NCT03454646

Brief Summary

Cholinesterase inhibitors (CI) remain the only drugs with a recognized efficacy in mild to moderate Alzheimer's disease (AD) in spite of enormous research efforts. However, these drugs presented as "symptomatic treatment" of AD are considered as having only a weak effect on the course of AD. The reimbursement of these drugs is regularly challenged due to the lack of evidence for the impact of these drugs on milestones stages of AD evolution (survival without severe dementia, restriction in Basic Activities of Daily Living - BADL) and on major consequences in public health (hospitalization and institutionalization). The great majority of previous randomized controlled trials conducted with CI have had a too short duration and the end points were limited to cognition (ADAS Cog scale), IADL (Instrumental Activities of Daily Living) function and Global Impression of Change. New evidences from the DOMINO trial (1) conducted in UK, independently of the pharmaceutical industry, showed that the true effect of CI might be more to avoid or to delay the cognitive or functional decline in AD than to improve patients; the institutionalisation (2) was also delayed. However, this trial was conducted in patients with moderate to severe AD, and the interest of the drugs at the mild to moderate stage remains questionable. The investigators have shown that a good surrogate marker of survival without severe dementia would be an increase of ADAS Cog scale of more than six points (3). A post hoc reanalysis of the pivotal RCT with two CI showed that in mild to moderate patients, CI was associated with a 15% decrease of patients with a deterioration of ADAS-Cog of more than six points in six months. Thus at the beginning of dementia the real effect of CI might be more of delaying the cognitive and functional decline, than to improve the patients. The main objective of the SOS trial is to demonstrate that the benefit of CI at the early phase of dementia is the same as at the later phase.

Trial Health

63
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,205

participants targeted

Target at P75+ for phase_4 alzheimer-disease

Timeline
16mo left

Started Jun 2024

Geographic Reach
1 country

31 active sites

Status
not yet recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

Study Progress59%
Jun 2024Sep 2027

First Submitted

Initial submission to the registry

February 9, 2018

Completed
25 days until next milestone

First Posted

Study publicly available on registry

March 6, 2018

Completed
6.2 years until next milestone

Study Start

First participant enrolled

June 1, 2024

Completed
2.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

April 27, 2027

Expected
5 months until next milestone

Study Completion

Last participant's last visit for all outcomes

September 15, 2027

Last Updated

October 6, 2023

Status Verified

October 1, 2023

Enrollment Period

2.9 years

First QC Date

February 9, 2018

Last Update Submit

October 5, 2023

Conditions

Outcome Measures

Primary Outcomes (1)

  • The primary outcome is a combination of complete BADL dependency in bathing and dressing and/or institutionalization or death at 2 years after randomization.

    Institutionalization with date of entry will be assessed by specialist at each follow-up time every 6 months. For patients not coming to the memory consultation, caregiver (formal and/or informal) and/or the general practitioner will be systematically contacted to obtain the information. Death and date of death will be assessed by contacting proxy or general practitioner. In case of lack of information the birth City Hall will be contacted to assess the vital status. For dependency in bathing and dressing, although it could be considered as less objective, we choose a level of total dependency, easy to assess with very low risk of misinterpretation.

    at 30 months after patient's inclusion

Secondary Outcomes (48)

  • BADL dependency will be evaluated by the clinician using the BADL scale from Katz [17].

    at inclusion

  • BADL dependency will be evaluated by the clinician using the BADL scale from Katz [17].

    at 6 months

  • BADL dependency will be evaluated by the clinician using the BADL scale from Katz [17].

    at 12 months

  • BADL dependency will be evaluated by the clinician using the BADL scale from Katz [17].

    at 18 months

  • BADL dependency will be evaluated by the clinician using the BADL scale from Katz [17].

    at 24 months

  • +43 more secondary outcomes

Study Arms (2)

Group randomized for continuing treatment

EXPERIMENTAL

Group who continues the cholinesterase inhibitors (CI). The treatment is one of the CI (donepezil, galantamine or rivastigmine) with market authorization and commercialized for more than 15 years in France. The choice of the treatment will be done by the specialist according to his habits; the specialist will monitor the treatment as usual. All randomised patients will then be followed-up for two years with regular assessment of judgment criteria every 6 months.

Drug: cholinesterase inhibitors (CI) (donepezil, galantamine or rivastigmine)

Group randomized for stopping treatment

NO INTERVENTION

Group who stops the CI. No placebo will be given, over 2 years All randomised patients will then be followed-up for two years with regular assessment of judgment criteria every 6 months.

Interventions

The choice of the treatment will be done by the specialist according to his habits; the specialist will monitor the treatment as usual. All the recruited patients will be treated by CI according to the recommendations of the French HAS and the clinician's habits to choose the type of CI and adjust the dosage. After a 6-month period under CI treatment, patients will be classified according to the evolution of the Mini Mental State Examination (MMSE) as "non-responders" or responders. Responders patients will continue their treatment according to the habits of the clinician. Non-responder patients will be included in the RCT, with individual randomization in two groups: one group who stops the CI, one group who continues the CI. All randomized patients will then be followed-up for two years with regular assessment of judgment criteria every 6 months.

