NCT03208660

Brief Summary

This study is conducted to assess the retention rate of Fycompa when given in routine clinical care.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
2,000

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Apr 2017

Geographic Reach
1 country

44 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

April 7, 2017

Completed
3 months until next milestone

First Submitted

Initial submission to the registry

July 3, 2017

Completed
2 days until next milestone

First Posted

Study publicly available on registry

July 5, 2017

Completed
1.7 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

March 15, 2019

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

March 15, 2019

Completed
Last Updated

April 11, 2019

Status Verified

March 1, 2019

Enrollment Period

1.9 years

First QC Date

July 3, 2017

Last Update Submit

April 10, 2019

Conditions

Keywords

seizureFycompa

Outcome Measures

Primary Outcomes (1)

  • Percentage of participants remaining on Fycompa treatment at specified time points after initiation of treatment (Retention rate)

    Retention rate is the ratio of the number of participants remaining on Fycompa treatment to the number of participants who could have been exposed for that length of time.

    3, 6, 12, 18, and 24 months

Secondary Outcomes (13)

  • Number of participants with a 50% response rate

    up to 24 months

  • Number of participants with a 75% response rate

    up to 24 months

  • Number of participants with a 100% response rate

    up to 24 months

  • Categorized percent reduction in seizure frequency from baseline

    Baseline, up to 24 months

  • Median percent change in seizure frequency from baseline

    Baseline, up to 24 months

  • +8 more secondary outcomes

Study Arms (1)

Fycompa

Participants diagnosed with epilepsy and treated with Fycompa

Drug: Fycompa

Interventions

Oral suspension

Also known as: Perampanel
Fycompa

Eligibility Criteria

Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Data will be obtained by reviewing the medical records of the participants with a diagnosis of epilepsy and treated with Fycompa on clinician's recommendation at up to approximately 40 epilepsy centers.

You may qualify if:

  • Participants must have met all of the following criteria to be included in this study:
  • Diagnosis of epilepsy
  • Initiated treatment with Fycompa at any time after 01 Jan 2014
  • Provided written informed consent by the participant or the participant's legally authorized representative signed for the use of medical records (if required by an Institutional Review Board \[IRB\] or Independent Ethics Committee \[IEC\], or by regulatory authorities).

You may not qualify if:

  • Not applicable

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (44)

