Canadian CP Registry - Registre Canadien de la Paralysie Cérébrale
The Canadian Cerebral Palsy Registry - Le Registre Canadien de la Paralysie Cérébrale
1 other identifier
observational
2,771
1 country
15
Brief Summary
The Canadian Cerebral Palsy (CP) Registry is a confidential, nation-wide collection of medical and social information about children with cerebral palsy. The Registry was first implemented in 2003 in 6 administrative regions of Quebec and was later extended to paediatric centres in Newfoundland, Nova Scotia, Ontario, Alberta, and British Columbia. Over 1850 children living with Cerebral Palsy have been registered so far. The Registry is the first national registry for cerebral palsy in North America.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started Apr 2004
Longer than P75 for all trials
15 active sites
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
Study Start
First participant enrolled
April 14, 2004
CompletedFirst Submitted
Initial submission to the registry
November 15, 2017
CompletedFirst Posted
Study publicly available on registry
November 27, 2017
CompletedPrimary Completion
Last participant's last visit for primary outcome
April 1, 2020
CompletedStudy Completion
Last participant's last visit for all outcomes
April 1, 2020
CompletedFebruary 25, 2021
February 1, 2021
16 years
November 15, 2017
February 23, 2021
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Characterize the CP profile across Canada
CP subtype, severity, and associated conditions
An average of every two years, up to study completion or ten years, whichever comes first.
Eligibility Criteria
Children living with a diagnosis of Cerebral Palsy in Canada.
You may qualify if:
- Under 18 (age cut-off varies by region)
- Diagnosed with Cerebral Palsy
- Living in Canada
You may not qualify if:
- Uncertain CP diagnosis
Contact the study team to confirm eligibility.
Sponsors & Collaborators
- McGill University Health Centre/Research Institute of the McGill University Health Centrelead
- Kids Brain Health Networkcollaborator
- Children's Treatment Networkcollaborator
- Montreal Children's Hospital of the MUHCcollaborator
- Alberta Children's Hospitalcollaborator
- Women and Children's Health Research Institute, Canadacollaborator
- Provincial Health Services Authority British Columbiacollaborator
- IWK Health Centrecollaborator
- The Hospital for Sick Childrencollaborator
- Holland Bloorview Kids Rehabilitation Hospitalcollaborator
Study Sites (15)
Alberta Children's Hospital
Calgary, Alberta, Canada
Glenrose Rehabilitation Hospital
Edmonton, Alberta, Canada
Sunny Hill Health Centre for Children
Vancouver, British Columbia, Canada
Janeway Health Center
St. John's, Newfoundland and Labrador, Canada
IWK Health Centre
Halifax, Nova Scotia, Canada
Children's Treatment Network
Barrie, Ontario, Canada
Holland-Bloorview Kids Rehabilitation Hospital
Toronto, Ontario, Canada
Centre régional de réadaptation La RessourSe
Gatineau, Quebec, Canada
Centre de réadaptation Le Bouclier
Joliette, Quebec, Canada
Centre de Réadaptation Marie-Enfant
Montreal, Quebec, Canada
MAB-Mackay Rehabilitation Centre
Montreal, Quebec, Canada
Montreal Children's Hospital
Montreal, Quebec, Canada
Shriners Hospital Montreal
Montreal, Quebec, Canada
Institut de réadaptation physique du Québec
Québec, Quebec, Canada
Centre de réadaptation Estrie
Sherbrooke, Quebec, Canada
Related Publications (6)
Oskoui M, Gazzellone MJ, Thiruvahindrapuram B, Zarrei M, Andersen J, Wei J, Wang Z, Wintle RF, Marshall CR, Cohn RD, Weksberg R, Stavropoulos DJ, Fehlings D, Shevell MI, Scherer SW. Clinically relevant copy number variations detected in cerebral palsy. Nat Commun. 2015 Aug 3;6:7949. doi: 10.1038/ncomms8949.
PMID: 26236009RESULTOskoui M, Messerlian C, Blair A, Gamache P, Shevell M. Variation in cerebral palsy profile by socio-economic status. Dev Med Child Neurol. 2016 Feb;58(2):160-6. doi: 10.1111/dmcn.12808. Epub 2015 May 22.
PMID: 26010819RESULTShevell M, Dagenais L, Oskoui M. The epidemiology of cerebral palsy: new perspectives from a Canadian registry. Semin Pediatr Neurol. 2013 Jun;20(2):60-4. doi: 10.1016/j.spen.2013.06.008. No abstract available.
PMID: 23948680RESULTOskoui M, Majnemer A, Dagenais L, Shevell MI. The relationship between gross motor function and manual ability in cerebral palsy. J Child Neurol. 2013 Dec;28(12):1646-52. doi: 10.1177/0883073812463608. Epub 2012 Oct 30.
PMID: 23112248RESULTGarfinkle J, Wintermark P, Shevell MI, Oskoui M. Children born at 32 to 35 weeks with birth asphyxia and later cerebral palsy are different from those born after 35 weeks. J Perinatol. 2017 Aug;37(8):963-968. doi: 10.1038/jp.2017.23. Epub 2017 Mar 16.
PMID: 28300820RESULTOskoui M, Joseph L, Dagenais L, Shevell M. Prevalence of cerebral palsy in Quebec: alternative approaches. Neuroepidemiology. 2013;40(4):264-8. doi: 10.1159/000345120. Epub 2013 Jan 24.
PMID: 23363886RESULT
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Michael I Shevell, MDCM
McGill University Health Centre/Research Institute of the McGill University Health Centre
- PRINCIPAL INVESTIGATOR
Maryam Oskoui, MD, MSc
McGill University Health Centre/Research Institute of the McGill University Health Centre
Study Design
- Study Type
- observational
- Observational Model
- OTHER
- Time Perspective
- PROSPECTIVE
- Target Duration
- 5 Years
- Sponsor Type
- OTHER
- Responsible Party
- PRINCIPAL INVESTIGATOR
- PI Title
- Associate Professor, Departments of Pediatrics and Neurology & Neurosurgery
Study Record Dates
First Submitted
November 15, 2017
First Posted
November 27, 2017
Study Start
April 14, 2004
Primary Completion
April 1, 2020
Study Completion
April 1, 2020
Last Updated
February 25, 2021
Record last verified: 2021-02