NCT04336722

Brief Summary

Double-blind, randomized, placebo-controlled, Phase 3 study to investigate the efficacy and safety of odevixibat compared to placebo in children with biliary atresia who have undergone a Kasai hepatoportoenterostomy.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
254

participants targeted

Target at P50-P75 for phase_3

Timeline
2mo left

Started Jul 2020

Longer than P75 for phase_3

Geographic Reach
19 countries

72 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress98%
Jul 2020Jun 2026

First Submitted

Initial submission to the registry

March 27, 2020

Completed
11 days until next milestone

First Posted

Study publicly available on registry

April 7, 2020

Completed
3 months until next milestone

Study Start

First participant enrolled

July 8, 2020

Completed
6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

June 26, 2026

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

June 26, 2026

Last Updated

April 30, 2026

Status Verified

April 1, 2026

Enrollment Period

6 years

First QC Date

March 27, 2020

Last Update Submit

April 29, 2026

Conditions

Keywords

Kasai

Outcome Measures

Primary Outcomes (1)

  • Time from randomization to first occurrence of liver transplant, or death

    From baseline to Week 104

Secondary Outcomes (9)

  • Proportion of patients with liver transplant

    From baseline to Week 104

  • Time to onset of any sentinel events

    From baseline to Week 104

  • Total bilirubin levels

    From baseline to Weeks 13, 26, 52 and 104

  • Serum bile acid levels

    From baseline to Weeks 13, 26, 52 and 104

  • Time to pediatric end-stage liver disease (PELD) score >15

    From baseline to Week 104

  • +4 more secondary outcomes

Study Arms (2)

Odevixibat (A4250)

EXPERIMENTAL

Capsules for oral administration once daily for 104 weeks.

Drug: Odevixibat

Placebo

PLACEBO COMPARATOR

Capsules for oral administration (to match active) once daily for 104 weeks.

Drug: Placebo

Interventions

Odevixibat is a small molecule and selective inhibitor of IBAT.

Odevixibat (A4250)

Placebo identical in appearance to experimental drug (odevixibat).

Placebo

Eligibility Criteria

AgeUp to 111 Days
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)

You may qualify if:

  • A male or female patient with a clinical diagnosis of BA
  • Age at Kasai HPE ≤90 days
  • Eligible to start study treatment within 3 weeks post-Kasai HPE

You may not qualify if:

  • Patients with intractable ascites
  • Ileal resection surgery
  • ALT ≥10× upper limit of normal (ULN) at screening
  • Patients reliant only on total parenteral nutrition, or not able to take study medication orally, at randomization
  • Acute ascending cholangitis (patients may be randomized after resolution of acute ascending cholangitis)
  • Choledochal cystic disease
  • INR \>1.6 (the patient may be treated with Vitamin K intravenously; sample may be redrawn and if INR is ≤1.6 at resampling the patient may be randomized)
  • Any other conditions or abnormalities, including congenital abnormalities, major cardiac surgery, hepatic, biliary, or GI disease which, in the opinion of the Investigator or Medical Monitor, may compromise the safety of the patient, the integrity of study results, or patient compliance with study requirements
  • Weight \<3.5kg at randomization

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (72)

Children's Hospital Los Angeles

Los Angeles, California, 90027, United States

Location

Stanford Children's Health

Palo Alto, California, 94304, United States

Location

Rady Children's Hospital

San Diego, California, 92123, United States

Location

UCSF Benioff Children's Hospital San Francisco

San Francisco, California, 94158, United States

Location

Children's Hospital Colorado

Aurora, Colorado, 80045, United States

Location

Nemours/Alfred I. duPont Hospital for Children

Wilmington, Delaware, 19803, United States

Location

Children's National Medical Center

Washington D.C., District of Columbia, 20010, United States

Location

University of Miami

Miami, Florida, 33146, United States

Location

Children's Healthcare of Atlanta - Emory University School of Medicine

Atlanta, Georgia, 30322, United States

Location

Ann & Robert H. Lurie Children's Hospital

Chicago, Illinois, 60611, United States

Location

Indiana University school of Medicine

Indianapolis, Indiana, 46202, United States

Location

Johns Hopkins Children's Center

Baltimore, Maryland, 21287, United States

Location

Boston Children's Hospital

Boston, Massachusetts, 02115, United States

Location

University of Michigan Children's Hospital

Ann Arbor, Michigan, 48109, United States

Location

Children's Mercy Hospital

Kansas City, Missouri, 64108, United States

Location

Washington University in St. Louis

St Louis, Missouri, 63110, United States

Location

NYU Grossman school of Medicine

New York, New York, 10016, United States

Location

Icahn School of Medicine at Mount Sinai

New York, New York, 10029, United States

Location

NewYork-Presbyterian Morgan Stanley Children's Hospital

New York, New York, 10032, United States

Location

The Children's Hospital at Montefiore

The Bronx, New York, 10467, United States

Location

Duke Central Tower

Durham, North Carolina, 27710, United States

Location

Cincinnati Children's Hospital

Cincinnati, Ohio, 45229, United States

Location

Cleveland Clinic

Cleveland, Ohio, 44195, United States

Location

Oregon Health & Science University

Portland, Oregon, 97239, United States

Location

The Children´s Hospital of Philadelphia

Philadelphia, Pennsylvania, 19104, United States

Location

UPMC Children's Hospital of Pittsburgh

Pittsburgh, Pennsylvania, 15224, United States

Location

UT Southwestern Medical Center

Dallas, Texas, 75390, United States

Location

University of Utah

Salt Lake City, Utah, 84113, United States

Location

Seattle Children's Hospital

Seattle, Washington, 98105, United States

Location

Medical College of Wisconsin

Milwaukee, Wisconsin, 53226, United States

Location

Women's and Children's Hospital (Women's and Children's Health Network, Incorporated.)

