NCT04597944

Brief Summary

A multicenter observational study aiming to evaluate the efficacy of kallikrein inhibition by lanadelumab in patients with bradykinin- angioedema

Trial Health

57
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
80

participants targeted

Target at P50-P75 for all trials

Timeline
Completed

Started Sep 2020

Longer than P75 for all trials

Geographic Reach
1 country

2 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

September 14, 2020

Completed
4 days until next milestone

Study Start

First participant enrolled

September 18, 2020

Completed
1 month until next milestone

First Posted

Study publicly available on registry

October 22, 2020

Completed
4.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 1, 2025

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

September 1, 2025

Completed
Last Updated

March 19, 2024

Status Verified

March 1, 2024

Enrollment Period

5 years

First QC Date

September 14, 2020

Last Update Submit

March 18, 2024

Conditions

Keywords

Kallikrein, Kininogen, Bradykinin, Lanadelumab

Outcome Measures

Primary Outcomes (1)

  • Evaluation of the efficacy of the kallikrein inhibition by lanadelumab in patients with bradykinin-angioedema

    Levels of cleaved HK measured by Western Blot

    3 months

Secondary Outcomes (3)

  • Evaluation of the efficacy of kallikrein inhibition by lanadelumab in patients with bradykinin-angioedema between T0 and the others visits

    Day 7; 6, 12 and if possible 24 months

  • Immunogenicity of lanadelumab

    Months 3, 6, 12 (and 24 if possible)

  • Evaluation of therapeutic escape

    Months 3, 6, 12 and if possible 24

Study Arms (1)

Participants with Hereditary or Acquired Angioedema

Participants older than 18 years that are diagnosed with Hereditary or Acquired Angioedema and treated by lanadelumab.

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodProbability Sample
Study Population

Hereditary or Acquired Angiodema

You may qualify if:

  • Male/female \>18 years old
  • Patient with hereditary or acquired angioedema
  • Patient treated by lanadelumab
  • Patient whose the biological explorations have been carried out or will be carried out at Laboratory of Immunology of CHUGA
  • Informed consent is obtained from the participant

You may not qualify if:

  • Absence of biological material at T0 and M3 (stored for routine analysis)
  • Person under guardianship or curatorship
  • Female who is pregnant, nursing

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (2)

Chu Grenoble Alpes

Grenoble, 38043, France

RECRUITING

CHU Rouen

Rouen, France

RECRUITING

Biospecimen

Retention: SAMPLES WITHOUT DNA

Whole blood

MeSH Terms

Conditions

Angioedema

Condition Hierarchy (Ancestors)

Vascular DiseasesCardiovascular DiseasesUrticariaSkin Diseases, VascularSkin DiseasesSkin and Connective Tissue DiseasesHypersensitivity, ImmediateHypersensitivityImmune System Diseases

Study Officials

  • Federica DEFENDI

    Grenoble Alpes University Hospital

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Federica Defendi, PhD

CONTACT

Charlotte Kevorkian-Verguet

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Target Duration
24 Months
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

September 14, 2020

First Posted

October 22, 2020

Study Start

September 18, 2020

Primary Completion

September 1, 2025

Study Completion

September 1, 2025

Last Updated

March 19, 2024

Record last verified: 2024-03

Data Sharing

IPD Sharing
Will not share

Locations