NCT03053297

Brief Summary

This is an observational cohort study of patients with locally advanced or metastatic NSCLC (non-small cell lung cancer). Patients will be recruited from participating sites in Europe, Asia, and Canada. The study will include 2 patient cohorts.

Trial Health

63
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
89

participants targeted

Target at P50-P75 for all trials

Timeline
Completed

Started Mar 2017

Shorter than P25 for all trials

Geographic Reach
6 countries

110 active sites

Status
terminated

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

February 7, 2017

Completed
8 days until next milestone

First Posted

Study publicly available on registry

February 15, 2017

Completed
14 days until next milestone

Study Start

First participant enrolled

March 1, 2017

Completed
8 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

November 8, 2017

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

November 8, 2017

Completed
Last Updated

February 8, 2018

Status Verified

February 1, 2018

Enrollment Period

8 months

First QC Date

February 7, 2017

Last Update Submit

February 6, 2018

Conditions

Keywords

EGFREGFR mutationEGFRmEGFR-TKIHealth care resource utilizationHealth-Related Quality of LifeLocally advanced or metastatic lung cancerNSCLCNon-Small Cell Lung CancerObservational studyOsimertinibPersonalized medicinePROPatient Reported OutcomeResistanceT790MCarcinoma, Non-Small-Cell LungCarcinoma, BronchogenicBronchial NeoplasmsLung NeoplasmsRespiratory Tract NeoplasmsThoracic neoplasms, Neoplasms by siteLung diseasesRespiratory Tract diseasesCancer ChemotherapyCombination ChemotherapyImmunotherapyRadiation

Outcome Measures

Primary Outcomes (2)

  • Parameters in the target population associate with molecular testing patters

    * Molecular testing rate defined as the number of patients identified as having received molecular testing divided by the number of patients in the cohorts * Changes in testing rates over time (details will be included in the SAP) * Molecular testing details including, but not limited to sample type, method of biopsy, testing turnaround time, test type, reason for testing, testing laboratory type, reason for not performing a test * Molecular testing results including mutation status and type, test outcome, histologic/phenotypic transformation

    Patients will be followed from enrolment in the study until death, loss to follow-up, withdrawal of consent or study end date. The minimum follow-up will be 12 months and the maximum allowed follow-up will be 36 months

  • Parameters in the target population associate with treatment patterns and associated clinical outcomes

    * Overall survival measured from: * the date of initial diagnosis to date of death from any cause to the index date to date of death from any cause (for primary cohort only) * the date of first-line treatment until death * the date of second-line treatment until death * Overall disease progression: o from date of treatment initiation until physician-reported progression, initiation of a new cancer-directed line of therapy (proxy for progression), or death * For each line of chemotherapy/targeted therapy received: * Therapy regimen * Therapy duration measured as time from therapy start date to time of therapy end date * Number of cycles received * Reason for cessation of therapy * Time to initiation of new therapy defined as the time from start date of current therapy to start date of subsequent therapy * For each surgery or radiotherapy received: * Type * Site * Date * Any palliative/supportive care received

    Patients will be followed from enrolment in the study until death, loss to follow-up, withdrawal of consent or study end date. The minimum follow-up will be 12 months and the maximum allowed follow-up will be 36 months

Secondary Outcomes (4)

  • Estimation of parameters in the target population associate with cancer-related health care utilization patters including inpatient, emergency room, outpatient visits, lenght of inpatient stay

    Patients will be followed from enrolment in the study until death, loss to follow-up, withdrawal of consent or study end date. The minimum follow-up will be 12 months and the maximum allowed follow-up will be 36 months

  • Estimation of parameters in the target population associated with treatment- and biopsy-related complications

    Patients will be followed from enrolment in the study until death, loss to follow-up, withdrawal of consent or study end date. The minimum follow-up will be 12 months and the maximum allowed follow-up will be 36 months

  • Estimation of the rate of CNS metastases in the target population including brain metastases and leptomeningeal metastases and treatments associated with CNS metastases

    Patients will be followed from enrolment in the study until death, loss to follow-up, withdrawal of consent or study end date. The minimum follow-up will be 12 months and the maximum allowed follow-up will be 36 months

  • Assessment of patient (HRQoL) using European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire - Core 30 items (EORTC QLQ-C30) and EORTC QLQ - Lung Cancer 13 items (EORTC QLQ-LC13)3

    Patients will be followed from enrolment in the study until death, loss to follow-up, withdrawal of consent or study end date. The minimum follow-up will be 12 months and the maximum allowed follow-up will be 36 months

Study Arms (2)

Patients with EGFR mutation (+) NSCLC

Patients with EGFR mutation-positive locally advanced or metastatic NSCLC who have progressed while on or after receiving front-line EGFR-TKI therapy (e.g., gefitinib, erlotinib, afatinib, or icotinib).