Arizona Age Reversal & Neurology Clinic

Phoenix, Arizona, 85006, United States

Location

Bronislava Shafran, MD, PC

Phoenix, Arizona, 85006, United States

Location

Banner - University Medical Center Phoenix

Phoenix, Arizona, 85013, United States

Location

Arizona Neurological Institute

Sun City, Arizona, 85351, United States

Location

The University of Arizona Department of Neurology

Tucson, Arizona, 85724, United States

Location

Valley Children's Hospital

Madera, California, 93636, United States

Location

UC Davis Medical Center

Sacramento, California, 95814, United States

Location

Sutter Health

Sacramento, California, 95816, United States

Location

Colorado Springs Neurological Associates

Colorado Springs, Colorado, 80907, United States

Location

Boca Raton Regional Hospital

Boca Raton, Florida, 33486, United States

Location

Capernaum Medical Center

Lakeland, Florida, 33818, United States

Location

Nicklaus Children's Hospital

Miami, Florida, 33155, United States

Location

Nemours Children's Hospital

Orlando, Florida, 32801, United States

Location

Pediatric Neurology PA

Orlando, Florida, 32819, United States

Location

Doctors hospital of Sarasota

Sarasota, Florida, 34233, United States

Location

Intercoastal Medical Group

Sarasota, Florida, 34239, United States

Location

University of South Florida

Tampa, Florida, 33606, United States

Location

Meridian Clinical Research

Savannah, Georgia, 31406, United States

Location

Consultants in Epilepsy & Neurology PLLC

Boise, Idaho, 83702, United States

Location

Carle Foundation Hospital

Urbana, Illinois, 61801, United States

Location

Fort Wayne Neurological Center

Fort Wayne, Indiana, 46804, United States

Location

Mid-Atlantic Epilepsy and Sleep Center

Bethesda, Maryland, 20817, United States

Location

Tufts Medical Center

Boston, Massachusetts, 02111, United States

Location

Wayne State University

Detroit, Michigan, 48201, United States

Location

Henry Ford Health System

Detroit, Michigan, 48202, United States

Location

Spectrum Health System

Detroit, Michigan, 48202, United States

Location

Spectrum Health Medical Group

Grand Rapids, Michigan, 49503, United States

Location

Minnesota Epilepsy Group

Saint Paul, Minnesota, 55102, United States

Location

Northeast Regional Epilepsy Group

Hackensack, New Jersey, 07601, United States

Location

Icahn School of Medicine at Mount Sinai

Hartsdale, New York, 10530, United States

Location

Albert Einstein College of Medicine

New York, New York, 10003, United States

Location

Columbia University Medical Center

New York, New York, 10032, United States

Location

Northwell Health

New York, New York, 10075, United States

Location

Duke University Medical Center

Durham, North Carolina, 27710, United States

Location

Oregon Health and Science University

Portland, Oregon, 97239, United States

Location

Albert Einstein Medical Center

Philadelphia, Pennsylvania, 19141, United States

Location

Pennsylvania

Pittsburgh, Pennsylvania, 15212, United States

Location

Le Bonheur Children's Hospital - PIN

Memphis, Tennessee, 38105, United States

Location

Austin Epilepsy Center

Austin, Texas, 78758, United States

Location

University of Texas Health Science Center at Houston

Houston, Texas, 77030, United States

Location

Auburn Neurological Institute

Auburn, Washington, 98001, United States

Location

Northwest Neurology & Electrodiagnostic Center

Auburn, Washington, 98002, United States

Location

Seattle Children's Hospital - PIN

Seattle, Washington, 98105, United States

Location

MultiCare Institute for Research and Innovation

Tacoma, Washington, 98405-4048, United States

Location

Related Publications (4)

  • Segal E, Wheless J, Moretz K, Penovich P, Patten A, Malhotra M. Perampanel in real-world clinical care of adolescent and adult patients with epilepsy: Results from the retrospective Phase IV PROVE Study. Seizure. 2022 May;98:87-94. doi: 10.1016/j.seizure.2022.02.011. Epub 2022 Feb 26.

  • Segal E, Moretz K, Wheless J, Penovich P, Lancman M, Patten A, Malhotra M. PROVE-Phase IV Study of Perampanel in Real-World Clinical Care of Patients with Epilepsy: Interim Analysis in Pediatric Patients. J Child Neurol. 2022 Mar;37(4):256-267. doi: 10.1177/08830738211047665. Epub 2022 Jan 7.

  • Wechsler RT, Wheless J, Zafar M, Huesmann GR, Lancman M, Segal E, Chez M, Aboumatar S, Patten A, Salah A, Malhotra M. PROVE: Retrospective, non-interventional, Phase IV study of perampanel in real-world clinical care of patients with epilepsy. Epilepsia Open. 2022 Jun;7(2):293-305. doi: 10.1002/epi4.12575. Epub 2022 Mar 20.

  • Wheless J, Wechsler RT, Lancman M, Aboumatar S, Patten A, Malhotra M. Perampanel in real-world clinical care of patients with epilepsy: Interim analysis of a phase IV study. Epilepsia Open. 2020 Dec 19;6(1):79-89. doi: 10.1002/epi4.12445. eCollection 2021 Mar.

MeSH Terms

Conditions

EpilepsySeizures

Interventions

perampanel

Condition Hierarchy (Ancestors)

Brain DiseasesCentral Nervous System DiseasesNervous System DiseasesNeurologic ManifestationsSigns and SymptomsPathological Conditions, Signs and Symptoms

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
RETROSPECTIVE
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

July 3, 2017

First Posted

July 5, 2017

Study Start

April 7, 2017

Primary Completion

March 15, 2019

Study Completion

March 15, 2019

Last Updated

April 11, 2019

Record last verified: 2019-03

Locations