NCT06239688

Brief Summary

This project will compare two training models of an evidence-based online dementia care training program for direct care staff in assisted living to a waitlist control: 1) essentiALZ training and 2) essentiALZ training + Project ECHO. It will examine the extent to which each model is implemented and achieves its intended outcomes to improve staff knowledge and attitudes, change care practices, and improve the wellbeing of staff, residents, and residents' family members. Results will inform next steps in dementia care training for the assisted living (AL) and broader long-term care workforce. To examine these outcomes, data will be collected from AL staff and families over the course of 6 months. Staff will complete questionnaires and participate in interviews (as applicable) at baseline, post-training, 3-months, and 6-months. Families will participate in interviews at baseline, 3-months, and 6-months.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,764

participants targeted

Target at P75+ for not_applicable

Timeline
12mo left

Started Apr 2024

Typical duration for not_applicable

Geographic Reach
1 country

1 active site

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress68%
Apr 2024Apr 2027

First Submitted

Initial submission to the registry

January 24, 2024

Completed
9 days until next milestone

First Posted

Study publicly available on registry

February 2, 2024

Completed
2 months until next milestone

Study Start

First participant enrolled

April 12, 2024

Completed
3 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

April 30, 2027

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

April 30, 2027

Last Updated

April 13, 2026

Status Verified

April 1, 2026

Enrollment Period

3 years

First QC Date

January 24, 2024

Last Update Submit

April 9, 2026

Conditions

AgingKnowledge, Attitudes, PracticeLong-Term CareDementia

Keywords

Workplace Training

Outcome Measures

Primary Outcomes (3)

  • Change in Score Over Time of Sense of Competence in Dementia Care (SCIDS)

    Sense of Competence in Dementia Care (SCIDS) is a 17-item instrument. Responses are indicated using a 4-point Likert scale. Minimum score (worst value) = 1. Maximum score (best value) = 4. Higher values represent a better outcome (range 17-68). Measure is assessed at Baseline Questionnaire, a 3-month Follow Up Questionnaire and at a 6-month Follow Up Questionnaire.

    Participants will be followed for the duration of the intervention and 6 additional months after the intervention ends, an expected average of 8 months

  • Change in Score Over Time of Staff Experience of Working with Residents with Dementia Questionnaire - Care Organization, Satisfactory Contact with the Patient, and Satisfaction with the Expectations of Others Subscales (SEWDRQ)

    Staff Experience of Working with Residents with Dementia Questionnaire - Care Organization, Satisfactory Contact with the Patient, and Satisfaction with the Expectations of Others Subscales (SEWDRQ) is a 9-item instrument. Responses are indicated using a 5-point Likert scale. Minimum score (worst value) = 0. Maximum score (best value) = 4. Higher values represent a better outcome (range 0-36). Measure is assessed at Baseline Questionnaire, a 3-month Follow Up Questionnaire and at a 6-month Follow Up Questionnaire.

    Participants will be followed for the duration of the intervention and 6 additional months after the intervention ends, an expected average of 8 months

  • Change in Score Over Time of Dementia Attitude Scale - Short Form (DAS-6)

    Dementia Attitudes Scale (Short-Form) is a 6-item instrument. Responses are indicated using a 7-point Likert scale. Minimum score (worst value) = 1. Maximum score (best value) = 7. Higher values represent a better outcome (range 6-42). Measure is assessed at Baseline Questionnaire, a 3-month Follow Up Questionnaire and at a 6-month Follow Up Questionnaire.

    Participants will be followed for the duration of the intervention and 6 additional months after the intervention ends, an expected average of 8 months

Secondary Outcomes (5)

  • Change in Score Over Time of essentiALZ exam items

    Participants will be followed for the duration of the intervention and 6 additional months after the intervention ends, an expected average of 8 months

  • Change in Score Over Time of essentiALZ organizational practices

    Participants will be followed for the duration of the intervention and 6 additional months after the intervention ends, an expected average of 8 months

  • Change in Score Over Time of Emotional Burnout

    Participants will be followed for the duration of the intervention and 6 additional months after the intervention ends, an expected average of 8 months

  • Change in Score Over Time of Intention to Leave

    Participants will be followed for the duration of the intervention and 6 additional months after the intervention ends, an expected average of 8 months

  • Change in Score Over Time of Feeling Valued

    Participants will be followed for the duration of the intervention and 6 additional months after the intervention ends, an expected average of 8 months

Study Arms (3)

essentiALZ

EXPERIMENTAL

Communities randomized to this arm will receive the essentiALZ training: a web-based training taken by AL staff that contains three hours of self-paced content separated into five modules, plus a final review. Modules include: 1) Alzheimer's disease and dementia; 2) person-centered care; 3) assessment and care planning; 4) activities of daily living; and 5) behaviors and communication. Staff will be encouraged to take the training over the course of four weeks.

Behavioral: essentiALZ

essentiALZ + ECHO

EXPERIMENTAL

Communities randomized to this arm will receive the essentiALZ training: a web-based training taken by AL staff that contains three hours of self-paced content separated into five modules, plus a final review. Modules include: 1) Alzheimer's disease and dementia; 2) person-centered care; 3) assessment and care planning; 4) activities of daily living; and 5) behaviors and communication. Staff will be encouraged to take the training over the course of four weeks. Additionally, they will receive access to Project ECHO. ECHO is a virtual tele-mentoring model grounded in case-based learning. It includes six weekly one-hour sessions of didactic and discussive learning. The first five sessions will reflect the content of the five essentiALZ modules, and the final session will address maintenance. ECHO sessions are group sessions that will be conducted via Zoom.

Behavioral: essentiALZBehavioral: Project ECHO

No Intervention

NO INTERVENTION

Standard care will be provided.

Interventions

essentiALZBEHAVIORAL

essentiALZ is a web-based training that contains three hours of self-paced content separated into five modules, plus a final review. Modules include: 1) Alzheimer's disease and dementia; 2) person-centered care; 3) assessment and care planning; 4) activities of daily living; and 5) behaviors and communication. Staff will be encouraged to take the training over the course of four weeks.

essentiALZessentiALZ + ECHO
Project ECHOBEHAVIORAL

ECHO is a virtual tele-mentoring model grounded in case-based learning. It includes six weekly one-hour sessions of didactic and discussive learning. The first five sessions will reflect the content of the five essentiALZ modules, and the final session will address maintenance. ECHO sessions are group sessions that will be conducted via Zoom.

essentiALZ + ECHO

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • AL Staff:
  • Staff (part-time, full-time, and including contract staff) who provide direct care to residents at the participating assisted living community (e.g., certified nursing assistants, personal care aides, registered nurses, licensed practical nurses, activity directors, social workers, and others) as determined by the administrator/health care supervisor
  • Are 18 years of age or older
  • Are able to read and speak English fluently
  • Family:
  • Resident not expected to die or be transferred in the next six months at baseline
  • At follow-up, resident lived in AL community at least one month during the three months prior to interview date
  • Are a family member/legally authorized representative (LAR), or designated contact of a resident with Alzheimer's disease and related dementia (ADRD) of a participating AL community
  • Are 18 years of age or older
  • Are English speaking
  • Visit the resident at least monthly

You may not qualify if:

  • AL Staff \& Family:
  • \- Are under 18 years of age

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

University of North Carolina at Chapel Hill

Chapel Hill, North Carolina, 27599, United States

RECRUITING

Related Publications (151)

  • Alzheimer's Disease International. Dementia: A Public Health Priority. Geneva, Switzerland: World Health Organization; 2015.

