A Study to Co-produce a Young Carers App
A Study to Co-produce, and Explore the Impact of, an App-based Support Intervention on Young Carers
1 other identifier
observational
50
1 country
1
Brief Summary
This study will co-produce and pilot-test a mobile phone App and a booklet, with input from local secondary schools and carer support groups to develop and pilot-test the App, in order to ensure it is designed to meet young people's needs. This App will serve to increase knowledge, information and provide strong links for young carers and local support available.This is a mixed methods study, using a transformative design. A transformative approach centres on users' needs and uses their experiences to shape how the App will look (in this case, uses are young carers). Carers will co-produce the App and booklet. The study will explore how a free app-based online support tool can help enhance support for young carers. Young carers have been involved since the outset and drove this planned study.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P25-P50 for all trials
Started Mar 2019
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
First Submitted
Initial submission to the registry
January 29, 2019
CompletedFirst Posted
Study publicly available on registry
January 31, 2019
CompletedStudy Start
First participant enrolled
March 20, 2019
CompletedPrimary Completion
Last participant's last visit for primary outcome
December 1, 2020
CompletedStudy Completion
Last participant's last visit for all outcomes
December 1, 2020
CompletedMay 23, 2019
May 1, 2019
1.7 years
January 29, 2019
May 22, 2019
Conditions
Outcome Measures
Primary Outcomes (1)
To understand young carer experiences, co-produce and develop an App for young carers 11yrs-18yrs age range in order to improve outcomes for family members and young carers
Measured by qualitative feedback on the app via transcriptions. Includes understanding of transition points such as admission/discharge to hospital.
18 months
Secondary Outcomes (4)
Formulation of a Young Carer Handbook
18 months
Gain understanding of App usage
18 months
Explore usefulness of the App and experience of caring over time
18 months
Capture information on referral rates of Young Carers before and after App introduction
18 months
Study Arms (2)
Stage 1
School children age 11-18 (from two nominated schools) and young carers 11-18
Stage 2
Young carers from Young Carers in Herts 11-18
Interventions
Eligibility Criteria
Young Carers in Hertfordshire
You may qualify if:
- School children from nominated schools in Hertfordshire (stage 1)
- Ability to provide informed consent (consent processes/literature will be age appropriate 11-17) (stage 2)
- Able to complete questionnaires (stage 2)
You may not qualify if:
- Does not speak or understand English
- Lacks mental capacity
- Young carers outside Hertfordshire
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (1)
East and North Hertfordshire NHS Trust
Stevenage, SG14AB, United Kingdom
MeSH Terms
Interventions
Intervention Hierarchy (Ancestors)
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- OTHER
- Time Perspective
- PROSPECTIVE
- Sponsor Type
- OTHER GOV
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
January 29, 2019
First Posted
January 31, 2019
Study Start
March 20, 2019
Primary Completion
December 1, 2020
Study Completion
December 1, 2020
Last Updated
May 23, 2019
Record last verified: 2019-05
Data Sharing
- IPD Sharing
- Will not share
Identifiable data will not be shared with other researchers. The publication plan in the study protocol will be followed.