The A-LIST WMM Insights Series
A-LIST What Matters Most Insights Series
1 other identifier
observational
10,000
1 country
1
Brief Summary
The main purpose of the Study is to develop an understanding over time and through multiple research projects, including surveys, interviews, online focus groups, and other primary research methodologies (A-LIST Research Projects) on what matters most to individuals concerned about brain health and those with and/or affected by Alzheimer's disease and other dementias, including caregivers.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started Aug 2018
Longer than P75 for all trials
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
Study Start
First participant enrolled
August 15, 2018
CompletedFirst Submitted
Initial submission to the registry
July 7, 2020
CompletedFirst Posted
Study publicly available on registry
July 10, 2020
CompletedPrimary Completion
Last participant's last visit for primary outcome
December 31, 2023
CompletedStudy Completion
Last participant's last visit for all outcomes
December 31, 2023
CompletedJune 15, 2022
June 1, 2022
5.4 years
July 7, 2020
June 13, 2022
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Phenotypical Characteristics of Patients and Caregivers
Online monthly surveys capture the burden and unmet needs for patients and caregivers of individuals with or at risk for Alzheimer's disease, other dementias, and mild cognitive impairment; also recruiting individuals interested in brain health.
3 years
Eligibility Criteria
Individuals who want to focus on brain health; individuals who are worried about their cognition; individuals who perceive themselves to be at risk for Alzheimer's disease (AD); individuals who may be at risk for due to self-identified confirmation of underlying disease pathology; individuals who self-identify as having a diagnosis of mild cognitive impairment (MCI) or of AD or another dementia; and those who self-identify as current or former caregivers of patients with Alzheimer's disease or another dementia.
You may qualify if:
- To be eligible to participate in the Study, an individual must meet all of the following criteria:
- Age 18 years or older.
- United States, Canada resident.
- Self-report of cognitive difficulties, caregiver status or interest in brain health.
- Have indicated willingness to participate by selecting "I Agree" option when joining the A-LIST. Additionally, will have clicked on link - invitation to take a specific survey
- Able to speak, read, and understand English.
You may not qualify if:
- An individual who meets any of the following criteria will be excluded from participation in this Study:
- \. Unable to comply with the Study requirements.
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (1)
UsAgainstAlzheimer's
Washington D.C., District of Columbia, 20043, United States
Related Links
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Theresa Frangiosa, MBA
UsAgainstAlzheimer's
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- COHORT
- Time Perspective
- PROSPECTIVE
- Target Duration
- 3 Years
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
July 7, 2020
First Posted
July 10, 2020
Study Start
August 15, 2018
Primary Completion
December 31, 2023
Study Completion
December 31, 2023
Last Updated
June 15, 2022
Record last verified: 2022-06
Data Sharing
- IPD Sharing
- Will not share