    BACKGROUND

  • Alzheimer's Association. Alzheimer's Impact Movement March 2018. Costs of Alzheimer's to Medicare and Medicaid. http://act.alz.org/site/DocServer/2012_Costs_Fact_Sheet_version_2.pdf?docID=7161. Accessed October 30, 2021.

    BACKGROUND

  • Langa KM, Larson EB, Crimmins EM, Faul JD, Levine DA, Kabeto MU, Weir DR. A Comparison of the Prevalence of Dementia in the United States in 2000 and 2012. JAMA Intern Med. 2017 Jan 1;177(1):51-58. doi: 10.1001/jamainternmed.2016.6807.

    PMID: 27893041BACKGROUND

  • Friedman EM, Shih RA, Langa KM, Hurd MD. US Prevalence And Predictors Of Informal Caregiving For Dementia. Health Aff (Millwood). 2015 Oct;34(10):1637-41. doi: 10.1377/hlthaff.2015.0510.

    PMID: 26438738BACKGROUND

  • Arrighi HM, Neumann PJ, Lieberburg IM, Townsend RJ. Lethality of Alzheimer disease and its impact on nursing home placement. Alzheimer Dis Assoc Disord. 2010 Jan-Mar;24(1):90-5. doi: 10.1097/WAD.0b013e31819fe7d1.

    PMID: 19568155BACKGROUND

  • Zimmerman S, Gruber-Baldini AL, Sloane PD, Eckert JK, Hebel JR, Morgan LA, Stearns SC, Wildfire J, Magaziner J, Chen C, Konrad TR. Assisted living and nursing homes: apples and oranges? Gerontologist. 2003 Apr;43 Spec No 2:107-17. doi: 10.1093/geront/43.suppl_2.107.

    PMID: 12711731BACKGROUND

  • Zimmerman S, Love K, Cohen LW, Pinkowitz J, Nyrop KA. Person-Centeredness in Home- and Community-Based Services and Supports: Domains, Attributes, and Assisted Living Indicators. Clin Gerontol. 2014;37(5):429-445. doi: 10.1080/07317115.2014.937548. Epub 2014 Jun 30.

    PMID: 29033493BACKGROUND

  • Smith M, Buckwalter KC, Kang H, Ellingrod V, Schultz SK. Dementia care in assisted living: needs and challenges. Issues Ment Health Nurs. 2008 Aug;29(8):817-38. doi: 10.1080/01612840802182839.

    PMID: 18649209BACKGROUND

  • Harris-Kojetin L, Sengupta M, Park-Lee E, Valverde R, Caffrey C, Rome V, Lendon J. Long-Term Care Providers and services users in the United States: data from the National Study of Long-Term Care Providers, 2013-2014. Vital Health Stat 3. 2016 Feb;(38):x-xii; 1-105.

    PMID: 27023287BACKGROUND

  • Harrington C, Chapman S, Miller E, et al. Trends in the supply of long-term-care facilities and beds in the United States. J Appl Gerontol 2005;24(4):265-282.

    BACKGROUND

  • Paraprofessional Healthcare Institute. Caring for the Future: The Power and Potential of America's Direct Care Workforce. 2021. http://phinational.org/resource/caring-for-the-future-the-power-andpotential-of-americas-direct-care-workforce/. Accessed October 30, 2021.

    BACKGROUND

  • Han K, Trinkoff AM, Storr CL, Lerner N, Yang BK. Variation Across U.S. Assisted Living Facilities: Admissions, Resident Care Needs, and Staffing. J Nurs Scholarsh. 2017 Jan;49(1):24-32. doi: 10.1111/jnu.12262. Epub 2016 Nov 10.

    PMID: 27860170BACKGROUND

  • Zimmerman S, Sloane PD, Williams CS, Dobbs D, Ellajosyula R, Braaten A, Rupnow MF, Kaufer DI. Residential care/assisted living staff may detect undiagnosed dementia using the minimum data set cognition scale. J Am Geriatr Soc. 2007 Sep;55(9):1349-55. doi: 10.1111/j.1532-5415.2007.01289.x.

    PMID: 17767676BACKGROUND

  • Rosenblatt A, Samus QM, Steele CD, Baker AS, Harper MG, Brandt J, Rabins PV, Lyketsos CG. The Maryland Assisted Living Study: prevalence, recognition, and treatment of dementia and other psychiatric disorders in the assisted living population of central Maryland. J Am Geriatr Soc. 2004 Oct;52(10):1618-25. doi: 10.1111/j.1532-5415.2004.52452.x.

    PMID: 15450036BACKGROUND

  • National Center for Assisted Living. Assisted Living: A Growing Aspect of Long-Term Care. https://www.ahcancal.org/Advocacy/IssueBriefs/NCAL_Factsheet_2019.pdf. Accessed October 30, 2021.

    BACKGROUND

  • Hawes C, Phillips CD, Rose M. High service or high privacy assisted living facilities, their residents and staff: Results from a national survey. Washington, DC: U.S. Department of Health and Human Services; 2000.

    BACKGROUND

  • National Center for Assisted Living (NCAL). 2019. 2019 Assisted Living State Regulatory Review. Washington, DC: NCAL. https://www.ahcancal.org/ncal/advocacy/regs/Documents/2019_reg_review.pdf. Accessed October 30, 2021.

    BACKGROUND

  • Zimmerman S, Williams CS, Reed PS, Boustani M, Preisser JS, Heck E, Sloane PD. Attitudes, stress, and satisfaction of staff who care for residents with dementia. Gerontologist. 2005 Oct;45 Spec No 1(1):96-105. doi: 10.1093/geront/45.suppl_1.96.

    PMID: 16230756BACKGROUND

  • Sloane PD, Yearby R, Konetzka RT, Li Y, Espinoza R, Zimmerman S. Addressing Systemic Racism in Nursing Homes: A Time for Action. J Am Med Dir Assoc. 2021 Apr;22(4):886-892. doi: 10.1016/j.jamda.2021.02.023. Epub 2021 Mar 26.

    PMID: 33775548BACKGROUND

  • U.S. Department of Health and Human Services. (2013). National Plan to Address Alzheimer's Disease: 2013 Update. http://aspe.hhs.gov/daltcp/napa/ NatlPlan2013.shtml. Accessed October 30, 2021.

    BACKGROUND

  • Scales K, Zimmerman S, Miller SJ. Evidence-Based Nonpharmacological Practices to Address Behavioral and Psychological Symptoms of Dementia. Gerontologist. 2018 Jan 18;58(suppl_1):S88-S102. doi: 10.1093/geront/gnx167.

    PMID: 29361069BACKGROUND

  • Beer JM, McBride SE, Mitzner TL, Rogers WA. Understanding challenges in the front lines of home health care: a human-systems approach. Appl Ergon. 2014 Nov;45(6):1687-99. doi: 10.1016/j.apergo.2014.05.019. Epub 2014 Jun 21.

