NCT03768518

Brief Summary

The primary objective is the in vivo and ex vivo investigation of the expression and distribution of the GLP-1R in the pancreas of CHI patients.

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
40

participants targeted

Target at P25-P50 for all trials

Timeline
Completed

Started Feb 2018

Shorter than P25 for all trials

Geographic Reach
1 country

1 active site

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

February 7, 2018

Completed
5 months until next milestone

First Submitted

Initial submission to the registry

July 11, 2018

Completed
5 months until next milestone

First Posted

Study publicly available on registry

December 7, 2018

Completed
2 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

February 1, 2019

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

February 1, 2019

Completed
Last Updated

December 7, 2018

Status Verified

December 1, 2018

Enrollment Period

12 months

First QC Date

July 11, 2018

Last Update Submit

December 6, 2018

Conditions

Keywords

ExendinGLP-1PET/CT

Outcome Measures

Primary Outcomes (1)

  • Expression and distribution of GLP-1R in pancreas of children with CHI

    Comparison of PET quantification with autoradiography and histology

    1 year

Secondary Outcomes (1)

  • Comparison of the exendin PET/CT and F-DOPA PET/CT

    1 year

Interventions

68Ga-exendin-4 PET/CTDIAGNOSTIC_TEST

68Ga-exendin-4 PET/CT

Eligibility Criteria

AgeUp to 16 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)
Sampling MethodNon-Probability Sample
Study Population

patients (\<16 years) with biochemically proven endogenous congenital hyperinsulinism

You may qualify if:

  • Biochemically and clinically proven endogenous congenital hyperinsulinism:
  • Unresponsive to medical treatment (diazoxide)
  • Indication for 18F-DOPA PET/CT based on mutation analysis
  • Standard imaging (18F-DOPA PET/CT) not older than 8 weeks
  • \<16 years old
  • Informed consent signed by parents or legal guardians of the patient.

You may not qualify if:

  • Genetically proven diffuse CHI (presenting with a homozygous or compound heterozygous ABCC8/KCNJ11 mutation)
  • Calculated creatinine clearance below 40 ml/min
  • Evidence of other malignancy than insulin producing tumors in conventional imaging (suspicious liver, bone and lung lesions based on CT)
  • Age \> 16 years
  • No signed informed consent

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Radboudumc

Nijmegen, 6500HB, Netherlands

RECRUITING

Biospecimen

Retention: SAMPLES WITH DNA

Tumour tissue

MeSH Terms

Conditions

Congenital Hyperinsulinism

Condition Hierarchy (Ancestors)

Pancreatic DiseasesDigestive System DiseasesInfant, Newborn, DiseasesCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesHyperinsulinismGlucose Metabolism DisordersMetabolic DiseasesNutritional and Metabolic DiseasesHypoglycemia

Study Officials

  • Martin Gotthardt, Prof.

    Radboud University Medical Center

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Study Design

Study Type
observational
Observational Model
CASE ONLY
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Professor

Study Record Dates

First Submitted

July 11, 2018

First Posted

December 7, 2018

Study Start

February 7, 2018

Primary Completion

February 1, 2019

Study Completion

February 1, 2019

Last Updated

December 7, 2018

Record last verified: 2018-12

Locations