NCT05611918

Brief Summary

The investigators propose to perform serial detailed cognitive, motor, behavioral, and blood collection follow-up using longitudinal structured telephone interviews of an anticipated 350 ICH survivors enrolled in Minimally Invasive Surgery Plus Alteplase for Intracerebral Hemorrhage Evacuation (MISTIE) III and ENRICH trials to identify specific cognitive and motor impairment and to perform RNA sequencing to evaluate for evidence of chronic inflammation. The investigators' expected sample size in 2022 accounts for mortality attrition of 10%/year.

Trial Health

75
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
350

participants targeted

Target at P75+ for all trials

Timeline
20mo left

Started May 2023

Longer than P75 for all trials

Geographic Reach
1 country

26 active sites

Status
enrolling by invitation

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress64%
May 2023Dec 2027

First Submitted

Initial submission to the registry

November 3, 2022

Completed
7 days until next milestone

First Posted

Study publicly available on registry

November 10, 2022

Completed
6 months until next milestone

Study Start

First participant enrolled

May 23, 2023

Completed
3.6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 31, 2026

Expected
1 year until next milestone

Study Completion

Last participant's last visit for all outcomes

December 31, 2027

Last Updated

June 15, 2025

Status Verified

June 1, 2025

Enrollment Period

3.6 years

First QC Date

November 3, 2022

Last Update Submit

June 11, 2025

Conditions

Keywords

Intracerebral hemorrhageStrokeCognitive Impairment

Outcome Measures

Primary Outcomes (1)

  • To determine if surgical clot reduction after ICH reduces the risk of progressive cognitive decline.

    Primary outcome measure is the rate of cognitive decline which is based on a composite measure of global cognition using the National Institute on Aging Genetics Initiative for Late Onset Alzheimer Disease (NIA-LOAD) Battery. Clot reduction measure will be obtained from semi-automated computerized volumetrics using the OsiriX software. National Institute on Aging Genetics Initiative for Late Onset Alzheimer Disease (NIA-LOAD) Battery is a 7-measure cognitive testing battery to assess change in episodic, semantic, and working memory in community-dwelling older persons with broad ability levels.

    24 months

Secondary Outcomes (1)

  • To determine if there is a long-term benefit in survival and functional outcome from minimally invasive surgery whether or not cognitive decline occurs

    24 months

Eligibility Criteria

Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodProbability Sample
Study Population

The study populations includes all surviving cases identified and recruited through the 5-year durations of the MISTIE III and ENRICH trials and with follow-up periods extending from 2013-2017 and 2016-2022, respectively.

You may qualify if:

  • Participants in the study must be survivors enrolled in MISTIE III and ENRICH trials at end of each trial's final follow-up (day 365 in MISTIE III and day 180 in ENRICH). Relatives of known survivors that are found to be deceased since the end of each trial will be interviewed to capture relevant data.

You may not qualify if:

  • None

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (26)

University of Alabama at Brimingham

Birmingham, Alabama, 35294, United States

Location

Scripps Health

La Jolla, California, 92037, United States

Location

Dignity Health component - St. Joseph's Hospital and Medical Center

Sacramento, California, 95819, United States

Location

Stanford University

Stanford, California, 94305, United States

Location

Yale University

New Haven, Connecticut, 06511, United States

Location

Mayo Clinic, Jacksonville

Jacksonville, Florida, 32224, United States

Location

CommonSpirit (formerly Mercy San Juan Medical Center; dignity health)

Chicago, Illinois, 60606, United States

Location

University of Illinois at Chicago

Chicago, Illinois, 60607, United States

Location

University of Kansas Medical Center

Fairway, Kansas, 66205, United States

Location

University of Louisville

Louisville, Kentucky, 40292, United States

Location

University of Maryland Baltimore

Baltimore, Maryland, 21201, United States

Location

Johns Hopkins Hospital

Baltimore, Maryland, 21205, United States

Location

University of Michigan

Ann Arbor, Michigan, 48109, United States

Location

Henry Ford Health System

Detroit, Michigan, 48202, United States

Location

Hennepin Healthcare Research Institute

Minneapolis, Minnesota, 55415, United States

Location

Washington University in St. Louis, School of Medicine

St Louis, Missouri, 63130, United States

Location

Rutgers - Robert Wood Johnson Medical School

Piscataway, New Jersey, 08854, United States

Location

University of New Mexico

Albuquerque, New Mexico, 87131, United States

Location

Albert Einstein Montefiore

The Bronx, New York, 10461, United States

Location

Wake Forest University Health Sciences

Winston-Salem, North Carolina, 27157, United States

Location

University of Cincinnati

Cincinnati, Ohio, 45220, United States

Location

Thomas Jefferson University

Philadelphia, Pennsylvania, 19107, United States

Location

Vanderbilt University Medical Center

Nashville, Tennessee, 37232, United States

Location

University of Texas, Houston Health Science Center

Houston, Texas, 77030, United States

Location

University of Texas Health Science Center at San Antonio

San Antonio, Texas, 78229, United States

Location

Inova Health System Foundation

Fairfax, Virginia, 22042, United States

Location

Related Publications (1)

  • Ziai W, Woo D, Sansing L, Hanley D, Ostapkovich N, Triene K, Gilkerson LA, Thompson R, Walborn N, Lane K, McBee N, Langefeld CD, Howard TD, Vagal A, Flaherty ML. The REpeated ASSEssment of SurvivorS in intracerebral haemorrhage: protocol for a multicentre, prospective observational study. BMJ Open. 2025 Feb 6;15(2):e094322. doi: 10.1136/bmjopen-2024-094322.

Biospecimen

Retention: SAMPLES WITH DNA

Complete Blood Count, Ribonucleic Acid, Deoxyribonucleic Acid

MeSH Terms

Conditions

Cerebral HemorrhageHemorrhageStrokeIntracranial ThrombosisThrombosisCognitive DysfunctionMemory DisordersMotor Activity

Condition Hierarchy (Ancestors)

Intracranial HemorrhagesCerebrovascular DisordersBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesVascular DiseasesCardiovascular DiseasesPathologic ProcessesPathological Conditions, Signs and SymptomsIntracranial Embolism and ThrombosisThromboembolismEmbolism and ThrombosisCognition DisordersNeurocognitive DisordersMental DisordersNeurobehavioral ManifestationsNeurologic ManifestationsSigns and SymptomsBehavior

Study Officials

  • Wendy Ziai, MD

    Johns Hopkins University

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
CASE CONTROL
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

November 3, 2022

First Posted

November 10, 2022

Study Start

May 23, 2023

Primary Completion (Estimated)

December 31, 2026

Study Completion (Estimated)

December 31, 2027

Last Updated

June 15, 2025

Record last verified: 2025-06

Data Sharing

IPD Sharing
Will share

NIH policy states grant award recipients must make unique resources readily available for research purposes to qualified individuals within the scientific community after publication. Drs. Ziai and Flaherty are committed to sharing resources, products, and data generated in this study. They are aware of and agree to abide by the principles for sharing research resources as described by NIH in "Principles and Guidelines for Recipients of NIH Research Grants and Contracts on Obtaining and Disseminating Biomedical Research Programs."

Shared Documents
STUDY PROTOCOL, SAP, ICF, CSR
Time Frame
9 months of database lock
Access Criteria
We will share individual-participant-level data, in a de-identified format in compliance with the HIPAA privacy rule, which will make the data free of identifiers that would permit linkages to the research participants and free of content that would create unacceptable risk of subject identification.

Locations