    PMID: 24958610BACKGROUND

  • Gould E, Reed P. Alzheimer's Association Quality Care Campaign and professional training initiatives: improving hands-on care for people with dementia in the U.S.A. Int Psychogeriatr. 2009 Apr;21 Suppl 1:S25-33. doi: 10.1017/S1041610209008758. Epub 2009 Mar 17.

    PMID: 19288968BACKGROUND

  • Thomas KS, Cornell PY, Zhang W, Smith L, Hua C, Kaskie B, Carder P. The Relationship Between States' Staffing Regulations And Hospitalizations Of Assisted Living Residents. Health Aff (Millwood). 2021 Sep;40(9):1377-1385. doi: 10.1377/hlthaff.2021.00598.

    PMID: 34495716BACKGROUND

  • Zimmerman S, Love K, Sloane PD, Cohen LW, Reed D, Carder PC; Center for Excellence in Assisted Living-University of North Carolina Collaborative. Medication administration errors in assisted living: scope, characteristics, and the importance of staff training. J Am Geriatr Soc. 2011 Jun;59(6):1060-8. doi: 10.1111/j.1532-5415.2011.03430.x. Epub 2011 Jun 7.

    PMID: 21649628BACKGROUND

  • Castle NG, Engberg J, Mendeloff J, Burns R. A national view of workplace injuries in nursing homes. Health Care Manage Rev. 2009 Jan-Mar;34(1):92-103. doi: 10.1097/01.HMR.0000342981.37673.74.

    PMID: 19104267BACKGROUND

  • Campbell S. 2018. Workplace Injuries and the Direct Care Workforce. Bronx, NY: PHI. https://phinational.org/wp-content/ uploads/2018/04/Workplace-Injuries-and-DCW-PHI-2018.pdf. Accessed October 30, 2021.

    BACKGROUND

  • Franzosa E, Tsui EK, Baron S. "Who's Caring for Us?": Understanding and Addressing the Effects of Emotional Labor on Home Health Aides' Well-being. Gerontologist. 2019 Nov 16;59(6):1055-1064. doi: 10.1093/geront/gny099.

    PMID: 30124808BACKGROUND

  • Stacey CL. Finding dignity in dirty work: the constraints and rewards of low-wage home care labour. Sociol Health Illn. 2005 Sep;27(6):831-54. doi: 10.1111/j.1467-9566.2005.00476.x.

    PMID: 16283901BACKGROUND

  • Edberg AK, Bird M, Richards DA, Woods R, Keeley P, Davis-Quarrell V. Strain in nursing care of people with dementia: nurses' experience in Australia, Sweden and United Kingdom. Aging Ment Health. 2008 Mar;12(2):236-43. doi: 10.1080/13607860701616374.

    PMID: 18389404BACKGROUND

  • American Health Care Association. 2012. American Health Care Association 2012 Staffing Report.Washington, DC: AHCA. https://www.ahcancal.org/research_data/staffing/Documents/2012_Staffing_Report.pdf. Accessed October 30, 2021.

    BACKGROUND

  • Hawes C, Rose M, Phillips CD. 1999. A national study of assisted living for the frail elderly: results of a national survey of facilities. Washington, DC: U.S. Department of Health and Human Services, Office of Disability, Aging, and Long-Term Care Policy.

    BACKGROUND

  • Konetzka RT, Stearns SC, Konrad TR, et al. Personal care aide turnover in residential care settings: An assessment of ownership, economic, and environmental factors. J of Appl Gerontol 2005;24(2):87-107.

    BACKGROUND

  • Khatutsky G, Wiener J, Anderson W, et al. 2011. Understanding Direct Care Workers: A Snapshot of Two of America's Most Important Jobs: Certified Nursing Assistants and Home Health Aides. Washington, DC: U.S. Department of Health and Human Services. http://aspe.hhs.gov/daltcp/reports/2011/cnachart.pdf. Accessed October 30, 2021.

    BACKGROUND

  • Seavey D. (2004). The cost of frontline turnover in long-term care. Washington, DC: American Association of Homes and Services for the Aging. https://phinational.org/wpcontent/uploads/legacy/clearinghouse/TOCostReport.pdf. Accessed October 30, 2021.

    BACKGROUND

  • Castle NG, Engberg J, Anderson R, Men A. Job satisfaction of nurse aides in nursing homes: intent to leave and turnover. Gerontologist. 2007 Apr;47(2):193-204. doi: 10.1093/geront/47.2.193.

    PMID: 17440124BACKGROUND

  • Dawson SL, Surpin R. Direct-care health workers: you get what you pay for. Generations 2001;25:23-28.

    BACKGROUND

  • Trinkoff AM, Storr CL, Lerner NB, Yang BK, Han K. CNA Training Requirements and Resident Care Outcomes in Nursing Homes. Gerontologist. 2017 Jun 1;57(3):501-508. doi: 10.1093/geront/gnw049.

    PMID: 27059825BACKGROUND

  • Kelly CM, Morgan JC, Jason KJ. Home care workers: interstate differences in training requirements and their implications for quality. J Appl Gerontol. 2013 Oct;32(7):804-32. doi: 10.1177/0733464812437371. Epub 2012 Mar 22.

    PMID: 25474799BACKGROUND

  • Ahn R. HCIA Complex/High-Risk Patient Targeting: Third Annual Report. 2017. Bethesda, MD: NORC at the University of Chicago. https:// downloads.cms.gov/files/cmmi/hcia-chspt-thirdannualrpt.pdf. Accessed October 30, 2021.

    BACKGROUND

  • McKenzie GL, Teri L, Salazar MK, Farran CJ, Beck C, Paun O. Relationship between system-level characteristics of assisted living facilities and the health and safety of unlicensed staff. AAOHN J. 2011 Apr;59(4):173-80. doi: 10.3928/08910162-20110328-01.

    PMID: 21462900BACKGROUND

  • Yeatts DE, Cready C, Swan J, Shen Y. The perception of "training availability" among certified nurse aides: relationship to CNA performance, turnover, attitudes, burnout, and empowerment. Gerontol Geriatr Educ. 2010;31(2):115-32. doi: 10.1080/02701961003795722.

    PMID: 20509059BACKGROUND

  • Hollinger-Smith L, Ortigara A. A LEAP toward culture change. Provider. 2006 Feb;32(2):35-8. No abstract available.

    PMID: 16910190BACKGROUND

  • Connolly C, Christman A. Surveying the Home Care Workforce: Their Challenges & the Positive Impact of Unionization. 2017. New York, NY: NELP. https://www.nelp.org/publication/surveying-the-home-careworkforce/. Accessed October 30, 2021.

    BACKGROUND

  • Luz CC, Hanson KV, Hao Y, Spurgeon E. Improving Patient Experiences and Outcomes Through Personal Care Aide Training. J Patient Exp. 2018 Mar;5(1):56-62. doi: 10.1177/2374373517724349. Epub 2017 Aug 30.

    PMID: 29582012BACKGROUND

  • Surr CA, Parveen S, Smith SJ, Drury M, Sass C, Burden S, Oyebode J. The barriers and facilitators to implementing dementia education and training in health and social care services: a mixed-methods study. BMC Health Serv Res. 2020 Jun 5;20(1):512. doi: 10.1186/s12913-020-05382-4.

