NCT04433364

Brief Summary

Purpose: The emergence of a new coronavirus SARS-CoV-2 causing a novel infection in the human race resulting in a world-spanning pandemic came as a surprise and at a tremendous cost both for individual human lives as well as for the society and the health care sector. The knowledge on how this new infection affects both the mother and the unborn child as well as the outcomes for the mother and the child in the long run are unknown. What is known is based on case-reports and small case-series solely. Both the coronaviruses causing Middle East Respiratory Syndrome (MERS) and Severe Acute Respiratory Syndrome (SARS) can cause a threat to pregnant women and their offspring, which leads to the question whether this could be the case also for SARS-CoV-2. Aims: To establish a biobank of biological material from infected as well as non-infected pregnant women and their offspring. To combine this biobank with Swedish quality and health care registers, computerized patient charts and questionnaire data, enabling both short-term follow up, such as obstetric outcomes, as well as long-term outcomes both for mother and child. To study how the pandemic situation affects both the mother and her partner in their experience of pregnancy, childbirth, and early parenthood. Design: A national Swedish multicentre study. Women are included when they have a positive test for SARS-CoV-2 or a clinical suspicion of coronavirus disease 2019 (COVID-19) (COVID-19 group). Pregnant women without COVID-19 symptoms will be included at their routine visits (Screening group). Blood samples and other biological material will be collected at different time-points. Additional predictors and outcomes are collected from the Swedish Pregnancy Register as well as obligatory Swedish health registers. The biobank and its linkage to health registers through the Swedish personal identification number will enable future research. Child development will be followed during the first year of life by questionnaires to the parents. Womens' and their partners' experience of childbirth and parenthood will be studied in form of questionnaires as well as in form of interviews. Conclusion: This project will help obstetricians and neonatologists better recognize clinical manifestations of the virus, identify possible risk factors during pregnancy and tailor therapies alongside providing right level of surveillance and management during pregnancy, delivery, and child health care.

Trial Health

75
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
3,834

participants targeted

Target at P75+ for all trials

Timeline
179mo left

Started Jun 2020

Longer than P75 for all trials

Geographic Reach
1 country

27 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress29%
Jun 2020Dec 2040

Study Start

First participant enrolled

June 2, 2020

Completed
13 days until next milestone

First Submitted

Initial submission to the registry

June 15, 2020

Completed
1 day until next milestone

First Posted

Study publicly available on registry

June 16, 2020

Completed
6.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 31, 2026

Expected
14 years until next milestone

Study Completion

Last participant's last visit for all outcomes

December 31, 2040

Last Updated

April 16, 2024

Status Verified

April 1, 2024

Enrollment Period

6.6 years

First QC Date

June 15, 2020

Last Update Submit

April 15, 2024

Conditions

Keywords

sars-cov2covid-19pregnancyneonatallong-term follow-upcomplications

Outcome Measures

Primary Outcomes (2)

  • Biobank with linkage to registers

    establish a biobank and database with bio-samples from both women that are not tested and presumed healthy as well as possibly ill and women confirmed tested positive for SARS-CoV-2 and their infants linked to Swedish health care registers including socio-economic factors and use serological and viral analyses from the biological samples to evaluate maternal, fetal and neonatal outcomes.

    1-20 years

  • Experiences of pregnancy during a pandemic

    study how women and their partners experience pregnancy, childbirth and early parenthood in the COVID-19-pandemic, both for women not tested and for women tested positive for SARS-CoV-2.

    1 year

Study Arms (2)

Screening group

a general population of women giving birth, called "screening group" included at routine antenatal visits, their partners, and children

Other: biological samples, questionnaires and interviews

COVID-19 group

group of women testing positive for SARS-CoV-2 or falling ill with COVID-19, called "COVID-19 group", their partners, and children

Other: biological samples, questionnaires and interviews

Interventions

Biological samples: to study impact of testing positive for SARS-CoV-2 during pregnancy samples taken in routine clinical care, samples from already existing research biobanks and the newly established COPE biobank will be used. Time-points: inclusion, at delivery mother and fetus. Covid-19 positive group only: 48-96 h, 2 months postpartum for mother and fetus. Questionnaires: Women and partners in both groups will fill out electronical questionnaires at different time points during pregnancy and until 12 months postpartum based on validated instruments to test for differences in Self-Efficacy, Anxiety and Depression, Health-related quality of life, Sense of Coherence, PTSD Symptoms, Postpartum Bonding, Childbirth experiences and Self-Efficacy of Breastfeeding. The child's health will be assessed regarding infection until 6 weeks of age and development until 4 years. Interviews: 24-40 women and partners in both groups. Interviews will be conducted 3 to 6 months after childbirth.

COVID-19 groupScreening group

Eligibility Criteria

Age18 Years+
Sexfemale
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

18 years of age and above. Attending routine antenatal visits at a participating hospital during the study period or are strongly suspicious of or diagnosed with Covid-19 during pregnancy.

