Examining Parkinson's Disease-Related Retirement: Results of Turkey

NCT03779880 | Completed

• 1 other identifier: 132
• Study Type: observational
• Target: 75
• Locations: 1 country
• Sites: 1

Brief Summary

Although Parkinson Disease's (PD) is usually associated with an older patient population, 5% of patients are diagnosed at age 50 and 30% before 65 years of age. This shows that many patients with PD have diagnosed during the active study and have long periods of normal retirement. After the diagnosis of Parkinson's patients, the duration of leaving of employment vary between 0 and 25 years. It was found that patients' full-time working capacity decreased by up to 80% and they quitted earlier than the general population. The disability associated with PD is thought to be a factor in this situation. Nevertheless, the reasons for early retirement are not fully known and more information is needed on the specific problems of PD in order for patients to continue their career. The aim of our study is to examine the impact of Parkinson's disease on retirement and to contribute to Turkey's data. Patients with PD admitted to the Parkinson's disease outpatient clinic, which is the biggest clinic of Turkey about neurology, are included in the study. It is planned to meet with 75 patients on 31/12/2018 and to reach the end of the data collection phase.

Conditions

Parkinson Disease

Keywords

Parkinson Disease, Early Retirement,

Outcome Measures

Primary Outcomes (1)

• Qualitative interview

  The researcher conducted interviews to find out about things that could not be directly observed. Interviews have been done face to face and used to collect personal experiences about Parkinson Disease and work life.

  The researcher interviewed for about half an hour at once time with each participant.

Eligibility Criteria

• Age: 30 Years - 85 Years
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Participants were chosen from among retired Parkinson's patients who met the inclusion criteria and are applied Istanbul Cerrahpaşa University, has largest movement disorders unit of Turkey, between May and December 2018.

You may qualify if:

• To be between 30-85 aged
• Parkinson Disease diagnosis according to the United Kingdom Brain Bank criteria
• To be treated with antiparkinson

You may not qualify if:

• Dementia
• Severe cognitive impairment
• Not willing to participate in the study

Sponsors & Collaborators

• Istanbul Kültür University: lead
• Marmara University: collaborator
• Istanbul University: collaborator

Study Sites (1)

Istanbul Cerrahpaşa University

Istanbul, Turkey (Türkiye)

Location

MeSH Terms

Conditions

Parkinson Disease

Condition Hierarchy (Ancestors)

Parkinsonian Disorders; Basal Ganglia Diseases; Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Movement Disorders; Synucleinopathies; Neurodegenerative Diseases

Study Officials

• Gamze Ertürk, GRAD ASST

  Istanbul Kültür University

  STUDY CHAIR

• Semra Oğuz, ASST PROF

  Marmara University

  STUDY DIRECTOR

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: RETROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Research assistant

Study Record Dates

• First Submitted: December 17, 2018
• First Posted: December 19, 2018
• Study Start: May 2, 2018
• Primary Completion: December 31, 2018
• Study Completion: March 28, 2019
• Last Updated: September 6, 2019

Record last verified: 2019-09

Locations

TU (1)