last verified: 2024-03

Data Sharing

• IPD Sharing: Will share
• Shared Documents: STUDY PROTOCOL, CSR, ANALYTIC CODE
• Time Frame: From when each sub-study is publiced and onwards.

Locations

SE (1)