NCT05201833

Brief Summary

The overarching goal of this study is to improve understanding of the long-range natural history of TBI by extending follow-up of a previously enrolled cohort (TRACK-TBI) beyond the first 12 months after injury.

Trial Health

75
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
300

participants targeted

Target at P75+ for all trials

Timeline
10mo left

Started Mar 2022

Longer than P75 for all trials

Geographic Reach
1 country

11 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress84%
Mar 2022Feb 2027

First Submitted

Initial submission to the registry

January 7, 2022

Completed
14 days until next milestone

First Posted

Study publicly available on registry

January 21, 2022

Completed
1 month until next milestone

Study Start

First participant enrolled

March 1, 2022

Completed
4 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

February 28, 2026

Completed
1 year until next milestone

Study Completion

Last participant's last visit for all outcomes

February 28, 2027

Expected
Last Updated

July 16, 2025

Status Verified

July 1, 2025

Enrollment Period

4 years

First QC Date

January 7, 2022

Last Update Submit

July 11, 2025

Conditions

Outcome Measures

Primary Outcomes (1)

  • Glasgow Outcome Scale Extended (GOSE)

    The GOSE provides an overall measure of functional status based on information on cognition, independence, employability, and social/community participation collected via structured interview. Individuals are described by one of the eight outcome categories: Dead (1); Vegetative State (2); Lower Severe Disability (3); Upper Severe Disability (4); Lower Moderate Disability (5); Upper Moderate Disability (6); Lower Good Recovery (7) and Upper Good Recovery (8). Good Recovery is defined as a score of 7-8, Moderate Disability is defined by a score of 5-6 and Severe Disability is defined by a score of 3-4.

    ~4-6 years post-injury

Secondary Outcomes (1)

  • Serum NF-L (neurofilament light chain)

    ~4-6 years post-injury

Study Arms (3)

Telephone Assessment Battery

TRACK-TBI participants may complete up to three annual telephone calls to assess outcome status. These assessments will determine eligibility for the in-person study visit.

Behavioral: Telephone Outcome Assessment

Comprehensive Assessment Battery (CAB)

Participants who demonstrate decision-making capacity will be asked to complete the Comprehensive Assessment Battery (CAB). The CAB in-person is comprised of measures of cognition (i.e. attention, memory, information processing speed, executive functions), mood (i.e., depression, anxiety), social participation, subjective well-being, post-traumatic stress, interviews, global functional status measures, and a COVID-19 questionnaire.

Behavioral: Telephone Outcome AssessmentBehavioral: In-Person Outcome AssessmentProcedure: 3T Magnetic Resonance Imaging (MRI)Procedure: Blood Draw

Abbreviated Assessment Battery (AAB)

Participants who do not have decision-making capacity will be asked to complete a modified assessment battery, called the Abbreviated Assessment Battery (AAB). The AAB in-person assessment will administer the Speech Intelligibility, GOAT, and CAP and/or CRS-R to study participants.

Behavioral: Telephone Outcome AssessmentBehavioral: In-Person Outcome AssessmentProcedure: 3T Magnetic Resonance Imaging (MRI)Procedure: Blood Draw

Interventions

Assessments will be administered over the telephone to evaluate participant outcome status

Abbreviated Assessment Battery (AAB)Comprehensive Assessment Battery (CAB)Telephone Assessment Battery

Assessments will be administered to evaluate participant outcome status

Abbreviated Assessment Battery (AAB)Comprehensive Assessment Battery (CAB)

Participants will be asked to complete a 3T MRI

Abbreviated Assessment Battery (AAB)Comprehensive Assessment Battery (CAB)
Blood DrawPROCEDURE

Blood Draw for Plasma, DNA, Serum, RNA

Abbreviated Assessment Battery (AAB)Comprehensive Assessment Battery (CAB)

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Participants enrolled in TRACK-TBI

You may qualify if:

  • LONGITUDINAL Telephone Assessment:
  • Participated in TRACK-TBI,
  • At least two years post injury, and
  • Completed at least 1 GOSE during the TRACK-TBI follow-up assessments
  • LONGITUDINAL BIOMARKER In-Person Assessment:
  • Must complete at least one Longitudinal Telephone Assessment and fall into one of the following groups:
  • Group 1- Completed TRACK-TBI 6M MRI and are stable or improved with regard to Criteria for Establishing Decline
  • Group 2- Criteria for Establishing Decline met when comparing the Telephone Assessments to the last completed TRACK-TBI assessment
  • Group 3- All TRACK-TBI orthopedic controls
  • Ability of participant or legally authorized representative to provide informed consent

You may not qualify if:

  • Dementia diagnosed prior to the index TBI

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (11)

University of California, San Francisco

San Francisco, California, 94110, United States

Location

Spaulding Rehabilitation Hospital

Charlestown, Massachusetts, 02129, United States

Location

University of Cincinnati

Cincinnati, Ohio, 45267, United States

Location

University of Pennsylvania/Penn Presbyterian Medical Center

Philadelphia, Pennsylvania, 19104, United States

Location

University of Pittsburgh

Pittsburgh, Pennsylvania, 15213, United States

Location

University of Texas at Austin

Austin, Texas, 78712, United States

Location

University of Texas Southwestern

Dallas, Texas, 75390, United States

Location

Baylor College of Medicine

Houston, Texas, 77030, United States

Location

University of Utah

Salt Lake City, Utah, 84132, United States

Location

Virginia Commonwealth University

Richmond, Virginia, 23298, United States

Location

University of Washington

Seattle, Washington, 98104, United States

Location

Biospecimen

Retention: SAMPLES WITH DNA

Biofluids that will be collected and stored include serum, plasma, DNA and RNA. Samples will be banked at -80 degrees Celsius.

MeSH Terms

Conditions

Brain Injuries, Traumatic

Interventions

Blood Specimen Collection

Condition Hierarchy (Ancestors)

Brain InjuriesBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesCraniocerebral TraumaTrauma, Nervous SystemWounds and Injuries

Intervention Hierarchy (Ancestors)

Specimen HandlingClinical Laboratory TechniquesDiagnostic Techniques and ProceduresDiagnosisPuncturesSurgical Procedures, OperativeInvestigative Techniques

Study Officials

  • Ramon Diaz-Arrastia, MD, PhD

    University of Pennsylvania

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

January 7, 2022

First Posted

January 21, 2022

Study Start

March 1, 2022

Primary Completion

February 28, 2026

Study Completion (Estimated)

February 28, 2027

Last Updated

July 16, 2025

Record last verified: 2025-07

Data Sharing

IPD Sharing
Will not share

Locations