    PMID: 32503536BACKGROUND

  • Stone R. Introduction: the role of training and education in solving the direct care workforce crisis. Gerontol Geriatr Educ. 2007;28(2):5-16. doi: 10.1300/J021v28n02_02. No abstract available.

    PMID: 18032188BACKGROUND

  • Fazio S, Zimmerman S, Doyle PJ, Shubeck E, Carpenter M, Coram P, Klinger JH, Jackson L, Pace D, Kallmyer B, Pike J; members of the Alzheimer's Association Dementia Care Provider Roundtable. What Is Really Needed to Provide Effective, Person-Centered Care for Behavioral Expressions of Dementia? Guidance from The Alzheimer's Association Dementia Care Provider Roundtable. J Am Med Dir Assoc. 2020 Nov;21(11):1582-1586.e1. doi: 10.1016/j.jamda.2020.05.017. Epub 2020 Jul 25.

    PMID: 32723533BACKGROUND

  • Kim SK, Park M. Effectiveness of person-centered care on people with dementia: a systematic review and meta-analysis. Clin Interv Aging. 2017 Feb 17;12:381-397. doi: 10.2147/CIA.S117637. eCollection 2017.

    PMID: 28255234BACKGROUND

  • Scholzel-Dorenbos CJ, Meeuwsen EJ, Olde Rikkert MG. Integrating unmet needs into dementia health-related quality of life research and care: Introduction of the Hierarchy Model of Needs in Dementia. Aging Ment Health. 2010 Jan;14(1):113-9. doi: 10.1080/13607860903046495.

    PMID: 20155528BACKGROUND

  • Pioneer Network. Person-centered care and the new conditions of participation: It's about doing it right! October 24, 2017. https://www.pioneernetwork.net/person-centered-care-new-conditions-participationright/. Accessed October 30, 2021.

    BACKGROUND

  • American Health Care Association/National Center for Assisted Living. https://www.ahcancal.org/Assisted-Living/Pages/default.aspx. Accessed October 30, 2021.

    BACKGROUND

  • Sloane PD, Hoeffer B, Mitchell CM, McKenzie DA, Barrick AL, Rader J, Stewart BJ, Talerico KA, Rasin JH, Zink RC, Koch GG. Effect of person-centered showering and the towel bath on bathing-associated aggression, agitation, and discomfort in nursing home residents with dementia: a randomized, controlled trial. J Am Geriatr Soc. 2004 Nov;52(11):1795-804. doi: 10.1111/j.1532-5415.2004.52501.x.

    PMID: 15507054BACKGROUND

  • Zimmerman S, Sloane PD, Ward K, Wretman CJ, Stearns SC, Poole P, Preisser JS. Effectiveness of a Mouth Care Program Provided by Nursing Home Staff vs Standard Care on Reducing Pneumonia Incidence: A Cluster Randomized Trial. JAMA Netw Open. 2020 Jun 1;3(6):e204321. doi: 10.1001/jamanetworkopen.2020.4321.

    PMID: 32558913BACKGROUND

  • Ballard C, Corbett A, Orrell M, Williams G, Moniz-Cook E, Romeo R, Woods B, Garrod L, Testad I, Woodward-Carlton B, Wenborn J, Knapp M, Fossey J. Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial. PLoS Med. 2018 Feb 6;15(2):e1002500. doi: 10.1371/journal.pmed.1002500. eCollection 2018 Feb.

    PMID: 29408901BACKGROUND

  • Ordway A, Johnson KL, Kneale L, Amtmann D, Demiris G. The Experience of Home Care Providers and Beneficiaries With Enhanced Training Requirements in Washington State. J Aging Health. 2019 Dec;31(10_suppl):124S-144S. doi: 10.1177/0898264319860298. Epub 2019 Jul 3.

    PMID: 31267811BACKGROUND

  • Peterson D, Berg-Weger MS, McGillick J, Schwartz L. Basic care I: the effect of dementia-specific training on certified nursing assistants and other staff. Am J Alzheimers Dis Other Demen. 2002 May-Jun;17(3):154-64. doi: 10.1177/153331750201700309.

    PMID: 12083345BACKGROUND

  • Polacsek M, Goh A, Malta S, Hallam B, Gahan L, Cooper C, Low LF, Livingston G, Panayiotou A, Loi S, Omori M, Savvas S, Batchelor F, Ames D, Doyle C, Scherer S, Dow B. 'I know they are not trained in dementia': Addressing the need for specialist dementia training for home care workers. Health Soc Care Community. 2020 Mar;28(2):475-484. doi: 10.1111/hsc.12880. Epub 2019 Oct 23.

    PMID: 31646701BACKGROUND

  • Reblin M, Uchino BN. Social and emotional support and its implication for health. Curr Opin Psychiatry. 2008 Mar;21(2):201-5. doi: 10.1097/YCO.0b013e3282f3ad89.

    PMID: 18332671BACKGROUND

  • Person-Centred dementia care. Making services better Dawn Brooker Person-Centred Dementia Care. Making Services Better Jessica Kingsley 160 pound14.99 1 84310 337 0 1843103370 [Formula: see text]. Nurs Older People. 2007 Jun 1;19(5):22-23. doi: 10.7748/nop.19.5.22.s21.

    PMID: 27726617BACKGROUND

  • Kitwood T. Dementia reconsidered: the person comes first. Buckingham, England: Open University Press; 1997.

    BACKGROUND

  • Choi J, Kim DE, Yoon JY. Person-Centered Care Environment Associated With Care Staff Outcomes in Long-Term Care Facilities. J Nurs Res. 2020 Nov 30;29(1):e133. doi: 10.1097/JNR.0000000000000412.

    PMID: 33252502BACKGROUND

  • Brownie S, Nancarrow S. Effects of person-centered care on residents and staff in aged-care facilities: a systematic review. Clin Interv Aging. 2013;8:1-10. doi: 10.2147/CIA.S38589. Epub 2013 Jan 3.

    PMID: 23319855BACKGROUND

  • Barbosa A, Sousa L, Nolan M, Figueiredo D. Effects of Person-Centered Care Approaches to Dementia Care on Staff: A Systematic Review. Am J Alzheimers Dis Other Demen. 2015 Dec;30(8):713-22. doi: 10.1177/1533317513520213.

    PMID: 24449039BACKGROUND

  • Barbosa A, Nolan M, Sousa L, Figueiredo D. Supporting direct care workers in dementia care: effects of a psychoeducational intervention. Am J Alzheimers Dis Other Demen. 2015 Mar;30(2):130-8. doi: 10.1177/1533317514550331. Epub 2014 Sep 18.

    PMID: 25237132BACKGROUND

  • Fazio S, Pace D, Maslow K, Zimmerman S, Kallmyer B. Alzheimer's Association Dementia Care Practice Recommendations. Gerontologist. 2018 Jan 18;58(suppl_1):S1-S9. doi: 10.1093/geront/gnx182. No abstract available.

    PMID: 29361074BACKGROUND

  • Dobbs D, Hobday J, Roker R, Kaas MJ, Molinari V. Certified nursing assistants' perspectives of the CARES(R) activities of daily living dementia care program. Appl Nurs Res. 2018 Feb;39:244-248. doi: 10.1016/j.apnr.2017.11.016. Epub 2017 Nov 7.