You may qualify if:

  • Pregnant women 18 years of age and above
  • Attending routine antenatal visits at a participating hospital during the study period or are strongly suspicious of or diagnosed with Covid-19 during pregnancy.
  • For the questionnaire part: language knowledge (Swedish, English, Arabic, Somali)
  • For the interview part: Swedish language knowledge

You may not qualify if:

  • Another language but selected ones

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (27)

Falu Hospital

Falun, Dalarna County, 79182, Sweden

Location

Halmstad lasarett

Halmstad, Halland County, 30233, Sweden

Location

Varbergs sjukhus

Varberg, Halland County, 43237, Sweden

Location

Helsingborgs lasarett

Helsingborg, Skåne County, 25223, Sweden

Location

Skåne Universitetssjukhus

Lund, Skåne County, Sweden

Location

Eskiltuna hospital

Eskilstuna, Södermanland County, 63003, Sweden

Location

Boras hospital

Borås, VGR, 50182, Sweden

Location

Sahlgrenska Univeristy Hospital

Gothenburg, VGR, 41685, Sweden

Location

Ryhovs sjukhus

Jönköping, Sweden

Location

Kalmar Lasarett

Kalmar, Sweden

Location

Karlstad lasarett

Karlstad, Sweden

Location

Kristiandstad länssjukhus

Kristianstad, Sweden

Location

Örebro University Hospital

Örebro, Sweden

Location

Skaraborgs sjukhus Skövde

Skövde, Sweden

Location

BB Stockholm

Stockholm, Sweden

Location

Danderyd

Stockholm, Sweden

Location

Karolinska University Hospital Solna

Stockholm, Sweden

Location

Karolinska University Hospital- Huddinge

Stockholm, Sweden

Location

Södersjukhuset

Stockholm, Sweden

Location

Södertälje

Stockholm, Sweden

Location

Sundsvall

Sundsvall, Sweden

Location

Umeå University Hospital

Umeå, Sweden

Location

Uppsala University Hospital

Uppsala, Sweden

Location

Västerås

Västerås, Sweden

Location

Ystad

Ystad, Sweden

Location

Linköping University Hospital

Linköping, Östergötland County, Sweden

Location

Vrinnevisjukhuset

Norrköping, Östergötland County, Sweden

Location

Related Publications (1)

  • Carlsson Y, Bergman L, Zaigham M, Linden K, Andersson O, Veje M, Sandstrom A, Wikstrom AK, Ostling H, Fadl H, Domellof M, Blomberg M, Brismar Wendel S, Aden U, Sengpiel V; COPE study group. COVID-19 in Pregnancy and Early Childhood (COPE): study protocol for a prospective, multicentre biobank, survey and database cohort study. BMJ Open. 2021 Sep 14;11(9):e049376. doi: 10.1136/bmjopen-2021-049376.

Biospecimen

Retention: SAMPLES WITHOUT DNA

Bloodsample from the mother antenatally, at inclusion and at delivery from healthy women, as well as NPH-swab and placenta at delivery. Naval cord blood from healthy infants. From covid-19 pos women: blood sample antenatally and at diagnosis as well as vaginal, rectal and NPH swab and urinary sample. At delivery NPH-swabs as well as vaginal and rectal swabs and urinary samples and blood and in case of caesarean section amnion fluid and spinal fluid. Breastmilk at 48-96 hours after delivery. From the infant naval cord blood and at 48-96 hours after delivery NPH-swab and rectal swab as well as blood sample. For the COVID-19 group a follow-up visit during the first year after delivery for bloodsamples of mother and child/children.

MeSH Terms

Conditions

COVID-19Pregnancy ComplicationsPregnancy in Diabetics

Interventions

Surveys and QuestionnairesInterviews as Topic

Condition Hierarchy (Ancestors)

Pneumonia, ViralPneumoniaRespiratory Tract InfectionsInfectionsVirus DiseasesCoronavirus InfectionsCoronaviridae InfectionsNidovirales InfectionsRNA Virus InfectionsLung DiseasesRespiratory Tract DiseasesFemale Urogenital Diseases and Pregnancy ComplicationsUrogenital Diseases

Intervention Hierarchy (Ancestors)

Data CollectionEpidemiologic MethodsInvestigative TechniquesHealth Care Evaluation MechanismsQuality of Health CareHealth Care Quality, Access, and EvaluationPublic HealthEnvironment and Public Health

Study Officials

  • Verena Sengpiel, MD, PhD

    Sahlgrenska University Hospital

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Target Duration
20 Years
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
MD, PhD, Senior Consultant

Study Record Dates

First Submitted

June 15, 2020

First Posted

June 16, 2020

Study Start

June 2, 2020

Primary Completion (Estimated)

December 31, 2026

Study Completion (Estimated)

December 31, 2040

Last Updated

April 16, 2024

Record last verified: 2024-04

Data Sharing

IPD Sharing
Will share

Outcome variables

Shared Documents
STUDY PROTOCOL, ICF
Time Frame
2024
Access Criteria
Ethical permission
More information

Locations