NCT06008392

Brief Summary

This study is being done to identify markers and causes of cancer by analyzing patient's DNA (i.e., genetic material), RNA, plasma, tissues, or other samples that could be informative for patients with cancer. Cancer genetic testing is a series of tests that finds specific changes in cancer cells and normal cells in the body. Researchers may request to access these data as they explore how to better prevent, screen, or treat cancer. This study is also being done to create a biobank (library) of samples and information to learn more about treating cancer. Discovery of genetic variants in patients with cancer could result in opportunities for cancer prevention, earlier diagnosis or better therapy for cancer.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
350

participants targeted

Target at P75+ for all trials

Timeline
89mo left

Started Oct 2023

Longer than P75 for all trials

Geographic Reach
1 country

3 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress26%
Oct 2023Sep 2033

First Submitted

Initial submission to the registry

August 8, 2023

Completed
15 days until next milestone

First Posted

Study publicly available on registry

August 23, 2023

Completed
2 months until next milestone

Study Start

First participant enrolled

October 12, 2023

Completed
9.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 1, 2033

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

September 1, 2033

Last Updated

October 10, 2025

Status Verified

October 1, 2025

Enrollment Period

9.9 years

First QC Date

August 8, 2023

Last Update Submit

October 8, 2025

Conditions

Keywords

Whole Exome Sequencing (WES)Whole Genome Sequencing (WGS)Genetic TestingGenetic CounselingGenomics

Outcome Measures

Primary Outcomes (1)

  • Genomic sequencing of tumor tissue and blood

    Genomic sequencing of tumor tissue and blood will be performed to determine genomic alterations in germline and somatic cancer-related genes (SNVs, indels, CNVs from DNA and fusions from RNA) to allow the ordering hematologist/oncologist/provider to determine optimal therapy and clinical trial prospective. Researchers across the field of genomic sequencing report findings about new variations in scientific publications and collect it in databases every day. Consequently, any patient's variant of uncertain significance (VUS) result could be reclassified by emerging findings, turning previously unresolved tests into diagnostic answers. Our Translational Omics Program has a system to re-analyze a patient's exome/genome data against these new genetic findings-reviewing data and comparing it with emerging clinical genetic data to facilitate diagnoses.

    Baseline; 50 years

Study Arms (2)

Group A: Germline and Somatic Testing

Potential participants with a cancer diagnosis may be identified through the following sources: patients who will undergo or are currently undergoing clinical evaluation in practices such as, but not limited to, hematology-oncology, gastroenterology-hepatology, radiation-oncology and surgery. Participants will be enrolled in the study indefinitely unless a request to withdraw is made.

Genetic: Pan-genomic Testing

Group B: Germline Testing Only

Potential participants with a cancer diagnosis may be identified through the following sources: patients who will undergo or are currently undergoing clinical evaluation in practices such as, but not limited to, hematology-oncology, gastroenterology-hepatology, radiation-oncology and surgery. Participants will be enrolled in the study indefinitely unless a request to withdraw is made.

Genetic: Pan-genomic Testing

Interventions

Participants will be scheduled to review the study specifics, review consent and gather medical information. Once consented, samples will be collected. When the samples are received by Exact Sciences, DNA and RNA will be extracted, and sequencing will be performed. Following pan-genomic testing, participants will receive the full report with results from their care team and results will also be added to the patient's portal. If a germline finding is identified (positive pathogenic variant) the participant will also be referred for a genetic counselor visit. All results from the germline hereditary test will be reviewed by a certified genetic counselor in addition to a review of their pedigree. To help with review of any genetic research findings, the study team may request to obtain genomic data from previous genetic testing (clinical or research based).

Also known as: Genetic testing
Group A: Germline and Somatic TestingGroup B: Germline Testing Only

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Participants identified internally to Mayo Clinic will be enrolled. The Mayo Clinic study team and/or subspecialty teams will identify participants that fulfill enrollment criteria. Only individuals with a confirmed cancer diagnosis who know they have cancer will be asked to participate. Group B will enroll patients who do not meet NCCN and CMS guidelines for somatic tissue testing and/or whom have had somatic tissue testing, but not germline testing previously.

You may qualify if:

  • GROUP A: Germline and Somatic Testing
  • Has Mayo Clinic medical record number
  • Confirmed cancer diagnosis which is either recurrent, relapsed, refractory, metastatic, or advanced
  • Participant aware of cancer diagnosis
  • Able to provide informed consent
  • Ability to provide blood, saliva, bone marrow aspirate or hair follicle sample
  • Ability to provide archived tissue, Note: if tissue unavailable participant may still enroll onto the study for the germline collection, or vice versa, if germline has already been completed may still enroll for somatic tissue testing.
  • GROUP B: Germline testing only:
  • Has Mayo Clinic medical record number
  • Confirmed cancer diagnosis
  • Participant aware of cancer diagnosis
  • Able to provide informed consent
  • Ability to provide blood, saliva, or hair follicle sample

You may not qualify if:

  • Note: Women who are pregnant or planning to become pregnant can take part in this study.
  • GROUP A: Germline and Somatic testing
  • Individuals who have situations that would limit compliance with the study requirements
  • Institutionalized (i.e. Federal Medical Prison)
  • Prior germline genetic testing with a 100+ multi-gene panel within the last 1 year of enrollment, AND/OR
  • Prior somatic tissue (250+ gene) testing within the prior 3 months of enrollment
  • GROUP B: Germline testing only
  • Individuals who have situations that would limit compliance with the study requirements
  • Institutionalized (i.e. Federal Medical Prison)
  • Prior germline genetic testing with a 100+ multi-gene panel within the last 1 year of enrollment

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (3)

Mayo Clinic in Arizona

Scottsdale, Arizona, 85259, United States

RECRUITING

Mayo Clinic in Florida

Jacksonville, Florida, 32224, United States

RECRUITING

Mayo Clinic in Rochester

Rochester, Minnesota, 55905, United States

RECRUITING

Related Links

Biospecimen

Retention: SAMPLES WITH DNA

Each participant will have residual/archived tissue and a new blood (or saliva, hair follicle) sample for pan-genomic testing as per standard of care testing. Additional samples (including but not limited to tissue, bone marrow, blood, urine, stool, hair follicles, etc) may be requested/collected to be used for additional genomic and other omics studies.

MeSH Terms

Conditions

Neoplasms

Interventions

Genetic Testing

Intervention Hierarchy (Ancestors)

Clinical Laboratory TechniquesDiagnostic Techniques and ProceduresDiagnosisInvestigative TechniquesGenetic TechniquesGenetic ServicesHealth ServicesHealth Care Facilities Workforce and ServicesDiagnostic ServicesPreventive Health Services

Study Officials

  • Jewel J. Samadder, M.D.

    Mayo Clinic

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Clinical Trials Referral Office

CONTACT

Katie M. Gano, M.S.

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Target Duration
50 Years
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

August 8, 2023

First Posted

August 23, 2023

Study Start

October 12, 2023

Primary Completion (Estimated)

September 1, 2033

Study Completion (Estimated)

September 1, 2033

Last Updated

October 10, 2025

Record last verified: 2025-10

Locations