NCT03967834

Brief Summary

This trial is a translational, open-label, multi-sites, prospective and retrospective cohort study of 500 patients aimed at clinical and biological characterization of sarcoma of rare subtype. 400 patients will be included in this prospective cohort study; they will be identified in the investigating centers in the context of either routine care or a clinical study protocol. Retrospective cases of patients (100 cases in total) will be identified in all centers through the GSF/GETO clinical databases already setted up (including the clinical base Conticabase).

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
400

participants targeted

Target at P75+ for not_applicable

Timeline
60mo left

Started Apr 2021

Longer than P75 for not_applicable

Geographic Reach
1 country

20 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress51%
Apr 2021Apr 2031

First Submitted

Initial submission to the registry

May 27, 2019

Completed
3 days until next milestone

First Posted

Study publicly available on registry

May 30, 2019

Completed
1.9 years until next milestone

Study Start

First participant enrolled

April 26, 2021

Completed
9.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

April 1, 2031

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

April 1, 2031

Last Updated

February 10, 2026

Status Verified

February 1, 2026

Enrollment Period

9.9 years

First QC Date

May 27, 2019

Last Update Submit

February 9, 2026

Conditions

Keywords

Soft Tissue SarcomaClear Cell SarcomaEpithelioid SarcomaPerivascular Epithelioid Cell NeoplasmsDesmoplastic Small Round Cell TumorMalignant Solitary Fibrous TumorsAlveolar Soft Part SarcomaEpithelioid HemangioendotheliomaLow Grade Fibromyxoid SarcomaSclerosing Epithelioid Fibrosarcoma

Outcome Measures

Primary Outcomes (2)

  • Metastasis-free survival for patients with localized disease.

    60 months for each patients

  • Progression-free survival for patients with metastatic disease.

    60 months for each patients

Secondary Outcomes (3)

  • Cancer-Testis Antigens (CTA) expression.

    60 months for each patients

  • The rate of patients presenting high-risk CINSARC (Complexity Index in SARComas) signature.

    60 months for each patients

  • Overall survival.

    60 months for each patients

Study Arms (1)

Patient with Soft Tissue Sarcoma (Prospective cohort)

OTHER
Other: Patient with Soft Tissue Sarcoma

Interventions

* Tumor specimens will be collected for the study at diagnosis. * A blood sample will be collected in all included patients at baseline, after the completion of the treatment (for patients included with a localized disease) or at the time of the first tumoral evaluation (for patients included with a metastatic disease), and at the time of progression. * Patient's data (clinical, biological and disease data) will also be collected at baseline visit and then at each time point planned in the center for clinical benefit assessment (i.e. every 2 or 3 months) until progression or for a maximum duration of 5 years.

Patient with Soft Tissue Sarcoma (Prospective cohort)

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Age ≥18 years at the time of study entry.
  • Diagnosis of one of the following rare sarcoma subtype, confirmed by RRePS network:
  • Clear Cell Sarcoma (CCS)
  • Epithelioid Sarcoma (ES)
  • Perivascular Epithelioid Cell neoplasm (PEComa)
  • Desmoplastic Small Round Cell Tumours (DSRCT)
  • Malignant Solitary Fibrous Tumours (mSFT)
  • Alveolar Soft Part Sarcoma (ASPS)
  • Epithelioid Hemangioendothelioma (EH)
  • Low-Grade Fibromyxoid Sarcoma (LGFS)
  • Sclerosing Epithelioid Fibrosarcoma (SEF).
  • Localized/locally advanced or metastatic disease.
  • Patient followed in the center within a standard of care procedure or clinical trial.
  • Archived tumor specimen at initial diagnosis available (before treatment initiation).
  • Evaluable disease (measurable as per RECIST 1.1) or not.
  • +3 more criteria

You may not qualify if:

  • Diagnosis of all other histotypes of soft tissue sarcoma.
  • Any condition contraindicated with procedures required by the protocol.
  • Known history of positive test for hepatitis B virus or hepatitis C virus or human immunodeficiency virus (HIV) or known acquired immunodeficiency syndrome (AIDS).
  • Any psychological, familial, geographic or social situation, according to the judgment of investigator, potentially preventing the provision of informed consent or compliance to study procedure.
  • Pregnant or breast-feeding woman.
  • Patient who has forfeited his/her freedom by administrative or legal award or who is under guardianship.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (20)

Chu Besancon - Site Jean Minjoz

Besançon, 25000, France

RECRUITING

Institut Bergonié

Bordeaux, France

RECRUITING

Centre Jean Perrin

Clermont-Ferrand, 63011, France

RECRUITING

Centre Georges François Leclerc

Dijon, France

NOT YET RECRUITING

Centre Oscar Lambret

Lille, 59020, France

RECRUITING

Chu Dupuytren

Limoges, France

RECRUITING

Centre Leon Berard

Lyon, 69008, France

RECRUITING

Institut Paoli-Calmettes

Marseille, 13009, France

WITHDRAWN

Chu de Marseille - Hopital de La Timone

Marseille, France

RECRUITING

Centre Antoine Lacassagne

Nice, 06189, France

RECRUITING

Hôpital Cochin - Site Port-Royal

Paris, France

RECRUITING

Institut Curie

Paris, France

RECRUITING

Chu Poitiers

Poitiers, France

RECRUITING

Institut Godinot

Reims, France

RECRUITING

Centre Eugene Marquis

Rennes, France

RECRUITING

Institut de Cancerologie de L'Ouest - Site Rene Gauducheau

Saint-Herblain, 44805, France

WITHDRAWN

Hôpitaux Universitaires de Strasbourg

Strasbourg, France

RECRUITING

Institut Universitaire du Cancer Toulouse - Oncopole

Toulouse, France

RECRUITING

Institut de Cancerologie de Lorraine

Vandœuvre-lès-Nancy, 54519, France

RECRUITING

Institut Gustave Roussy

Villejuif, 94805, France

WITHDRAWN

MeSH Terms

Conditions

SarcomaSarcoma, Clear CellPerivascular Epithelioid Cell NeoplasmsDesmoplastic Small Round Cell TumorSarcoma, Alveolar Soft PartHemangioendothelioma, Epithelioid

Condition Hierarchy (Ancestors)

Neoplasms, Connective and Soft TissueNeoplasms by Histologic TypeNeoplasmsNeoplasms, Connective TissueNeoplasms, Muscle TissueHemangioendotheliomaHemangiomaNeoplasms, Vascular Tissue

Central Study Contacts

Study Design

Study Type
interventional
Phase
not applicable
Allocation
NA
Masking
NONE
Purpose
OTHER
Intervention Model
SINGLE GROUP
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

May 27, 2019

First Posted

May 30, 2019

Study Start

April 26, 2021

Primary Completion (Estimated)

April 1, 2031

Study Completion (Estimated)

April 1, 2031

Last Updated

February 10, 2026

Record last verified: 2026-02

Locations