    PMID: 29422166BACKGROUND

  • Williams KN, Coleman CK, Perkhounkova Y, Beachy T, Hein M, Shaw CA, Berkley A. Moving Online: A Pilot Clinical Trial of the Changing Talk Online Communication Education for Nursing Home Staff. Gerontologist. 2021 Nov 15;61(8):1338-1345. doi: 10.1093/geront/gnaa210.

    PMID: 33346349BACKGROUND

  • Egan KJ, Pinto-Bruno AC, Bighelli I, Berg-Weger M, van Straten A, Albanese E, Pot AM. Online Training and Support Programs Designed to Improve Mental Health and Reduce Burden Among Caregivers of People With Dementia: A Systematic Review. J Am Med Dir Assoc. 2018 Mar;19(3):200-206.e1. doi: 10.1016/j.jamda.2017.10.023. Epub 2018 Jan 4.

    PMID: 29306605BACKGROUND

  • Fletcher A, Zimmerman S. Preisser JS, et al. Implementation fidelity of a standardized dementia care training program across multiple trainers and settings. Alz Care Today 2010;11(1):51-60.

    BACKGROUND

  • Pleasant M, Molinari V, Dobbs D, Meng H, Hyer K. Effectiveness of online dementia caregivers training programs: A systematic review. Geriatr Nurs. 2020 Nov-Dec;41(6):921-935. doi: 10.1016/j.gerinurse.2020.07.004. Epub 2020 Jul 20.

    PMID: 32703628BACKGROUND

  • Irvine AB, Billow MB, Bourgeois M, Seeley JR. Mental illness training for long term care staff. J Am Med Dir Assoc. 2012 Jan;13(1):81.e7-13. doi: 10.1016/j.jamda.2011.01.015. Epub 2011 Mar 22.

    PMID: 21450251BACKGROUND

  • Rosen J, Mulsant BH, Kollar M, Kastango KB, Mazumdar S, Fox D. Mental health training for nursing home staff using computer-based interactive video: a 6-month randomized trial. J Am Med Dir Assoc. 2002 Sep-Oct;3(5):291-6. doi: 10.1097/01.JAM.0000027201.90817.21.

    PMID: 12807615BACKGROUND

  • Hattink B, Meiland F, van der Roest H, Kevern P, Abiuso F, Bengtsson J, Giuliano A, Duca A, Sanders J, Basnett F, Nugent C, Kingston P, Droes RM. Web-Based STAR E-Learning Course Increases Empathy and Understanding in Dementia Caregivers: Results from a Randomized Controlled Trial in the Netherlands and the United Kingdom. J Med Internet Res. 2015 Oct 30;17(10):e241. doi: 10.2196/jmir.4025.

    PMID: 26519106BACKGROUND

  • Irvine AB, Bourgeois M, Billow M, Seeley JR. Internet training for nurse aides to prevent resident aggression. J Am Med Dir Assoc. 2007 Oct;8(8):519-26. doi: 10.1016/j.jamda.2007.05.002.

    PMID: 17931576BACKGROUND

  • Irvine AB, Billow MB, Gates DM, Fitzwater EL, Seeley JR, Bourgeois M. Internet training to respond to aggressive resident behaviors. Gerontologist. 2012 Feb;52(1):13-23. doi: 10.1093/geront/gnr069. Epub 2011 Oct 30.

    PMID: 22038338BACKGROUND

  • Su HF, Koo M, Lee WL, Sung HC, Lee RP, Liu WI. A dementia care training using mobile e-learning with mentoring support for home care workers: a controlled study. BMC Geriatr. 2021 Feb 16;21(1):126. doi: 10.1186/s12877-021-02075-3.

    PMID: 33593287BACKGROUND

  • Pleasant ML, Molinari V, Hobday JV, Fazio S, Cullen N, Hyer K. An evaluation of the CARES(R) Dementia Basics Program among caregivers. Int Psychogeriatr. 2017 Jan;29(1):45-56. doi: 10.1017/S1041610216001526. Epub 2016 Oct 3.

    PMID: 27692028BACKGROUND

  • Bryan JL, Asghar-Ali AA. Development and Dissemination of an Interprofessional Online Dementia Training Curriculum. J Am Geriatr Soc. 2020 Jan;68(1):192-197. doi: 10.1111/jgs.16240. Epub 2019 Nov 6.

    PMID: 31693177BACKGROUND

  • Gkioka M, Teichmann B, Moraitou D, Papagiannopoulos S, Tsolaki M. Effects of a Person Centered Dementia Training Program in Greek Hospital Staff-Implementation and Evaluation. Brain Sci. 2020 Dec 12;10(12):976. doi: 10.3390/brainsci10120976.

    PMID: 33322754BACKGROUND

  • Surr CA, Gates C, Irving D, Oyebode J, Smith SJ, Parveen S, Drury M, Dennison A. Effective Dementia Education and Training for the Health and Social Care Workforce: A Systematic Review of the Literature. Rev Educ Res. 2017 Oct;87(5):966-1002. doi: 10.3102/0034654317723305. Epub 2017 Jul 31.

    PMID: 28989194BACKGROUND

  • Miller HV, Ward K, Zimmerman S. Implementation effectiveness of psychosocial and environmental care practices in assisted living. Geriatr Nurs. 2021 Jan-Feb;42(1):295-302. doi: 10.1016/j.gerinurse.2020.09.003. Epub 2020 Oct 8.

    PMID: 33041084BACKGROUND

  • Ploeg J, Skelly J, Rowan M, Edwards N, Davies B, Grinspun D, Bajnok I, Downey A. The role of nursing best practice champions in diffusing practice guidelines: a mixed methods study. Worldviews Evid Based Nurs. 2010 Dec;7(4):238-51. doi: 10.1111/j.1741-6787.2010.00202.x. Epub 2010 Sep 28.

    PMID: 20880009BACKGROUND

  • Drake A. How 'upskilling' can maximize home care workers' contributions and improve serious illness care. Health Affairs Blog. 2019. DOI: 10.1377/hblog20190227.420595. Accessed October 30, 2021.

    BACKGROUND

  • Arora S, Geppert CM, Kalishman S, Dion D, Pullara F, Bjeletich B, Simpson G, Alverson DC, Moore LB, Kuhl D, Scaletti JV. Academic health center management of chronic diseases through knowledge networks: Project ECHO. Acad Med. 2007 Feb;82(2):154-60. doi: 10.1097/ACM.0b013e31802d8f68.

    PMID: 17264693BACKGROUND

  • Cuttriss N, Bouchonville MF, Maahs DM, Walker AF. Tele-rounds and Case-Based Training: Project ECHO Telementoring Model Applied to Complex Diabetes Care. Pediatr Clin North Am. 2020 Aug;67(4):759-772. doi: 10.1016/j.pcl.2020.04.017. Epub 2020 Jun 19.

    PMID: 32650871BACKGROUND

  • Thies KM, Gonzalez M, Porto A, Ashley KL, Korman S, Lamb M. Project ECHO COVID-19: Vulnerable Populations and Telehealth Early in the Pandemic. J Prim Care Community Health. 2021 Jan-Dec;12:21501327211019286. doi: 10.1177/21501327211019286.

