The Role of Family and Individual Factors in Going Through Adolescence - Perspective of a Healthy Child.
Growing up With Disabled Siblings - Opportunity or a Threat to Development? The Role of Family and Individual Factors in Going Through Adolescence - Perspective of a Healthy Child.
1 other identifier
observational
320
1 country
1
Brief Summary
The goal of this observational study is to investigate the specificity of the growing up process in young people with disabled siblings. The functioning of adolescents with disabled siblings as a person growing up in three environments will be examined: family, peers and school. The main questions it aims to answer are:
- Does having a disabled sibling influence the functioning of a healthy child in the family system?
- Do siblings of disabled children show a higher level of maturity than their peers with properly developing siblings?
- Does having a disabled sibling modify a child's functioning among peers?
- Does having a disabled sibling modify healthy adolescent's educational experience?
- Is there a greater risk of psychological disorders among siblings of disabled children than among siblings of normally developing children? The 160 participants' dyads will take part in the study: healthy adolescent having disabled sibling and one of his/her parents. The parents' participation is necessary to assess the presence of possible internalizing and externalizing disorders among adolescents taking part in the study. The healthy adolescent will be filling out questionnaires regarding the remaining studied variables: functioning in the family - siblings relations, parental attitudes; at school - school achievement, extracurricular activities; relations with peers - time spending with peers, number of friends, as well as the growing up process trajectory - parentification and the way of going through an adolescent crisis. Researchers will compare four groups (40 dyads in each group): three groups of adolescents having disabled sibling 1) intellectual disability, 2) motor disability, 3) chronic somatic disease, and 4) control group - healthy adolescent having sibling without any disability, to see if they differ from each other referring to the studied variables.
Trial Health
Trial Health Score
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participants targeted
Target at P75+ for all trials
Started Jun 2023
1 active site
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Study Timeline
Key milestones and dates
Study Start
First participant enrolled
June 13, 2023
CompletedFirst Submitted
Initial submission to the registry
August 30, 2023
CompletedFirst Posted
Study publicly available on registry
December 5, 2023
CompletedPrimary Completion
Last participant's last visit for primary outcome
January 12, 2025
CompletedStudy Completion
Last participant's last visit for all outcomes
January 12, 2025
CompletedDecember 5, 2023
December 1, 2023
1.6 years
August 30, 2023
December 3, 2023
Conditions
Keywords
Outcome Measures
Primary Outcomes (8)
Siblings relations
Questionnaire of Relationships with Siblings. Questionnaire consist of 20 items, composed of three subscales: 1) cohesion, 2) communication, and 3) rivalry. The study participants evaluate the frequency of experiencing the given feelings and behaviors about sibling on 5-point Likert-type scale (from 1 - never, to 5 - very often).
June 13, 2023 until January 12, 2025
Parental Attitudes
Parental Attitude Scale - 2. The questionnaire enables the evaluation of five parental attitudes: Acceptance-rejection, Demanding, Autonomy, Inconsistency, and Overprotective. The questionnaire consists of 45 items (separately for mother and father). The participants provide answers on a 5-point scale, assessing which answer best corresponds to the behavior of the mother/father towards the adolescent (from 1 - not true at all to 5 - completely true).
June 13, 2023 until January 12, 2025
Relations with peers
Relationships with peers will be assessed on the basis of the answers given to the questions in the survey created for the purposes of the study. The questions will consider issues such as: amount of time spend with peers, number of close friends, participation in joint activities with peers. Furthermore to investigate the adolescents' quality of life in terms of relationship with peers and support from them the Polish adaptation of KidScreen-27 will be used. This questionnaire, consists of 27 items. Adolescent answers the given questions on 5-point scale (from 1 - never to 5 - always. The KidScreen-27 measures five dimensions of quality of life 1) physical well-being, 2) psychological well-being, 3) parent relationships and autonomy, 4) social support and peers, and 5) school environment. The social support and peers dimension will be used in the research.
June 13, 2023 until January 12, 2025
Functioning at school
Functioning at school will be assessed on the basis of the answers given to the questions in the survey created for the purposes of the study. The questions will consider issues such as: school achievement (arithmetical mean grade is reported for students on the yearly certificate of class completion, in our study will be self-reported by adolescent), extracurricular activities.
June 13, 2023 until January 12, 2025
Quality of life in school environment dimension
The Polish adaptation of KidScreen-27 will be used to investigate adolescent's quality of life in school environment dimension, which refers to adolescents' feelings towards school, their relationships with teachers and ability to concentrate and learn.
