NCT03326973

Brief Summary

To identify and describe long-term quality of life (QOL) issues in patients with metastatic melanoma treated with checkpoint inhibitors who achieved cancer control for a minimum of 12 months and remain on maintenance checkpoint inhibitor therapy.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
107

participants targeted

Target at P50-P75 for all trials

Timeline
Completed

Started Oct 2017

Typical duration for all trials

Geographic Reach
1 country

6 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

October 25, 2017

Completed
2 days until next milestone

First Submitted

Initial submission to the registry

October 27, 2017

Completed
4 days until next milestone

First Posted

Study publicly available on registry

October 31, 2017

Completed
3.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 14, 2020

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 14, 2020

Completed
Last Updated

December 17, 2020

Status Verified

December 1, 2020

Enrollment Period

3.1 years

First QC Date

October 27, 2017

Last Update Submit

December 15, 2020

Conditions

Keywords

Quality of Life (QoL)17-518

Outcome Measures

Primary Outcomes (1)

  • total score of Global QOL overall health index

    On the EQ-5D-3L, respondents are asked to indicate their health state by marking the box associated with the most appropriate statement in each of the 5 dimensions, resulting in a one digit number expressing the level (1-3) selected for that dimension from no problems to extreme problems.

    1 year

Study Arms (1)

online or telephone survey

This is a cross-sectional survey. Our main method of communication with patients will be email. Participants will complete a single online or telephone survey at a minimum of 12 months post initial treatment of checkpoint inhibitors and remain on maintenance therapy.

Behavioral: EuroQoL EQ-5D-3LBehavioral: EORTC QLQ-C30Other: PRO-CTCAEBehavioral: Fatigue severity score questionnaireBehavioral: The COSTBehavioral: Physician information

Interventions

Overall QOL

online or telephone survey
EORTC QLQ-C30BEHAVIORAL

General symptoms; physical, role, emotional, cognitive, and social functioning scales; fatigue, nausea/vomiting , and pain scales

online or telephone survey

Additional potential immune-specific symptoms

online or telephone survey

Fatigue severity

online or telephone survey
The COSTBEHAVIORAL

Financial toxicity; satisfaction with ability to work

online or telephone survey

Details on outside health providers

online or telephone survey

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

The melanoma service has agreed to provide this research team with access to a list of patients who are potentially eligible for this survey.

You may qualify if:

  • Be able to speak and read English
  • Be able to provide informed consent
  • Have been diagnosed with metastatic melanoma at age 18 years or older
  • Have been treated with either single agent or combination checkpoint inhibitor
  • Be at least 12 months since first dose of above named agents
  • Received no other systemic therapy after initiation of immunotherapy (interval radiation or surgery will be permitted based on review with primary treating medical oncologist)

You may not qualify if:

  • Patients with cognitive, visual, or motor impairment such that they cannot complete the survey as assessed by the research or clinical team
  • Patients who developed a subsequent cancer after starting on checkpoint inhibitor(s), exclusive of non-melanoma superficial skin cancers
  • Patients with clinical documentation of progressive disease on the most recent assessment in the electronic medical record
  • Patients with symptomatic progression but continue on immunotherapy
  • Note: For any patients where the disease status is not clear, we will confirm that the disease is either stable or responsive with their primary treating medical oncologist

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (6)

Memoral Sloan Kettering Basking Ridge

Basking Ridge, New Jersey, 07920, United States

Location

Memoral Sloan Kettering Monmouth

Middletown, New Jersey, 07748, United States

Location

Memorial Sloan Kettering Commack

Commack, New York, 11725, United States

Location

Memorial Sloan Kettering Westchester

Harrison, New York, 10604, United States

Location

Memorial Sloan Kettering Cancer Center

New York, New York, 10065, United States

Location

Memorial Sloan Kettering Rockville Centre

Rockville Centre, New York, 11570, United States

Location

Related Links

MeSH Terms

Conditions

Melanoma

Condition Hierarchy (Ancestors)

Neuroendocrine TumorsNeuroectodermal TumorsNeoplasms, Germ Cell and EmbryonalNeoplasms by Histologic TypeNeoplasmsNeoplasms, Nerve TissueNevi and MelanomasSkin NeoplasmsNeoplasms by SiteSkin DiseasesSkin and Connective Tissue Diseases

Study Officials

  • Deborah Korenstein, MD

    Memorial Sloan Kettering Cancer Center

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 27, 2017

First Posted

October 31, 2017

Study Start

October 25, 2017

Primary Completion

December 14, 2020

Study Completion

December 14, 2020

Last Updated

December 17, 2020

Record last verified: 2020-12

Locations