    PMID: 34036832BACKGROUND

  • Arora S, Thornton K, Murata G, Deming P, Kalishman S, Dion D, Parish B, Burke T, Pak W, Dunkelberg J, Kistin M, Brown J, Jenkusky S, Komaromy M, Qualls C. Outcomes of treatment for hepatitis C virus infection by primary care providers. N Engl J Med. 2011 Jun 9;364(23):2199-207. doi: 10.1056/NEJMoa1009370. Epub 2011 Jun 1.

    PMID: 21631316BACKGROUND

  • Baughman AW, Renton M, Wehbi NK, Sheehan EJ, Gregorio TM, Yurkofsky M, Levine S, Jackson V, Pu CT, Lipsitz LA. Building community and resilience in Massachusetts nursing homes during the COVID-19 pandemic. J Am Geriatr Soc. 2021 Oct;69(10):2716-2721. doi: 10.1111/jgs.17389. Epub 2021 Aug 3.

    PMID: 34310686BACKGROUND

  • Zimmerman S, Gould E, Reed PS, Sloane PD. Dementia care training in nursing homes and assisted living: part I. Alz Care Today 2010;11(1).

    BACKGROUND

  • Zimmerman S, Gould E, Reed PS, Sloane PD. Dementia care training in nursing homes and assisted living: part II. Alz Care Today 2010;11(2).

    BACKGROUND

  • Fletcher A, Zimmerman S. Preisser JS, et al. Trainee and trainer reactions to a scripted dementia care training program in residential care/assisted living settings and nursing homes. Alz Care Today 2010;11(1):61-70.

    BACKGROUND

  • McConnell ES, Corazzini KN, Lekan D, et al. Perception of new pain care practices in dementia care: psychometric properties of the Duke Diffusion of Innovation in Long-Term Care Battery. Alz Care Today 2010;11(2):122-133.

    BACKGROUND

  • Mitchell CM, Zimmerman S, Beeber AS. Dementia care training in long-term care: if you provide it, will they come? Alz Care Today 2010:11(1):40-50.

    BACKGROUND

  • Zimmerman S, Mitchell CM, Reed D, et al. Outcomes of a dementia care training program for staff in nursing homes and residential care/assisted living settings. Alz Care Today 2010;11(2):83-99.

    BACKGROUND

  • Corazzini KN, McConnell ES, Anderson RA, et al. The importance of organizational climate to training needs and outcomes in long-term care. Alz Care Today 2010;11(2):109-121.

    BACKGROUND

  • Bates R. A critical analysis of evaluation practice: The Kirkpatrick model and the principle of beneficence. Eval Program Plann 2004;27:341-347.

    BACKGROUND

  • Kirkpatrick D. Techniques for evaluating training programs. Train Dev J 1979;33(6):79-92.

    BACKGROUND

  • Brody AA, Galvin JE. A review of interprofessional dissemination and education interventions for recognizing and managing dementia. Gerontol Geriatr Educ. 2013;34(3):225-56. doi: 10.1080/02701960.2013.801342.

    PMID: 23879387BACKGROUND

  • Curran GM, Bauer M, Mittman B, Pyne JM, Stetler C. Effectiveness-implementation hybrid designs: combining elements of clinical effectiveness and implementation research to enhance public health impact. Med Care. 2012 Mar;50(3):217-26. doi: 10.1097/MLR.0b013e3182408812.

    PMID: 22310560BACKGROUND

  • Glasgow RE, Harden SM, Gaglio B, Rabin B, Smith ML, Porter GC, Ory MG, Estabrooks PA. RE-AIM Planning and Evaluation Framework: Adapting to New Science and Practice With a 20-Year Review. Front Public Health. 2019 Mar 29;7:64. doi: 10.3389/fpubh.2019.00064. eCollection 2019.

    PMID: 30984733BACKGROUND

  • Glasgow RE, Vogt TM, Boles SM. Evaluating the public health impact of health promotion interventions: the RE-AIM framework. Am J Public Health. 1999 Sep;89(9):1322-7. doi: 10.2105/ajph.89.9.1322.

    PMID: 10474547BACKGROUND

  • Holtrop JS, Estabrooks PA, Gaglio B, Harden SM, Kessler RS, King DK, Kwan BM, Ory MG, Rabin BA, Shelton RC, Glasgow RE. Understanding and applying the RE-AIM framework: Clarifications and resources. J Clin Transl Sci. 2021 May 14;5(1):e126. doi: 10.1017/cts.2021.789. eCollection 2021.

    PMID: 34367671BACKGROUND

  • Onken LS, Carroll KM, Shoham V, Cuthbert BN, Riddle M. Reenvisioning Clinical Science: Unifying the Discipline to Improve the Public Health. Clin Psychol Sci. 2014 Jan 1;2(1):22-34. doi: 10.1177/2167702613497932.

    PMID: 25821658BACKGROUND

  • Carder PC. State Regulatory Approaches for Dementia Care in Residential Care and Assisted Living. Gerontologist. 2017 Aug 1;57(4):776-786. doi: 10.1093/geront/gnw197.

    PMID: 28077453BACKGROUND

  • U.S. Department of Health and Human Services. Compendium of Residential Care and Assisted Living Regulations and Policy: 2015 Edition. https://aspe.hhs.gov/sites/default/files/migrated_legacy_files//73501/15alcom.pdf. Accessed October 30, 2021.

    BACKGROUND

  • US Census Bureau. https://www.census.gov/quickfacts/fact/table/US/PST045219. Accessed October 30, 2021.

    BACKGROUND

  • Zimmerman S, Sloane PD, Eckert JK, Gruber-Baldini AL, Morgan LA, Hebel JR, Magaziner J, Stearns SC, Chen CK. How good is assisted living? Findings and implications from an outcomes study. J Gerontol B Psychol Sci Soc Sci. 2005 Jul;60(4):S195-204. doi: 10.1093/geronb/60.4.s195.

    PMID: 15980295BACKGROUND

  • Hawes C, Phillips CD, Rose M, Holan S, Sherman M. A national survey of assisted living facilities. Gerontologist. 2003 Dec;43(6):875-82. doi: 10.1093/geront/43.6.875.

    PMID: 14704387BACKGROUND

  • Greenhalgh T, Robert G, Macfarlane F, Bate P, Kyriakidou O. Diffusion of innovations in service organizations: systematic review and recommendations. Milbank Q. 2004;82(4):581-629. doi: 10.1111/j.0887-378X.2004.00325.x.

    PMID: 15595944BACKGROUND

  • Cho H, ed. Health Communication Message Design: Theory and Practice. Thousand Oaks, CA: SAGE Publications; 2012.

    BACKGROUND

  • Doak CC, Doak LG, Root JH. Teaching Patients with Low Literacy Skills, 2nd Ed. Philadelphia: Lippincott Williams & Wilkins; 1995.

    BACKGROUND

  • Plain Language Action and Information Network. Plain language in healthcare. https://plainlanguage.gov/resources/content-types/healthcare/. Accessed October 30, 2021.

