Caregiver Experiences With Tracheostomy

NCT05739578 | Completed

• 1 other identifier: YSAlakan
• Study Type: observational
• Target: 11
• Locations: 1 country
• Sites: 1

Brief Summary

This study aimed to determine the experiences of primary caregivers of patients with tracheostomies on tracheostomy suctioning procedure. This is a semi-structured qualitative study.

Conditions

Tracheostomy; Care Giving Burden; Caregiver

Keywords

Tracheostomy; Suctioning; Caregiver

Outcome Measures

Primary Outcomes (1)

• Experiences of patient's primary caregivers with tracheostomy suctioning before dıschange

  A data collection form included 12 questions related to the sociodemographic characteristics of patients and their primary caregivers. The semi-structured interview questions were as follows;1) How did you feel when the nurse/physician performed suctioning from the tube in your patient's throat for the first time? What did you think? 2) How did you feel when you heard that this process should be continued at home? What do you think? What was your reaction? 3)How did you feel when you performed tracheal suctioning for the first time? 4) What was your reaction when you first heard that suctioning will be your responsibility at home? 5)Are there any different topics/details you want to share related to tracheostomy suctioning before discharge?

  Interviews with each caregiver whose patient's discharge was planned lasted an average of 33 minutes. Interviews with a total of 11 caregivers were completed in 3 months.

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Eleven primary caregivers of patients who volunteered to participate in the study were included.

You may qualify if:

• Being a caregiver of patients with tracheostomy over the age of 18
• Volunteer.
• Being the primary caregiver of the patient,
• Ability to communicate verbally
• Normal psychological state.

You may not qualify if:

• Being a caregiver of tracheostomy patients younger than 18 years of age
• Rejecting the voluntary event,
• Not being the primary caregiver of the patient,
• Inability to communicate verbally
• Having a psychological disorder

Sponsors & Collaborators

• Uludag University: lead

Study Sites (1)

Bursa Uludag university

Bursa, 16000, Turkey (Türkiye)

Location

Related Publications (5)

• Kun SS, Davidson-Ward SL, Hulse LM, Keens TG. How much do primary care givers know about tracheostomy and home ventilator emergency care? Pediatr Pulmonol. 2010 Mar;45(3):270-4. doi: 10.1002/ppul.21169.

  PMID: 20146395 RESULT

• Loerzel VW, Crosby WW, Reising E, Sole ML. Developing the Tracheostomy Care Anxiety Relief Through Education and Support (T-CARES) Program. Clin J Oncol Nurs. 2014 Oct;18(5):522-7. doi: 10.1188/14.CJON.522-527.

  PMID: 25253106 RESULT

• McCormick ME, Ward E, Roberson DW, Shah RK, Stachler RJ, Brenner MJ. Life after Tracheostomy: Patient and Family Perspectives on Teaching, Transitions, and Multidisciplinary Teams. Otolaryngol Head Neck Surg. 2015 Dec;153(6):914-20. doi: 10.1177/0194599815599525. Epub 2015 Aug 18.

  PMID: 26286873 RESULT

• Amar-Dolan LG, Horn MH, O'Connell B, Parsons SK, Roussin CJ, Weinstock PH, Graham RJ. "This Is How Hard It Is". Family Experience of Hospital-to-Home Transition with a Tracheostomy. Ann Am Thorac Soc. 2020 Jul;17(7):860-868. doi: 10.1513/AnnalsATS.201910-780OC.

  PMID: 32267725 RESULT

• Daraie S, Hasanvand S, Goudarzi F, Rassouli M. Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care. Iran J Nurs Midwifery Res. 2021 Mar 5;26(2):137-143. doi: 10.4103/ijnmr.IJNMR_173_20. eCollection 2021 Mar-Apr.

  PMID: 34036061 RESULT

MeSH Terms

Conditions

Caregiver Burden

Condition Hierarchy (Ancestors)

Stress, Psychological; Behavioral Symptoms; Behavior

Study Officials

• Yeliz ŞAPULU ALAKAN

  Uudag Universty

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: FAMILY BASED
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: lecturer

Study Record Dates

• First Submitted: February 2, 2023
• First Posted: February 22, 2023
• Study Start: December 1, 2021
• Primary Completion: February 20, 2022
• Study Completion: February 20, 2022
• Last Updated: February 22, 2023

Record last verified: 2023-02

Data Sharing

• IPD Sharing: Will share
• Shared Documents: STUDY PROTOCOL, CSR
• Time Frame: After the research is published
• Access Criteria: It will be shared by researcher Yeliz ŞAPULU ALAKAN to be used in meta analysis or other research.

Locations

TU (1)