Patient Considerations of Social Media Account Management After Death

NCT05035667 | Active Not Recruiting

• 2 other identifiers: 2019-1171NCI-2021-04176
• Study Type: observational
• Target: 117
• Locations: 1 country
• Sites: 1

Brief Summary

This study examines how supportive care clinic patients have made decisions or had discussions about how their caregivers or family should manage their social media account(s) after death. Collecting information on the use of social media and preferences will allow for a better understanding of patient's needs in the dying process and may identify populations in need of education, identify a possible source of anxiety and stress, and allow for an informed discussion of digital legacy.

Conditions

Advanced Malignant Solid Neoplasm; Hematopoietic and Lymphoid System Neoplasm

Outcome Measures

Primary Outcomes (1)

• Proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account

  Will be measured by Question 10 in the survey: "I have had conversations with my family or friends regarding how I would like any of my social media accounts managed after death", which contains five options: Strongly Disagree, Disagree, Neither Agree or Disagree, Agree, or Strongly Agree. The results will be dichotomized into either "Strongly Agree/Agree" or "Neither Agree or Disagree/ Disagree/Strongly Disagree". A two-sided 95% confidence interval will extend a maximum of 0.063 from the proportion of main interest.

  through study completion, an average of 1 year

Study Arms (1)

Observational (questionnaires)

Patients complete questionnaires over 30 minutes about level of anxiety and social media use and management.

Other: Questionnaire Administration

Interventions

Questionnaire Administration OTHER

Complete questionnaires

Observational (questionnaires)

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Patients with advanced cancer attending outpatient Supportive Care Clinic at M D Anderson Cancer Center (MDACC)

You may qualify if:

• Patients with at least 1 follow-up visit to the outpatient Supportive Care Clinic at MDACC
• Patients with any type of advanced cancer
• Patients aged 18 years or older
• Patients who have used social media
• Patients able to read and write in English

You may not qualify if:

• Delirium as diagnosed by treating Supportive Care Center (SCC) physician or Memorial Delirium Assessment Scale (MDAS) score \>= 7

Sponsors & Collaborators

• M.D. Anderson Cancer Center: lead

Study Sites (1)

M D Anderson Cancer Center

Houston, Texas, 77030, United States

Location

Related Links

• MD Anderson Cancer Center

Study Officials

• Jacqueline M Tschanz, MD

  M.D. Anderson Cancer Center

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: May 21, 2021
• First Posted: September 5, 2021
• Study Start: December 22, 2020
• Primary Completion (Estimated): December 31, 2026
• Study Completion (Estimated): December 31, 2026
• Last Updated: April 16, 2026

Record last verified: 2026-04

Locations

US (1)