    BACKGROUND

  • Houts PS, Doak CC, Doak LG, Loscalzo MJ. The role of pictures in improving health communication: a review of research on attention, comprehension, recall, and adherence. Patient Educ Couns. 2006 May;61(2):173-90. doi: 10.1016/j.pec.2005.05.004. Epub 2005 Aug 24.

    PMID: 16122896BACKGROUND

  • Proctor E, Silmere H, Raghavan R, Hovmand P, Aarons G, Bunger A, Griffey R, Hensley M. Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda. Adm Policy Ment Health. 2011 Mar;38(2):65-76. doi: 10.1007/s10488-010-0319-7.

    PMID: 20957426BACKGROUND

  • Zimmerman S, Greene A, Sloane PD, Mitchell M, Giuliani C, Nyrop K, Walsh E. Preventing falls in assisted living: Results of a quality improvement pilot study. Geriatr Nurs. 2017 May-Jun;38(3):185-191. doi: 10.1016/j.gerinurse.2016.09.003. Epub 2016 Oct 21.

    PMID: 27776786BACKGROUND

  • Sloane PD, Zimmerman S, Ward K, Kistler CE, Paone D, Weber DJ, Wretman CJ, Preisser JS. A 2-Year Pragmatic Trial of Antibiotic Stewardship in 27 Community Nursing Homes. J Am Geriatr Soc. 2020 Jan;68(1):46-54. doi: 10.1111/jgs.16059. Epub 2019 Jul 18.

    PMID: 31317534BACKGROUND

  • Harris-Wallace B, Schumacher JG, Perez R, Eckert JK, Doyle PJ, Beeber AS, Zimmerman S. The Emerging Role of Health Care Supervisors in Assisted Living. Seniors Hous Care J. 2011 Jan 1;19(1):97-108.

    PMID: 24817991BACKGROUND

  • Port CL, Zimmerman S, Williams CS, Dobbs D, Preisser JS, Williams SW. Families filling the gap: comparing family involvement for assisted living and nursing home residents with dementia. Gerontologist. 2005 Oct;45 Spec No 1(1):87-95. doi: 10.1093/geront/45.suppl_1.87.

    PMID: 16230755BACKGROUND

  • Cohen LW, Zimmerman S, Reed D, Sloane PD, Beeber AS, Washington T, Cagle JG, Gwyther LP. Dementia in relation to family caregiver involvement and burden in long-term care. J Appl Gerontol. 2014 Aug;33(5):522-40. doi: 10.1177/0733464813505701. Epub 2013 Oct 16.

    PMID: 24652906BACKGROUND

  • Schneider J, Schonstein A, Teschauer W, Kruse A, Teichmann B. Hospital Staff's Attitudes Toward and Knowledge About Dementia Before and After a Two-Day Dementia Training Program. J Alzheimers Dis. 2020;77(1):355-365. doi: 10.3233/JAD-200268.

    PMID: 32741821BACKGROUND

  • Sloane PD, Williams CS, Zimmerman S. Immigrant status and intention to leave of nursing assistants in U.S. nursing homes. J Am Geriatr Soc. 2010 Apr;58(4):731-7. doi: 10.1111/j.1532-5415.2010.02781.x.

    PMID: 20398155BACKGROUND

  • Weiner BJ, Lewis CC, Stanick C, Powell BJ, Dorsey CN, Clary AS, Boynton MH, Halko H. Psychometric assessment of three newly developed implementation outcome measures. Implement Sci. 2017 Aug 29;12(1):108. doi: 10.1186/s13012-017-0635-3.

    PMID: 28851459BACKGROUND

  • Zimmerman S, Hawkes WG, Hebel JR, Fox KM, Lydick E, Magaziner J. The Lower Extremity Gain Scale: a performance-based measure to assess recovery after hip fracture. Arch Phys Med Rehabil. 2006 Mar;87(3):430-6. doi: 10.1016/j.apmr.2005.10.026.

    PMID: 16500180BACKGROUND

  • Munn JC, Dobbs D, Meier A, Williams CS, Biola H, Zimmerman S. The end-of-life experience in long-term care: five themes identified from focus groups with residents, family members, and staff. Gerontologist. 2008 Aug;48(4):485-94. doi: 10.1093/geront/48.4.485.

    PMID: 18728298BACKGROUND

  • Lydick E, Zimmerman SI, Yawn B, Love B, Kleerekoper M, Ross P, Martin A, Holmes R. Development and validation of a discriminative quality of life questionnaire for osteoporosis (the OPTQoL). J Bone Miner Res. 1997 Mar;12(3):456-63. doi: 10.1359/jbmr.1997.12.3.456.

    PMID: 9076589BACKGROUND

  • Project ECHO Evaluation 101: A Practical Guide for Evaluating Your Program. https://nyshealthfoundation.org/wp-content/uploads/2017/12/project-echo-evaluation-guide.pdf. Accessed October 30, 2021.

    BACKGROUND

  • Lintern T,Woods B, Phair L. Training is not enough to change care practice. J Demen Care 2000;8:15-17.

    BACKGROUND

  • Surr CA, Smith SJ, Crossland J, Robins J. Impact of a person-centred dementia care training programme on hospital staff attitudes, role efficacy and perceptions of caring for people with dementia: A repeated measures study. Int J Nurs Stud. 2016 Jan;53:144-51. doi: 10.1016/j.ijnurstu.2015.09.009. Epub 2015 Sep 25.

    PMID: 26421910BACKGROUND

  • de Vries K, Drury-Ruddlesden J, McGill G. Investigation into attitudes towards older people with dementia in acute hospital using the Approaches to Dementia Questionnaire. Dementia (London). 2020 Nov;19(8):2761-2779. doi: 10.1177/1471301219857577. Epub 2019 Jun 21.

    PMID: 31226896BACKGROUND

  • Schepers AK, Orrell M, Shanahan N, Spector A. Sense of competence in dementia care staff (SCIDS) scale: development, reliability, and validity. Int Psychogeriatr. 2012 Jul;24(7):1153-62. doi: 10.1017/S104161021100247X. Epub 2012 Feb 20.

    PMID: 22340666BACKGROUND

  • Banks P, Waugh A, Henderson J, Sharp B, Brown M, Oliver J, Marland G. Enriching the care of patients with dementia in acute settings? The Dementia Champions Programme in Scotland. Dementia (London). 2014 Nov;13(6):717-36. doi: 10.1177/1471301213485084. Epub 2013 May 1.

    PMID: 24339079BACKGROUND

  • Nakanishi M, Endo K, Hirooka K, Nakashima T, Morimoto Y, Granvik E, Minthon L, Nagga K, Nishida A. Dementia behaviour management programme at home: impact of a palliative care approach on care managers and professional caregivers of home care services. Aging Ment Health. 2018 Aug;22(8):1057-1062. doi: 10.1080/13607863.2017.1332160. Epub 2017 May 29.

    PMID: 28553880BACKGROUND

  • Astrom S, Nilsson M, Norberg A, Sandman PO, Winblad B. Staff burnout in dementia care--relations to empathy and attitudes. Int J Nurs Stud. 1991;28(1):65-75. doi: 10.1016/0020-7489(91)90051-4.

