NCT04196647

Brief Summary

The purpose of this study is to

  1. 1.Create a guide for hometitration of Duodopa for patients with Parkinson's disease
  2. 2.Outline which patients could be considered for "hometitration"

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
10

participants targeted

Target at below P25 for all trials

Timeline
Completed

Started Mar 2017

Longer than P75 for all trials

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

March 1, 2017

Completed
2.3 years until next milestone

First Submitted

Initial submission to the registry

June 4, 2019

Completed
6 months until next milestone

First Posted

Study publicly available on registry

December 12, 2019

Completed
2.6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

June 30, 2022

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

June 30, 2022

Completed
Last Updated

November 2, 2022

Status Verified

October 1, 2022

Enrollment Period

5.3 years

First QC Date

June 4, 2019

Last Update Submit

October 31, 2022

Conditions

Keywords

Parkinson diseaseduodopapumptele-medicine

Outcome Measures

Primary Outcomes (1)

  • Patient satisfaction

    Satisfaction questionnaire specific for study. 10 questions with a scale from highly satisfied to not at all satisfied.

    14 days after titration

Secondary Outcomes (6)

  • Hoehn Yahr staging of Parkinson's disease

    2 month

  • Montreal Cognitive Assesment (MOCA)

    2 month

  • Parkinsons Disease Questionnaire 39 (PD-Q39)

    2 month

  • Unified Parkinsons Disease Rating Scale III (UPDRS)

    2 month

  • Barthel-20 index

    2 month

  • +1 more secondary outcomes

Interventions

Patients have their initial dosage titration of duodopa done in their own home, supported by one visit from nursing staff, and one video consultation a day

Eligibility Criteria

Age18 Years - 90 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Patients with advanced parkinson, reffered to Duodopa treatment.

You may qualify if:

  • Idiopathic Parkinson Disease (UK Parkinson's Disease Society Brain Bank criteria-UK PDSBB)
  • Patient must be self-sufficient, or have access to support in own home (spouse, nursing home, home-nurse)
  • Motivated and comfortable with home treatment and telemedicine (tablet provided by the clinic)

You may not qualify if:

  • Patients not eligible for Duodopa-treatment

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Neurologisk klinik, Rigshospitalet Glostrup

Copenhagen, Glostrup, 2600, Denmark

Location

Related Publications (1)

  • Thomsen TH, Nielsen NS, Isenberg AL, Moller MH, Clausen JB, Schack Frederiksen IM, Olsen L, Javidi M, Vilhelmsen J, Olsen MK, Biering-Sorensen B. Home-Based Titration with Duodenal Infusion of Levodopa-Carbidopa Intestinal Gel in People with Parkinson's Disease: An Observational Feasibility Study. Parkinsons Dis. 2024 Apr 8;2024:5522824. doi: 10.1155/2024/5522824. eCollection 2024.

MeSH Terms

Conditions

Parkinson Disease

Condition Hierarchy (Ancestors)

Parkinsonian DisordersBasal Ganglia DiseasesBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesMovement DisordersSynucleinopathiesNeurodegenerative Diseases

Study Officials

  • Bo Biering-Sørensen, Director

    Rigshospitalet, Denmark

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Attending

Study Record Dates

First Submitted

June 4, 2019

First Posted

December 12, 2019

Study Start

March 1, 2017

Primary Completion

June 30, 2022

Study Completion

June 30, 2022

Last Updated

November 2, 2022

Record last verified: 2022-10

Locations