North Adelaide, South Australia, Australia

Location

Royal Children's Hospital

Parkville, 3052, Australia

Location

The Children´s Hospital at Westmead

Sydney, Australia

Location

Cliniques Universitaires Saint-Luc

Brussels, Belgium

Location

UZ Gent

Ghent, Belgium

Location

CHU Sainte-Justine

Montreal, Canada

Location

The Hospital for Sick Children

Toronto, Canada

Location

Guangzhou Women and Children's Medical Center

Guangzhou, Guangdong, China

Location

Children's Hospital of Fudan University

Shanghai, China

Location

Hôpital Femme Mère Enfant

Bron, France

Location

Bicêtre Hospital

Le Kremlin-Bicêtre, France

Location

Jeanne de Flandre Hospital

Lille, France

Location

Necker University Hospital - Enfants malades

Paris, France

Location

Charité - Universitätsmedizin Berlin

Berlin, Germany

Location

University Medical Center Hamburg-Eppendorf UKE

Hamburg, Germany

Location

Hannover Medical School

Hanover, Germany

Location

Dr von Hauner Children´s Hospital LMU

Munich, Germany

Location

University Children´s Hospital Tuebingen

Tübingen, Germany

Location

Semmelweis Egyetem I.sz Gyermekgyógyászati Klinika

Budapest, Hungary

Location

Shaare Zedek Medical Center

Jerusalem, Israel

Location

Schneider Children´s Medical Center of Israel

Petah Tikva, Israel

Location

ASST Papa Giovanni XXIII

Bergamo, Italy

Location

Meyer Children´s University Hospital

Florence, Italy

Location

University Hospital of Padova

Padova, Italy

Location

ISMETT - Istituto Mediterraneo per i Trapianti e Terapie ad Alta Specializzazione

Palermo, Italy

Location

Ospedale Pediatrico Bambino Gesù

Roma, Italy

Location

Regina Margherita Children´s Hospital

Turin, Italy

Location

Hospital Raja Perempuan Zainab II

Kota Bharu, Malaysia

Location

University of Malaya Medical Centre

Kuala Lumpur, Malaysia

Location

University Medical Center Groningen

Groningen, Netherlands

Location

Starship Child Health

Auckland, New Zealand

Location

Instytut Pomnik-Centrum Zdrowia Dziecka

Warsaw, Poland

Location

Samsung Medical Center

Seoul, South Korea

Location

Seoul National University Children's Hospital

Seoul, South Korea

Location

Hospital Universitari Vall d'Hebron

Barcelona, Spain

Location

National Taiwan University Hospital

Taipei, Taiwan

Location

Taipei Veterans General Hospital

Taipei, Taiwan

Location

Hacettepe University Ihsan Dogramaci Childrens Hospital

Ankara, Turkey (Türkiye)

Location

Akdeniz University Medical Faculty

Antalya, Turkey (Türkiye)

Location

Istanbul University, Istanbul Medical Faculty

Istanbul, Turkey (Türkiye)

Location

Birmingham Women´s and Children´s Hospital

Birmingham, United Kingdom

Location

Leeds General Infirmary

Leeds, United Kingdom

Location

MeSH Terms

Conditions

Biliary Atresia

Interventions

odevixibat

Condition Hierarchy (Ancestors)

Bile Duct DiseasesBiliary Tract DiseasesDigestive System DiseasesDigestive System AbnormalitiesCongenital AbnormalitiesCongenital, Hereditary, and Neonatal Diseases and Abnormalities

Study Officials

  • Ipsen Medical Director

    Ipsen

    STUDY DIRECTOR

Study Design

Study Type
interventional
Phase
phase 3
Allocation
RANDOMIZED
Masking
TRIPLE
Who Masked
PARTICIPANT, CARE PROVIDER, INVESTIGATOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

March 27, 2020

First Posted

April 7, 2020

Study Start

July 8, 2020

Primary Completion (Estimated)

June 26, 2026

Study Completion (Estimated)

June 26, 2026

Last Updated

April 30, 2026

Record last verified: 2026-04

Data Sharing

IPD Sharing
Will share

Qualified researchers may request access to patient level data and related study documents including the clinical study report, study protocol with any amendments, annotated case report form, statistical analysis plan, and dataset specifications. Patient level data will be anonymized and study documents will be redacted to protect the privacy of study participants.

Time Frame
Where applicable, data from eligible studies are available 6 months after the studied medicine and indication have been approved in the US and/or EU.
Access Criteria
Further details on Ipsen's sharing criteria and process for sharing are available here (https://www.ipsen.com/science/clinical-trials/clinical-data-transparency/).
More information

Locations