Mental Health and Healthcare in Adults With Intellectual Disabilities

NCT05703503 | Completed

• 2 other identifiers: 4937472022/FO387091
• Study Type: observational
• Target: 214
• Locations: 1 country
• Sites: 1

Brief Summary

Intellectual disability (ID) is a diagnosis characterized by significant limitations both in intellectual functioning and in adaptive behavior as expressed in conceptual, social and practical adaptive skills. The disability originates before age 18 years. The prevalence of mental ill-health among adults with intellectual disabilities is higher than the general population. Individuals with ID use psychotropic medication extensively, but studies indicate that less than one out of three who use psychotropic drugs have a psychiatric diagnosis. The drugs are usually prescribed by a regular general practitioner. People with IDs will often require health- and social services throughout their lifetimes. Studies report worse mental and physical health among people with IDs compared to the general population, in addition to more unmet healthcare needs and more difficulty accessing healthcare. General health surveys in Norway do not include people with intellectual disabilities, and studies of health indicators in this group are largely lacking. Further, the unique organization of services for this group in Norway calls for specific research efforts. This project will use multinational health indicators for youths and adults with IDs in a biopsychosocial context in attempt to identify unmet health care needs to improve services. The project will focus on mental health and challenging behavior and how the related healthcare needs are met. We will also look at the relationship between mental health, behavioral problems and workforce employment amongst people with intellectual disabilities.

Conditions

Intellectual Disabilities (F70-F79); Problem;Behaviour;Adult; Mental Health Issue; Employment; Delivery of Health Care

Keywords

Healthcare; Adults; Employment; Medication; Intellectual Disability; Neurodevelopmental Disorders

Outcome Measures

Primary Outcomes (1)

• Health indicators in a Norwegian population of youths and adults with intellectual disabilities.

  Health indicators as measured by The POMONA Checklist of Health Indicators (P15). The health indicators include measures of socio-demographics, Health status, Health determinants and Health systems.Physical Activity is defined as a Health determinant in this study in accordance With the POMONA Health indicator classification.

  Baseline

Secondary Outcomes (2)

• The Aberrant Behaviour Checklist-Community (ABC-C)

  Baseline

• Moss Psychiatric Assessement Schedules- Checklist (MPAS- Check)

  Baseline

Eligibility Criteria

• Age: 16 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Child (0-17), Adult (18-64), Older Adult (65+)
• Sampling Method: Probability Sample

Study Population

Persons with intellectual disabilities and registered services in the municipalities in two regions localised in the north and middle of Norway will be invited to participate in the study.

You may qualify if:

• Clinical diagnosis of intellectual disability
• Age 16 or older and providing consent to participate.

You may not qualify if:

• Age 15 or younger.

Sponsors & Collaborators

• Norwegian University of Science and Technology: lead
• The Dam Foundation: collaborator
• University of Tromso: collaborator
• University Hospital of North Norway: collaborator
• The Norwegian Association for Persons with Developmental Disabilities: collaborator

Study Sites (1)

Norwegian University of Science and Technology

Trondheim, 7023, Norway

Location

MeSH Terms

Conditions

Intellectual Disability; Neurodevelopmental Disorders

Condition Hierarchy (Ancestors)

Neurobehavioral Manifestations; Neurologic Manifestations; Nervous System Diseases; Signs and Symptoms; Pathological Conditions, Signs and Symptoms; Mental Disorders

Study Officials

• Erik Søndenaa, PhD

  Department of Mental Health, Faculty of Medicine and Health Sciences, NTNU.

  STUDY CHAIR

Study Design

• Study Type: observational
• Observational Model: ECOLOGIC OR COMMUNITY
• Time Perspective: CROSS SECTIONAL
• Target Duration: 1 Day
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: January 19, 2023
• First Posted: January 30, 2023
• Study Start: October 1, 2017
• Primary Completion: December 1, 2019
• Study Completion: December 1, 2019
• Last Updated: February 3, 2023

Record last verified: 2023-02

Locations

NO (1)