NCT04684225

Brief Summary

Telerehabilitation Approach on Individuals with Hand-Affected Scleroderma

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
42

participants targeted

Target at P25-P50 for not_applicable

Timeline
Completed

Started Jan 2021

Shorter than P25 for not_applicable

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

December 19, 2020

Completed
5 days until next milestone

First Posted

Study publicly available on registry

December 24, 2020

Completed
13 days until next milestone

Study Start

First participant enrolled

January 6, 2021

Completed
8 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 15, 2021

Completed
2 months until next milestone

Study Completion

Last participant's last visit for all outcomes

November 1, 2021

Completed
Last Updated

April 10, 2023

Status Verified

April 1, 2023

Enrollment Period

8 months

First QC Date

December 19, 2020

Last Update Submit

April 7, 2023

Conditions

Keywords

SclerodermaSystemic sclerosisTelerehabilitationHand therapy

Outcome Measures

Primary Outcomes (1)

  • Hand Mobility in Scleroderma (HAMIS)

    Hand Mobility in Scleroderma is a hand function test developed for adults who have systemic sclerosis. HAMIS consists of 9 items designed to measure all movements assessed in an ordinary range of motion-measured hand test. Each item is graded on a 0-3 scale, where 0 corresponds to normal function and 3 denotes that the individual is unable to perform the item. Each hand is assessed separately. The total score of HAMIS for each hand is 370 Sandqvist and Eklund Vol. 13, No. 6, December 2000 27, which represents a high degree of dysfunction.

    change from baseline at 8 weeks

Secondary Outcomes (3)

  • 9-Hole Peg Test

    change from baseline at 8 weeks

  • Scleroderma Health Assessment Questionnaire (SHAQ)

    change from baseline at 8 weeks

  • Semmes Weinstein Monofilaman Test

    change from baseline at 8 weeks

Study Arms (3)

Telerehabilitation

EXPERIMENTAL

Stretching and strengthening exercises, functional exercises, massage techniques, sensory training and breathing exercises will be applied to the patients via telerehabilitation for 3 sessions per week.

Other: Hand Therapy via Telerehabilitation

Home-exercises

EXPERIMENTAL

Stretching and strengthening exercises, functional exercises, massage techniques, sensory training and breathing exercises will be applied by their own at home for 3 sessions per week.

Other: Hand Therapy via home-exercises

Control

NO INTERVENTION

They will have no intervention for 8 weeks. After the period, they will do home exercises.

Interventions

Hand Therapy via Telerehabilitation

Telerehabilitation

Hand Therapy via home-exercises

Home-exercises

Eligibility Criteria

Age18 Years - 55 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64)

You may qualify if:

  • Having been diagnosed with scleroderma
  • Stability of medical treatments
  • To be able to adapt to the exercises

You may not qualify if:

  • The patient has a history of neurological disease or trauma that may affect his symptoms
  • Systemic involvement that affects the treatment process
  • Being in the active phase of the disease

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Tugba Civi Karaaslan

Istanbul, Buyukcekmece, Cerrahpasa Medical Faculty, Turkey (Türkiye)

Location

MeSH Terms

Conditions

Scleroderma, DiffuseScleroderma, Systemic

Condition Hierarchy (Ancestors)

Connective Tissue DiseasesSkin and Connective Tissue DiseasesSkin Diseases

Study Officials

  • TUGBA CIVI KARAASLAN

    Istanbul University - Cerrahpasa

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Research Assistant

Study Record Dates

First Submitted

December 19, 2020

First Posted

December 24, 2020

Study Start

January 6, 2021

Primary Completion

September 15, 2021

Study Completion

November 1, 2021

Last Updated

April 10, 2023

Record last verified: 2023-04

Data Sharing

IPD Sharing
Will not share

Locations