NCT04159038

Brief Summary

This study's goals are to improve connections between Oregon Women, Infants, \& Children (WIC) clinics, primary care providers, and Early Intervention/Early Childhood Special Education programs (EI/ECSE), in order to help children with suspected developmental delays get the services they need.

Trial Health

57
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
46

participants targeted

Target at P25-P50 for not_applicable

Timeline
Completed

Started Jan 2020

Geographic Reach
1 country

4 active sites

Status
terminated

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

November 7, 2019

Completed
5 days until next milestone

First Posted

Study publicly available on registry

November 12, 2019

Completed
2 months until next milestone

Study Start

First participant enrolled

January 10, 2020

Completed
1.7 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 20, 2021

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

September 20, 2021

Completed
Last Updated

May 11, 2022

Status Verified

May 1, 2022

Enrollment Period

1.7 years

First QC Date

November 7, 2019

Last Update Submit

May 5, 2022

Conditions

Keywords

Pilot ProjectsRandomized Controlled Trial

Outcome Measures

Primary Outcomes (3)

  • % of Women, Infants, & Children (WIC) participant visits with Early Intervention/Early Childhood Special Education (EI/ECSE) referral.

    in immediate versus delayed intervention arms, to understand if the intervention boosted EI/ECSE referral rates.

    Start of intervention for 6 months

  • % EI/ECSE referrals evaluated by EI/ECSE

    by 6 months after referral, in both arms, to see if increased referral actually results in increased EI/ECSE evaluation.

    Start of intervention for 6 months

  • Time from referral to evaluation

    in both arms, to see if the intervention accelerated EI/ECSE evaluation.

    Start of intervention for 6 months

Secondary Outcomes (2)

  • % of those found eligible on EI/ECSE treatment, 6-months post referral

    Start of intervention for 6 months

  • % of public-health identified children referred to EI/ECSE by WIC

    Start of intervention for 6 months

Study Arms (2)

Immediate Intervention Group

EXPERIMENTAL

Parents in the immediate intervention arm sign a study consent that is integrated into the WIC Referral Form. They also complete a brief demographic survey. No consent is necessary in the delayed intervention arm as only aggregate information will be reported to the study team by EI/ECSE. EI/ECSE referrals are tracked from clinics in both arms for 6 months in ecWeb. At the end of the data collection period, the study team will meet to refine the intervention based on the experience with the immediate intervention group. Qualitative Interviews will take place with WIC staff, parents who indicate interest, EI/ECSE staff, and primary care providers during and after the post-intervention data collection period.

Other: Intervention Group

Delayed Intervention Group

OTHER

6 months after the immediate intervention group receives their training, the delayed intervention group will receive the training. Prior to implementation of the training in the delayed intervention group, the study team will meet with the Stakeholder Advisory Board. It will review interim results and consider the efficacy of the intervention as a whole. Based on actual use patterns and stakeholder feedback, the investigators will make improvements to the intervention prior to implementing it in the delayed intervention group.

Other: Control group

Interventions

The immediate intervention group will receive training on how to identify children at risk for developmental disabilities and how to refer to Early Intervention/Early Childhood Special Education.

Immediate Intervention Group

The control group will continue usual WIC care.

Delayed Intervention Group

Eligibility Criteria

AgeUp to 54 Months
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)

You may qualify if:

  • The primary subject population of interest are Women, Infants, \& Children families who in the course of a WIC visit identify a potential developmental concern and agree to a direct referral from WIC to Early Intervention to further assess that concern. To be eligible for the study, the parent/guardian must speak English or Spanish. The child with the identified concern must be under 54 months of age as the investigators will need to follow the child for 6 months to determine initial outcomes and children are no longer eligible for WIC after their 5th birthday.

You may not qualify if:

  • Family speaks language that isn't English or Spanish. Child is older than 54 months.
  • Staff does not work in their professional role in the county studied.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (4)

Deschutes County WIC

Bend, Oregon, 97701, United States

Location

Josephine County WIC

Grants Pass, Oregon, 97526, United States

Location

Washington County WIC

Hillsboro, Oregon, 97124, United States

Location

Jefferson County WIC

Madras, Oregon, 97741, United States

Location

Related Links

MeSH Terms

Conditions

Developmental Disabilities

Interventions

Control Groups

Condition Hierarchy (Ancestors)

Neurodevelopmental DisordersMental Disorders

Intervention Hierarchy (Ancestors)

Epidemiologic Research DesignEpidemiologic MethodsInvestigative TechniquesResearch DesignMethods

Study Officials

  • Katharine Zuckerman, M.D., M.P.H.

    Oregon Health and Science University

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
NONE
Purpose
HEALTH SERVICES RESEARCH
Intervention Model
CROSSOVER
Model Details: Parents in the immediate intervention arm sign a study consent that is integrated into the Women, Infants, \& Children (WIC) Referral Form. They also complete a brief demographic survey. No consent is necessary in the delayed intervention arm as only aggregate information will be reported to the study team by Early Intervention/Early Childhood Special Education. EI/ECSE referrals are tracked from clinics in both arms for 6 months in ecWeb. At the end of the data collection period, the study team will meet to refine the intervention based on the experience with the immediate intervention group. Qualitative Interviews will take place with WIC staff, parents who indicate interest, EI/ECSE staff, and primary care providers during and after the post-intervention data collection period.
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Principal Investigator

Study Record Dates

First Submitted

November 7, 2019

First Posted

November 12, 2019

Study Start

January 10, 2020

Primary Completion

September 20, 2021

Study Completion

September 20, 2021

Last Updated

May 11, 2022

Record last verified: 2022-05

Data Sharing

IPD Sharing
Will not share

Locations