Palliative Care in General Practice: Cancer Patient/Carer Experience
1 other identifier
observational
30
1 country
1
Brief Summary
Study Title: Palliative care in general practice: cancer patients' and carers' experience of their GP's role Study Design: Qualitative interview study Study Participants: Adult patients with cancer and palliative care needs, accompanied by their carers Planned Sample Size: Up to 30 interviews with patients +/- their carers Planned Study Period: October 2017 - December 2018 Research Question: What experience do adults with cancer, and carers, have of their GP's involvement in palliative care provision?
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at below P25 for all trials
Started Oct 2017
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
First Submitted
Initial submission to the registry
July 27, 2017
CompletedFirst Posted
Study publicly available on registry
August 8, 2017
CompletedStudy Start
First participant enrolled
October 1, 2017
CompletedPrimary Completion
Last participant's last visit for primary outcome
June 1, 2018
CompletedStudy Completion
Last participant's last visit for all outcomes
December 1, 2018
CompletedAugust 8, 2017
July 1, 2017
8 months
July 27, 2017
August 3, 2017
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
To explore the experience/perspectives of adults with cancer, and carers, of the role of their GP in providing palliative care, using a qualitative semi-structured interview schedule
To explore patients' and carers' experience of: 1. The role of the GP in providing palliative care to adult patients with cancer 2. The facilitators and barriers to the GP's capacity to fulfill this perceived role
October 2017 - December 2018
Study Arms (1)
Participants
Cancer patients with palliative care needs (+/- their carers)
Interventions
Qualitative data will be obtained through semi-structured interviews with adults with cancer and palliative care needs. Patients will be invited to bring their carer to the interview. EG will conduct and transcribe up to 30 audio-recorded semi-structured interviews, which will be carried out at the patient's preferred location (either at home, over the phone, or in a pre-booked room at St Joseph's Hospice). EG will ask questions relating to sociodemographic data (recording this on the Personal Information Sheet) prior to starting the interview.
Eligibility Criteria
Participants will be invited and recruited to the study from St Joseph's Hospice in Hackney (single centre study). Patients and their carers from all three geographical areas, served by St Joseph's, will be invited to participate: City \& Hackney, Tower Hamlets and Newham. The Principal Investigator Jane Naismith (JN) working at St Joseph's Hospice will assist with and coordinate the recruitment process. This setting was chosen as it permits access to a varied group of patients and carers. A purposive sampling will ensure recruitment of patients across a breadth of socio-demographics, cancer diagnoses and experience of different GP practices. A target sample size of up to 30 interviews has been chosen, taking into account available time and resources.
You may qualify if:
- Patients either attending the St Joseph's Hospice day centre or being visited at home by their community specialist palliative care nursing/medical team and their carers
- Adult patients with a cancer diagnosis and their carers
- Able to understand and communicate in written and spoken English
You may not qualify if:
- Paediatric patients
- Patients without a cancer diagnosis
- Unable to understand written or spoken English
- Without mental and physical capacity to consent
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (1)
King's College London
London, SE1 1UL, United Kingdom
MeSH Terms
Conditions
Study Officials
- PRINCIPAL INVESTIGATOR
Jane Naismith
St Joseph's Hospice
- STUDY DIRECTOR
Patrick White
King's College London
- STUDY DIRECTOR
Heidi Lempp
King's College London
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- OTHER
- Time Perspective
- OTHER
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
July 27, 2017
First Posted
August 8, 2017
Study Start
October 1, 2017
Primary Completion
June 1, 2018
Study Completion
December 1, 2018
Last Updated
August 8, 2017
Record last verified: 2017-07
Data Sharing
- IPD Sharing
- Will not share