    PMID: 1856035BACKGROUND

  • National Nursing Assistant Questionnaire, 2006. https://www.cdc.gov/nchs/data/nnhsd/2004NNASQuestionnaire.pdf. Accessed October 30, 2021.

    BACKGROUND

  • Moyle W, Murfield JE, Griffiths SG, Venturato L. Care staff attitudes and experiences of working with older people with dementia. Australas J Ageing. 2011 Dec;30(4):186-90. doi: 10.1111/j.1741-6612.2010.00470.x. Epub 2010 Oct 8.

    PMID: 22176562BACKGROUND

  • Dolan ED, Mohr D, Lempa M, Joos S, Fihn SD, Nelson KM, Helfrich CD. Using a single item to measure burnout in primary care staff: a psychometric evaluation. J Gen Intern Med. 2015 May;30(5):582-7. doi: 10.1007/s11606-014-3112-6. Epub 2014 Dec 2.

    PMID: 25451989BACKGROUND

  • Zimmerman S, Cohen LW, Reed D, Gwyther LP, Washington T, Cagle JG, Sloane PD, Preisser JS. Families Matter in Long-Term Care: Results of a Group-Randomized Trial. Seniors Hous Care J. 2013;21(1):3-20.

    PMID: 25243051BACKGROUND

  • Maas ML, Reed D, Park M, Specht JP, Schutte D, Kelley LS, Swanson EA, Trip-Reimer T, Buckwalte KC. Outcomes of family involvement in care intervention for caregivers of individuals with dementia. Nurs Res. 2004 Mar-Apr;53(2):76-86. doi: 10.1097/00006199-200403000-00003.

    PMID: 15084992BACKGROUND

  • Donner A, Klar N. Design and analysis of cluster randomization trials in health research. Arnold: London, 2000.

    BACKGROUND

  • Sloane PD, Zimmerman S, Perez R, Reed D, Harris-Wallace B, Khandelwal C, Beeber AS, Mitchell CM, Schumacher J. Physician perspectives on medical care delivery in assisted living. J Am Geriatr Soc. 2011 Dec;59(12):2326-31. doi: 10.1111/j.1532-5415.2011.03714.x. Epub 2011 Nov 8.

    PMID: 22091932BACKGROUND

  • Zimmerman S, Dobbs D, Roth EG, Goldman S, Peeples AD, Wallace B. Promoting and Protecting Against Stigma in Assisted Living and Nursing Homes. Gerontologist. 2016 Jun;56(3):535-47. doi: 10.1093/geront/gnu058. Epub 2014 Jun 13.

    PMID: 24928555BACKGROUND

  • Morgan LA, Eckert JK, Gruber-Baldini AL, Zimmerman S. Policy and research issues for small assisted living facilities. J Aging Soc Policy. 2004;16(4):1-16. doi: 10.1300/J031v16n04_01.

    PMID: 15724570BACKGROUND

  • Dobbs D, Zimmerman S, Carder P, Beeber AS, Palmertree SJ. Staff Reports of Behavioral Expressions of Persons With Dementia in 250 Assisted Living Communities. Gerontologist. 2022 Feb 9;62(2):169-180. doi: 10.1093/geront/gnab059.

    PMID: 33993241BACKGROUND

  • van Soest-Poortvliet MC, van der Steen JT, Zimmerman S, Cohen LW, Munn J, Achterberg WP, Ribbe MW, de Vet HC. Measuring the quality of dying and quality of care when dying in long-term care settings: a qualitative content analysis of available instruments. J Pain Symptom Manage. 2011 Dec;42(6):852-63. doi: 10.1016/j.jpainsymman.2011.02.018. Epub 2011 May 26.

    PMID: 21620642BACKGROUND

  • Kistler CE, Sloane PD, Platts-Mills TF, Beeber AS, Khandelwal C, Weber DJ, Mitchell CM, Reed D, Chisholm L, Zimmerman S. Challenges of antibiotic prescribing for assisted living residents: perspectives of providers, staff, residents, and family members. J Am Geriatr Soc. 2013 Apr;61(4):565-70. doi: 10.1111/jgs.12159. Epub 2013 Mar 1.

    PMID: 23452167BACKGROUND

  • Schumacher JG, Eckert JK, Zimmerman S, Carder P, Wright A. Physician care in assisted living: a qualitative study. J Am Med Dir Assoc. 2005 Jan-Feb;6(1):34-45. doi: 10.1016/j.jamda.2004.12.005.

    PMID: 15871869BACKGROUND

  • Green J, Thorogood N. Qualitative Methods for Health Research. 2nd Ed. Los Angeles: SAGE; 2009.

    BACKGROUND

  • Glaser BG, Strauss AL. The Discovery of Grounded Theory. Chicago, IL: Aldine; 1967.

    BACKGROUND

  • Hooper R, Teerenstra S, de Hoop E, Eldridge S. Sample size calculation for stepped wedge and other longitudinal cluster randomised trials. Stat Med. 2016 Nov 20;35(26):4718-4728. doi: 10.1002/sim.7028. Epub 2016 Jun 28.

    PMID: 27350420BACKGROUND

  • Li F, Turner EL, Preisser JS. Optimal allocation of clusters in cohort stepped wedge designs. Statistics and Probability Letters 2018; 137:257-263.

    BACKGROUND

MeSH Terms

Conditions

BehaviorDementia

Condition Hierarchy (Ancestors)

Brain DiseasesCentral Nervous System DiseasesNervous System DiseasesNeurocognitive DisordersMental Disorders

Study Officials

  • Sheryl Zimmerman, PhD

    University of North Carolina, Chapel Hill

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Johanna Hickey, MSW

CONTACT

9198433085jvtsilbersack@unc.edu

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
INVESTIGATOR
Purpose
HEALTH SERVICES RESEARCH
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

January 24, 2024

First Posted

February 2, 2024

Study Start

April 12, 2024

Primary Completion (Estimated)

April 30, 2027

Study Completion (Estimated)

April 30, 2027

Last Updated

April 13, 2026

Record last verified: 2026-04

Data Sharing

IPD Sharing
Will share

A de-identified computerized dataset will be available for the use of other researchers. The de-identification of the dataset will follow IRB guidance. Select data will be transformed as appropriate (e.g., items in a scale that were reverse coded will be transformed), and scales will be developed from individual items where indicated (maintaining the individual items). The de-identified dataset will be shared in excel or CSV format and will include a codebook for use. Similarly, all data collection instruments will be made available. No specialized tools or software will be necessary to access or use the data. The project coordinator and/or senior analyst will work with potential users for procedures to share the dataset using secure methods informed by Cecil G. Sheps Center for Health Services Data Analytics and Information Technology Department.

Time Frame
A de-identified computerized dataset of all information will be available for the use of other researchers no later than the date of acceptance of the publication that reports the main findings derived from the project, and will remain available for the following ten years.
Access Criteria
Those who wish to use these data will be asked to enter into a data-sharing agreement that will specify the protection of data confidentiality, as well as prohibit the recipient from transferring the data to other users or using the data for purposes other than those expressly agreed upon. In addition, researchers who proposes to use the data will be required to have approval from an Institutional Review Board (IRB), Independent Ethics Committee (IEC), or Research Ethics Board (REB), as applicable.

Locations

US(1)