End-of-life Communication From a Chinese Perspective

NCT05734781 | Completed

• 1 other identifier: HSEARS20221217002
• Study Type: observational
• Target: 66
• Locations: 1 country
• Sites: 1

Brief Summary

The goal of this observational study is to explore experiences and perceptions of end-of-life communication in Chinese terminally ill patients, families and healthcare providers. The main question it aims to answer is: • What are the experiences and perceptions of end-of-life communication in Chinese terminally ill patients, families and healthcare providers? Participants will be invited to either semi-structured in-depth interviews or focus group discussions to share their thoughts.

Conditions

Terminally Ill

Keywords

Communication; Health personnel; Terminally ill; Adult

Outcome Measures

Primary Outcomes (1)

• Qualitative data and participants basic information

  Interviews and focus group discussions will be conducted to collect qualitative data

  Through study completion, an average of 12 months

Study Arms (1)

1

Interviewees: terminally ill patients, families and healthcare providers of such patients

Other: Not Application as this is a qualitative study

Interventions

Not Application as this is a qualitative study OTHER

Not Application as this is a qualitative study

1

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Terminally ill patients (whose likely life expectancies of fewer than 12 months), families and healthcare providers of such patients

You may qualify if:

• Patients:
• Be aged older than 18 years
• Have a defined incurable life-limiting illness with a likely life expectancy of fewer than 12 months (National Institute for Health and Care Excellence, 2021), according to the consultation with the patient's physician
• Have been informed of disease diagnosis and treatment
• Be able to speak Mandarin and express clearly
• Be able to provide informed consent
• Family caregivers:
• Be aged older than 18 years
• One of the terminally ill patient's primary family caregivers who are familiar with patient's situation, which is defined as lived with or visited patients at least twice a week in the past month
• Have been informed of patient's disease diagnosis and treatment
• Be able to speak Mandarin
• Be able to provide informed consent
• Healthcare providers:
• Be nurses, physicians or other healthcare professionals
• Be experienced in providing treatment or care to patients with advanced, life-limiting illnesses (whose likely life expectancies of fewer than 12 months) and family caregivers of such patients for at least five years (Koh et al., 2016)

You may not qualify if:

• Patients and family caregivers:
• Severe auditory impairment
• Cognitive impairment

Sponsors & Collaborators

• The Hong Kong Polytechnic University: lead

Study Sites (1)

Zhejiang Cancer Hospital

Hangzhou, Zhejiang, 310000, China

Location

Related Publications (1)

• Chen W, Chung JOK, Lam KKW, Molassiotis A. Patients', families' and healthcare providers' perspectives on end-of-life communication in Chinese hospital settings: A qualitative study protocol. PLoS One. 2023 Dec 27;18(12):e0296342. doi: 10.1371/journal.pone.0296342. eCollection 2023.

  PMID: 38150444 DERIVED

MeSH Terms

Conditions

Communication

Condition Hierarchy (Ancestors)

Behavior

Study Officials

• Joyce Chung, PhD

  The Hong Kong Polytechnic University

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: OTHER
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Assistant Professor, School of Nursing

Study Record Dates

• First Submitted: February 9, 2023
• First Posted: February 21, 2023
• Study Start: May 4, 2023
• Primary Completion: October 31, 2023
• Study Completion: October 31, 2023
• Last Updated: November 4, 2024

Record last verified: 2024-10

Locations

CN (1)