Group randomized for continuing treatment

Eligibility Criteria

Age50 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • New case of AD referring to a CMRR or MC.
  • Diagnosis of probable or possible AD, defined according to the NINCDS-ARDRA criteria
  • Patients with indication to CI treatment
  • Patients Naïve to CI treatment
  • Patients aged 50 years or more
  • Menopause or effective contraception (for women)
  • Affiliated person or beneficiary of a social security scheme
  • Patients with AD LTI (Long Term Illeness)
  • Patients agree to participate, with free, informed and written consent signed by the patient and his caregiver
  • Patients diagnosed with Lewy bodies disease, fronto-temporal dementia, or dementia from a cause other than Alzheimer Disease
  • Patients with contraindication to CI treatment
  • Patients under tutorship or curatorship, patients unable to express consent
  • Patients with unstable severe general disease compromising the follow-up
  • Patients without caregiver
  • Patients included in another pharmacological trial
  • +1 more criteria

You may not qualify if:

  • CI responder patients for whom the MMSE score remained stable or became higher after 6 months of treatment
  • Patients with complete dependency for bathing and dressing at the randomization visit
  • Patients residing in an institution at the randomization visit

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (31)

CHU d'Amiens Centre Mémoire Ressources Recherche

Amiens, 80054, France

Location

CHU d'Angers Centre Mémoire Ressources Recherche

Angers, 49933, France

Location

CHU de Bastia Centre Mémoire Ressources Recherche

Bastia, 20604, France

Location

CHU de Besançon Centre Mémoire Ressources Recherche

Besançon, 25030, France

Location

CHU de Bordeaux - Service de Neurologie - Centre Mémoire Ressources Recherche -

Bordeaux, 33076, France

Location

CHRU Cavale Blanche Service de Gériatrie

Brest, 29200, France

Location

Service de Neuropsychologie Hôpital Neurologique Pierre Wertheimer

Bron, 69677, France

Location

CHU Côte de Nacre Service de neurologie et CMRR

Caen, 14033, France

Location

CHU de Clermont Ferrand Centre Mémoire Ressources Recherche

Clermont-Ferrand, 63000, France

Location

Hôpital Pasteur Service de Neurologie

Colmar, 68000, France

Location

CHU de Dijon- CMRR

Dijon, 21679, France

Location

Chu de Grenoble CMRR, Neurologie

Grenoble, 38043, France

Location

Hôpital Roger Salengro CMRR

Lille, 59037, France

Location

CHU Limoges Service de neurologie et CMRR

Limoges, 87000, France

Location

AP-HM

Marseille, France

Location

CHU Montpellier Hôpital Gui de Chauliac CMRR

Montpellier, 34295, France

Location

CHU de Nantes Clinique Neurologique Hôpital GR Laennec

Nantes, 44093, France

Location

Institut Claude Pompidou Centre Mémoire de Ressources et de Recherche

Nice, 06100, France

Location

APHP Hôpital Broca

Paris, 75013, France

Location

Hôpital Universitaire de la Pitié Salpêtrière Pavillon François Lhermitte

Paris, 75013, France

Location

APHP Groupe Hospitalier Saint Louis Lariboisière Fernand Widal CMRR

Paris, 75475, France

Location

CHU La Milétrie Pôle de Gériatrie

Poitiers, 86021, France

Location

CHU Reims Hôpital Maison Blanche Court Séjour Gériatrique

Reims, 51092, France

Location

CHU de Rennes - Hôpital Pontchaillou / Service de Neurologie

Rennes, 35033, France

Location

CHU de Rouen Hôpital Charles Nicolle Service Neurologie

Rouen, 76031, France

Location

Chu de Saint-Etienne, CMRR

Saint-Etienne, 42055, France

Location

Chu de Strasbourg Hôpital Ka Robertsau Pôle de Gériatrie - CMRR

Strasbourg, 67200, France

Location

Centre de Recherche Clinique du Gérontopôle Cité de la Santé

Toulouse, France

Location

CHRU de Bretonneau Unité de gérontopsychiatrie

Tours, 37000, France

Location

CHU Nancy Service de Gériatrie-CMRR

Vandœuvre-lès-Nancy, 54511, France

Location

Hospice Civil de Lyon Hôpital des Charpennes

Villeurbanne, 69100, France

Location

MeSH Terms

Conditions

Alzheimer Disease

Interventions

Cholinesterase InhibitorsDonepezilGalantamineRivastigmine

Condition Hierarchy (Ancestors)

DementiaBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesTauopathiesNeurodegenerative DiseasesNeurocognitive DisordersMental Disorders

Intervention Hierarchy (Ancestors)

Enzyme InhibitorsMolecular Mechanisms of Pharmacological ActionPharmacologic ActionsChemical Actions and UsesCholinergic AgentsNeurotransmitter AgentsPhysiological Effects of DrugsIndansIndenesPolycyclic Aromatic HydrocarbonsHydrocarbons, AromaticHydrocarbons, CyclicHydrocarbonsOrganic ChemicalsPiperidinesHeterocyclic Compounds, 1-RingHeterocyclic CompoundsPolycyclic CompoundsAmaryllidaceae AlkaloidsAlkaloidsBenzazepinesHeterocyclic Compounds, 2-RingHeterocyclic Compounds, Fused-RingPhenylcarbamatesCarbamatesAcids, AcyclicCarboxylic Acids

Central Study Contacts

Jean-François DARTIGUES, M.D., Ph.D

CONTACT

François TISON, M.D., Ph.D

CONTACT

Study Design

Study Type
interventional
Phase
phase 4
Allocation
RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

February 9, 2018

First Posted

March 6, 2018

Study Start

June 1, 2024

Primary Completion (Estimated)

April 27, 2027

Study Completion (Estimated)

September 15, 2027

Last Updated

October 6, 2023

Record last verified: 2023-10

Data Sharing

IPD Sharing
Will not share

Locations