June 13, 2023 until January 12, 2025
Parentification
Parentification Questionnaire for Youth - PQY. The self-report questionnaire captures the multidimensional nature of parentification. PQY consists of 26 items, participants rated their responses 5-point Likert-type scale (1 - never true, to 5 - always true). The scale is composed of four subscales: 1) emotional parentification toward parents, 2) instrumental parentification toward parents, 3) sense of injustice, and 4) satisfaction with the role; and additional two subscales for adolescents who have siblings: 1) instrumental parentification toward siblings, and 2) emotional parentification toward siblings. The above PQY questionnaire does not provide a total score, and score for each subscale is calculated as the mean of the ratings for the subscale items.
June 13, 2023 until January 12, 2025
Adolescent crisis
Teenage Rebellion Questionnaire to assess one of the manifestations of the adolescent crisis - teenage rebellion. Part I describes 39 situations in which teenagers may rebel. These situations refer to three triggers (limitations, threats or discrepancies) and contain a description of a specific subject of rebellion. Part II of the questionnaire contains descriptions relating to four subject groups: 1) behaviors that are a manifestation of rebellion and the reasons for refraining from manifesting rebellion outside; 2) the judgments underlying the rebellion; 3) emotions related to rebellion; and 4) indicators on the basis of which adolescents distinguish rebellion from other mental states. The results obtained in the second part of the questionnaire make it possible to recreate the behaviors, judgments and emotions involved in adolescent rebellion that are characteristic of an individual.
June 13, 2023 until January 12, 2025
Clinical problems
Child Behavior Checklist 6-18 (CBCL). CBCL is a widely known parent measure of emotional and behavioral problems in children and adolescents ages 6-18 years. CBCL consist of 113 items and several scales, which are arranged hierarchically. Each level of the hierarchy reflects a range of different emotional and behavioral problems. At the top of this hierarchy are the Internalizing Domain and the Externalizing Domain. The Internalizing Domain: includes three narrower scales of syndromes 1) Anxious/Depressed, 2) Withdrawn/Depressed, and 3) Somatic Complaints, whereas the Externalizing Domain includes 1) Rule Breaking Behavior and 2) Aggressive Behavior syndrome scales.
June 13, 2023 until January 12, 2025
Secondary Outcomes (1)
Sociodemographic data
June 13, 2023 until January 12, 2025
Study Arms (4)
Adolescents having sibling with intellectual disability
Dyads of healthy Polish adolescents 16-18 y.o., who have sibling with intellectual disability and one of their parent. The parent's participation is necessary to assess the presence of possible disorders in a healthy child.
Adolescents having sibling with motor disability
Dyads of healthy Polish adolescents 16-18 y.o., who have sibling with motor disability and one of their parent. The parent's participation is necessary to assess the presence of possible disorders in a healthy child.
Adolescents having sibling with diabetes
Dyads of healthy Polish adolescents 16-18 y.o., who have sibling with chronic somatic disease - diabetes, and one of their parent. The parent's participation is necessary to assess the presence of possible disorders in a healthy child.
Adolescents having healthy sibling
Dyads of healthy Polish adolescents 16-18 y.o., who ave healthy sibling, and one of their parent. The parent's participation is necessary to assess the presence of possible disorders in a healthy child.
Interventions
Assessment of psychological functioning of adolescents (including occurrence of internalizing and externalizing problems, coping with adolescent crisis), family functioning (siblings relations, parental attitudes, parentification), functioning at school (school achievement, extracurricular activities), relations with peers (time spending with peers, number of friends, quality of relations). Further, the sociodemographic variables will be also measured.
Eligibility Criteria
Polish adolescents having sibling.
You may qualify if:
- age between 16 and 18 years;
- having disabled sibling, depending on the group: with intellectual disability or motor disability or with chronic somatic disease (diabetes);
- participation in the study of one of the parents.
- age between 16 and 18 years;
- having healthy siblings without any disability;
- participation in the study of one of the parents.
You may not qualify if:
- siblings with multiple disabilities, e.g. intellectual and motor disabilities.
- being an adolescent with disability/disorder/disease;
- age below 16 and above 18 years.
Contact the study team to confirm eligibility.
Sponsors & Collaborators
- University of Gdansklead
- National Science Centre, Polandcollaborator
Study Sites (1)
University of Gdansk
Gdansk, Pomeranian Voivodeship, 80-309, Poland
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Ariadna B Łada-Maśko, M.A.
Institute of Psychology, University of Gdansk
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- CASE CONTROL
- Time Perspective
- RETROSPECTIVE
- Sponsor Type
- OTHER
- Responsible Party
- PRINCIPAL INVESTIGATOR
- PI Title
- Principal Investigator
Study Record Dates
First Submitted
August 30, 2023
First Posted
December 5, 2023
Study Start
June 13, 2023
Primary Completion
January 12, 2025
Study Completion
January 12, 2025
Last Updated
December 5, 2023
Record last verified: 2023-12