Autistic Women's Experiences of Self Compassion and Receiving Their Diagnosis in Adulthood
1 other identifier
observational
12
1 country
1
Brief Summary
Research highlights strong links between self-compassion and mental health, but there is very limited research specifically exploring autistic individual's experiences of self-compassion. The process of receiving a diagnosis on the autism spectrum can be complex and autistic women tend to experience several barriers to diagnosis. This study adds to the growing area of research exploring autistic women's experiences of receiving a diagnosis in adulthood. This study employs Interpretative phenomenological analysis to explore if receiving a diagnosis of Autism influences women's perceptions of self-compassion. The findings may inform client-centred practices in health care settings and potentially present positive aspects of autism diagnosis.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at below P25 for all trials
Started Aug 2019
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
Study Start
First participant enrolled
August 12, 2019
CompletedFirst Submitted
Initial submission to the registry
February 13, 2020
CompletedFirst Posted
Study publicly available on registry
March 10, 2020
CompletedPrimary Completion
Last participant's last visit for primary outcome
December 1, 2020
CompletedStudy Completion
Last participant's last visit for all outcomes
March 29, 2021
CompletedMay 6, 2021
March 1, 2020
1.3 years
February 13, 2020
May 5, 2021
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Experience of receiving ASD diagnosis in adulthood based on semi structured interviews
Participants' experience of receiving ASD diagnosis in adulthood based on semi structured interviews, completed in one interview.
day one
Secondary Outcomes (1)
Experience of self-compassion before and after receiving ASD diagnosis based on semi structured interviews
day one
Eligibility Criteria
Women who have received their diagnosis on the autism spectrum over the age of 18 years old.
You may qualify if:
- Able to consent to participate
- Cisgender female (female at birth and raised as female).
- Speak English fluently
- Received an Autism Spectrum Disorder diagnosis, aged 18 years old or above
You may not qualify if:
- Lack capacity to consent to participate in the study
- Unable to speak English fluently
- Have not received an Autism diagnosis
- Have received Autism diagnosis prior to their 18th birthday
- Have an intellectual disability
- Born male
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (1)
DClin Univeristy of Sheffield
Sheffield, Yorkshire and Humber, S1 2LT, United Kingdom
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Design
- Study Type
- observational
- Observational Model
- CASE ONLY
- Time Perspective
- RETROSPECTIVE
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
February 13, 2020
First Posted
March 10, 2020
Study Start
August 12, 2019
Primary Completion
December 1, 2020
Study Completion
March 29, 2021
Last Updated
May 6, 2021
Record last verified: 2020-03
Data Sharing
- IPD Sharing
- Will not share
All electronic data including transcripts and audio recordings will be stored in the university data repository, until publication and dissemination of the study is completed. The paper copies of anonymized interview transcripts will be stored in a locked cabinet in the research administration office at the university of Sheffield, for a maximum of six years and then destroyed confidentially.