An Online Survey for Women With Attention Deficit Hyperactivity Disorder (ADHD)

NCT06169709 | Completed

• 1 other identifier: Survey Female ADHD
• Study Type: observational
• Target: 5,893
• Locations: 1 country
• Sites: 1

Brief Summary

The goal of this exploratory study following a cross-sectional online survey in women with ADHD is to

1. 1.describe overall experiences regarding ADHD symptoms, diagnosis, treatment, sources of support, and any perceived barriers on those domains;
2. 2.determine which life domains are most affected by ADHD symptoms;
3. 3.calculate the prevalence of reported health conditions within the following domains: circulatory system, endocrine or metabolic system, gastrointestinal system, genitourinary system, musculoskeletal system, nervous system, respiratory system, skin, reproductive system, cancer, psychiatric conditions, COVID-19, sensory sensitivity, menstrual cycle, and sleep;
4. 4.identify topics that women with ADHD would like to see studied in future research.

Conditions

ADHD

Outcome Measures

Primary Outcomes (1)

• To describe the overall experiences, thoughts, and perspectives of women with ADHD, including domains of ADHD diagnosis and symptoms, ADHD and other health conditions, menstrual cycle, conflict tactics and romantic relationships, and sleep.

  A self-developed questionnaire. The sections on demographic information, ADHD diagnosis, ADHD diagnosis \& symptoms and menstrual cycles are constructed for the purpose of this survey. Moreover, the questionnaire contains sections from the Ultrashort screener for adult ADHD, the Holland Sleep Disorder Questionnaire and the Conflict Tactics scale 2.

  50 minutes

Secondary Outcomes (1)

• To identify topics for further research and ways of improving healthcare (e.g. the diagnostic process or effective treatment) for women with ADHD

  50 minutes

Eligibility Criteria

• Age: 18 Years+
• Gender Eligibility Details: Individuals who identify as women.
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

The survey is aimed at women (or people who identify as women) over 18 years with ADHD (both self-diagnosed and diagnosed by a health professional).

You may qualify if:

• Identify as a woman
• Aged 18 or above
• Have ADHD (both diagnosed by a health professional and self-diagnosed)

You may not qualify if:

• People who are not able to read, understand, or sign the information letter or informed consent form are excluded from participation.

Sponsors & Collaborators

• Parnassia Groep: lead

Study Sites (1)

Parnassia Groep

The Hague, Netherlands

Location

MeSH Terms

Conditions

Attention Deficit Disorder with Hyperactivity

Condition Hierarchy (Ancestors)

Attention Deficit and Disruptive Behavior Disorders; Neurodevelopmental Disorders; Mental Disorders

Study Officials

• Sandra Kooij, Prof. dr.

  PsyQ

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Principal investigator

Study Record Dates

• First Submitted: December 4, 2023
• First Posted: December 13, 2023
• Study Start: February 20, 2024
• Primary Completion: July 10, 2025
• Study Completion: July 10, 2025
• Last Updated: July 18, 2025

Record last verified: 2025-07

Data Sharing

• IPD Sharing: Will not share

Locations

NL (1)