NCT03287700

Brief Summary

In the UK, cochlear implantation is the standard treatment for adults with 'severe-to-profound' deafness. This level of deafness means that without a cochlear implant they have difficulty understanding what people are saying even when they wear hearing aids. The NHS provides a cochlear implant for one ear even though these adults are deaf in both ears. Two cochlear implants could help them understand speech in noisy environments, know where to look to see who is talking, and avoid hazards outdoors. The decision about who can receive cochlear implants and how many they can receive is based on guidance from the National Institute for Health and Care Excellence (NICE). NICE agreed that providing two cochlear implants can provide additional benefits over providing just one implant. However, they decided that there is not enough evidence to show that these additional benefits are worth the additional cost of providing the second implant. NICE recommended that a clinical trial should be conducted to gather this evidence. This study will consult with patients to explore whether the trial would be acceptable to future implant recipients. The study will also work with clinicians to design a trial comparing bilateral and unilateral implantation in adults. These clinicians will also be surveyed to assess the acceptability of the trial. A group of clinicians that span the range of professions involved in delivering the care pathway will be invited to attend a trial design workshop to establish a consensus on acceptable trial design elements from a clinical perspective. Representatives from cochlear implant manufacturers will be consulted to determine possible strategies for securing industry support for a future trial. Those who run cochlear implantation services will be engaged in a working group to gather information on the current care pathway to inform future assessments of whether bilateral implantation could be cost-effective.

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
86

participants targeted

Target at P50-P75 for all trials

Timeline
Completed

Started Jun 2017

Typical duration for all trials

Geographic Reach
1 country

1 active site

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

June 14, 2017

Completed
3 months until next milestone

First Submitted

Initial submission to the registry

September 12, 2017

Completed
7 days until next milestone

First Posted

Study publicly available on registry

September 19, 2017

Completed
1.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

August 2, 2019

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

August 2, 2019

Completed
Last Updated

May 22, 2019

Status Verified

March 1, 2019

Enrollment Period

2.1 years

First QC Date

September 12, 2017

Last Update Submit

May 21, 2019

Conditions

Outcome Measures

Primary Outcomes (1)

  • Acceptability of trial among patients

    Proportion of surveyed patients who consider the proposed trial comparing bilateral cochlear implantation to unilateral cochlear implantation to be acceptable

    Day 1 (Point at which the patient completes the online patient survey)

Secondary Outcomes (3)

  • Acceptability of trial among clinicians

    Day 1 (Point at which the clinician completes the online patient survey)

  • Issues related to acceptability from patient perspective

    Day 1 (On the day(s) the patient focus groups are conducted)

  • Issues related to acceptability from clinician perspective

    Day 1 (On the day the trial design workshop is conducted)

Study Arms (6)

Focus group participants

Adults who have received a cochlear implant on the National Health Service (NHS) at an auditory implant service in the United Kingdom (UK) OR Adults who have been referred to a UK auditory implant programme for assessment for cochlear implantation but who have not yet been implanted

Other: No intervention

Online patient survey participants

Adults who have received a cochlear implant on the National Health Service (NHS) at an auditory implant service in the United Kingdom (UK)

Other: No intervention

Online clinician survey participants

Clinicians who deliver the current care pathway for cochlear implantation at auditory implant programmes providing NHS services in the UK

Other: No intervention

Trial design workshop participants

Clinicians who deliver the current care pathway for cochlear implantation at auditory implant programmes providing NHS services in the UK

Other: No intervention

Manufacturer's forum participants

Representatives of manufacturers of cochlear implants who provide devices on the NHS

Other: No intervention

Care pathway working group participants

Clinicians who deliver the current care pathway for cochlear implantation at auditory implant programmes providing NHS services in the UK

Other: No intervention

Interventions

No intervention will be administered to any group in this observational study.

Care pathway working group participantsFocus group participantsManufacturer's forum participantsOnline clinician survey participantsOnline patient survey participantsTrial design workshop participants

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Adults with bilateral severe to profound hearing loss that is eligible for cochlear implantation in the United Kingdom following guidance from the National institute for Health and Care Excellence (NICE), who have either already been implanted or who are being assessed for eligibility to be implanted. Clinicians who deliver cochlear implantation services on the National Health Service in the UK. Representatives of manufacturers of cochlear implant systems who supply implants to the National Health Service in the UK.

You may qualify if:

  • All participants will be 18 years or older at the time consent is obtained.
  • Patients who participate in the focus groups and/or online survey must have received a cochlear implant on the NHS in the UK or must be currently being assessed for eligibility to receive a unilateral cochlear implantation by an NHS service provider.
  • Clinicians who participate in the trial design workshop and/or the online survey must be employed by a provider of NHS cochlear implantation services in the UK and be a clinically-trained professional who delivers one or more aspects of the cochlear implantation care pathway.
  • Representatives from manufacturers who attend the industry forum must be employed by a manufacturer of cochlear implants and hold a role that includes responsibility for developing, co-ordinating, or managing research activity sponsored and/or funded by the manufacturer.
  • Clinicians who participate in the care pathway working group must be employed by a provider of NHS cochlear implantation services in the UK and have a head of service or co-ordinator role in their cochlear implant service or have been delegated responsibility to contribute on behalf of a head of service / co-ordinator.

You may not qualify if:

  • None.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Medicines for Children Clinical Trials Unit, Clinical Trials Research Centre, University of Liverpool

Liverpool, L12 2AP, United Kingdom

RECRUITING

MeSH Terms

Conditions

Hearing Loss, BilateralHearing Loss, Sensorineural

Condition Hierarchy (Ancestors)

Hearing LossHearing DisordersEar DiseasesOtorhinolaryngologic DiseasesSensation DisordersNeurologic ManifestationsNervous System DiseasesSigns and SymptomsPathological Conditions, Signs and Symptoms

Study Officials

  • Padraig T Kitterick, PhD

    University of Nottingham

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Study Design

Study Type
observational
Observational Model
OTHER
Time Perspective
CROSS SECTIONAL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

September 12, 2017

First Posted

September 19, 2017

Study Start

June 14, 2017

Primary Completion

August 2, 2019

Study Completion

August 2, 2019

Last Updated

May 22, 2019

Record last verified: 2019-03

Locations