NCT03980886

Brief Summary

Single center observational and specimen banking study for children with eosinophilic esophagitis EoE to gauge natural history and inflammatory markers

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,500

participants targeted

Target at P75+ for all trials

Timeline
32mo left

Started Feb 2019

Longer than P75 for all trials

Geographic Reach
1 country

1 active site

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress73%
Feb 2019Dec 2028

Study Start

First participant enrolled

February 11, 2019

Completed
2 months until next milestone

First Submitted

Initial submission to the registry

April 23, 2019

Completed
2 months until next milestone

First Posted

Study publicly available on registry

June 10, 2019

Completed
9.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 17, 2028

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 17, 2028

Last Updated

November 25, 2024

Status Verified

November 1, 2024

Enrollment Period

9.9 years

First QC Date

April 23, 2019

Last Update Submit

November 20, 2024

Conditions

Outcome Measures

Primary Outcomes (2)

  • The longitudinal trajectory of symptoms, endoscopy, and histology in pediatric EoE during routine clinical care

    Outcome measures of symptoms, histology, endoscopy, and lab values such as peripheral eosinophilia and cortisol procured at each clinical and/or endoscopy visit will be entered and tracked in a UCSD/RCHSD de-identified database in order to understand their longitudinal trajectory during routine clinical care

    10 years

  • The longitudinal trajectory of inflammatory markers in blood and biopsies in pediatric EoE during routine clinical care

    The presence and severity of inflammatory markers and cells over time in specimens collected during routine endoscopy and biopsy will be measured to understand their alignment with outcome measures of symptoms, histology, and endoscopy

    10 years

Eligibility Criteria

Age1 Year - 65 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

The majority of patients who are diagnosed with EoE or suspected EoE at RCHSD/UCSD

You may qualify if:

  • Have a known EoE diagnosis
  • Complain of dysphagia, vomiting, or abdominal pain, especially if recalcitrant to acid blocking therapy (but does not have to be recalcitrant to acid blocking medications)
  • Present with food impaction
  • Present with esophageal stricture
  • Have characteristic endoscopic findings of EoE of pallor, linear furrows, lichenification, white plaques, or concentric rings

You may not qualify if:

  • None

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Rady Children's Hospital San Diego

San Diego, California, 92123, United States

RECRUITING

Biospecimen

Retention: SAMPLES WITH DNA

Esophageal biopsies and/or cells derived from biopsies and Blood

MeSH Terms

Conditions

Eosinophilic Esophagitis

Condition Hierarchy (Ancestors)

EsophagitisEsophageal DiseasesGastrointestinal DiseasesDigestive System DiseasesGastroenteritisEosinophiliaLeukocyte DisordersHematologic DiseasesHemic and Lymphatic DiseasesHypersensitivity, ImmediateHypersensitivityImmune System Diseases

Central Study Contacts

Kira Chaiboonma, BS

CONTACT

Seema S Aceves, MD, PhD

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Professor, Pediatrics and Medicine

Study Record Dates

First Submitted

April 23, 2019

First Posted

June 10, 2019

Study Start

February 11, 2019

Primary Completion (Estimated)

December 17, 2028

Study Completion (Estimated)

December 17, 2028

Last Updated

November 25, 2024

Record last verified: 2024-11

Data Sharing

IPD Sharing
Will share

De-identified information and samples might be shared with other researchers at other institutions

Time Frame
Ongoing

Locations