NCT03416114|Recruiting
RegistRare: a Retro-prospective Registry of Rare Primary Headaches in Italian Tertiary Headache Centres
RegistRare
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RegistRare
Sponsor study identifier
observational
3,000
1 country
1
Study Start
September 1, 2017
Actual (reported)Primary Completion
August 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Study Completion
August 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Retro-prospective survey on specific and overall prevalence and incidence of rare primary headaches (Part One, Chapter 3 and Chapter 4, ICHD-3 beta) in patients referred to Italian Tertiary Headache Centres in a 3-year (May 1, 2014-April 30, 2017 - retrospective data) and annually (from May 1, 2017 - prospective data).
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
August 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
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Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
September 1, 2017
Actual (reported)January 23, 2018
Actual (reported)January 30, 2018
Actual (reported)August 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
August 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Incidence and prevalence in Tertiary headache Centres
10 years
Retrospective data collection: Patients referred to Italian Tertiary Headache Centres in a 3-year (May 1, 2014 to April 30, 2017) period Prospective data collection: Patients referred to Italian Tertiary Headache Centres after April 30, 2017
Careggi University Hospital
Florence, 50139, Italy
Lupi C, Evangelista L, Favoni V, Granato A, Negro A, Pellesi L, Ornello R, Russo A, Cevoli S, Guerzoni S, Benemei S. Rare primary headaches in Italian tertiary Headache Centres: Three year nationwide retrospective data from the RegistRare Network. Cephalalgia. 2018 Jul;38(8):1429-1441. doi: 10.1177/0333102418768824. Epub 2018 May 12.
Silvia Benemei, MD
Careggi University Hospital
First Submitted
January 23, 2018
First Posted
January 30, 2018
Study Start
September 1, 2017
Actual (reported)Primary Completion
August 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Capsaicin in Treatment of Rhinogenic Headache
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Study Completion
August 2027
EstimatedPlanned date reported by the registry; this milestone is not confirmed as achieved.
Last Updated
January 30, 2018
Record last verified: 2018-01
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