Other: Patient Reported Outcomes

Patients newly diagnosed NSCLC

Patients newly diagnosed with locally advanced or metastatic NSCLC who are treatment naive or patients who were diagnosed at an earlier stage but have progressed to metastatic NSCLC during the selection period.

Other: Patient Reported Outcomes

Interventions

HRQoL will be assessed using questionnaire EORTC QLQ-C30 and the questionnaire EORTC QLQ-LC 13. These two questionnaires are validated instruments, translated in various languages and are not used as an intervention but rather to track patient quality of life and symptom reduction in real-life settings. Data for these patient reported outcomes will be collected prospectively from the time of enrolment until the end of follow-up. The two questionnaires will be self-administered by the patients in both cohorts at the enrolment visit and subsequently every 3 months (±1 month) at routine standard of care scheduled visits. The questionnaires are expected to take about 15 minutes to complete

Patients newly diagnosed NSCLCPatients with EGFR mutation (+) NSCLC

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

* Adult male or female patients (according to age of majority/adulthood as defined by local regulations) who have given written informed consent as per local regulations. * The primary cohort will include patients with EGFR mutation-positive locally advanced or metastatic NSCLC who have progressed while on or after receiving front-line EGFR-TKI therapy (e.g., gefitinib, erlotinib, afatinib, or icotinib). * Additionally, a secondary cohort of patients will include patients newly diagnosed with locally advanced or metastatic NSCLC who are treatment naive or patients who were diagnosed at an earlier stage but have progressed to metastatic NSCLC during the selection period. (In Spain and France the secondary cohort of patient will be limited to patients with EGFR mutation-positive locally advanced or metastatic NSCLC)

You may qualify if:

  • Provision of written informed consent - patient consent should be within 6 weeks of index date.
  • Adult male or female subjects (according to age of majority/adulthood as defined by local regulations)

You may not qualify if:

  • Enrolment in studies that prohibit any participation in this non interventional study

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (110)

Research Site

Winnipeg, Manitoba, Canada

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Moncton, New Brunswick, Canada

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Halifax, Nova Scotia, Canada

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Hamilton, Ontario, Canada

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Kingston, Ontario, Canada

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London, Ontario, Canada

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Markham, Ontario, Canada

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Newmarket, Ontario, Canada

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Thunder Bay, Ontario, Canada

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Toronto, Ontario, Canada

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Montreal, Quebec, Canada

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Hefei, Anhui, China

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Beijing, Beijing Municipality, China

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Guangzhou, Guangdong, China

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Harbin, Heilongjiang, China

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Shanghai, Shanghai Municipality, China

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Xian, Shanxi, China

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Chengdu, Sichuan, China

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Hangzhou, Zhejiang, China

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Aix-en-Provence, Bouches-du-Rhone, France

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Brest, Brittany Region, France

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Tours, Centre-Val de Loire, France

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Colmar, Haut-Rhin, France

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Rouen, Haute-Normandie, France

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Metz-Tessy, Haute-Savoie, France

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Limoges, Haute-Vienne, France

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Nantes, Loire-Atlantique, France

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Saint-Nazaire, Loire-Atlantique, France

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Angers, Maine-et-Loire, France

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Lorient, Morbihan, France

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Saint Priest En Jarez, Pays de la Loire Region, France

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Marseille, Provence-Alpes-Côte d'Azur Region, France

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Bayonne, Pyrenees-Atlantiques, France

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Villefranche-sur-Saône, Rhone, France

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Le Mans, Sarthe, France

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Créteil, Val-de-Marne, France

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Toulon, Var, France

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Brieuc Cedex 1, France

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Cannes, France

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Chambéry, France

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Clermont-Ferrand, France

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Gap, France

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La Réunion, France

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La Rochelle, France

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Libourne, France

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Mantes-la-Jolie, France

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Meaux, France

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Montfermeil, France

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Mulhouse, France

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Orléans, France

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Paris, France

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Poitiers, France

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Rennes, France

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Saint-Pierre, France

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Saint-Quentin, France

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Strasbourg, France

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Toulouse, France

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Troyes, France

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Suresnes, Île-de-France Region, France

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Seville, Andalusia, Spain

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Palma de Mallorca, Balearic Islands, Spain

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Badalona, Barcelona, Spain

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Mataró, Barcelona, Spain

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Sabadell, Barcelona, Spain

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Jerez de la Frontera, Cadiz, Spain

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Las Palmas de Gran Canaria, Canary Islands, Spain

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A Coruña, Galicia, Spain

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Majadahonda, Madrid, Spain

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Pozuelo de Alarcón, Madrid, Spain

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Oviedo, Principality of Asturias, Spain

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San Cristóbal de La Laguna, Santa Cruz De Tenerife, Spain

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Reus, Tarragona, Spain

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Barcelona, Spain

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Burgos, Spain

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Granada, Spain

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Jaén, Spain

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Lugo, Spain

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Madrid, Spain

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Málaga, Spain

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Navarra, Spain

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Pontevedra, Spain

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Seville, Spain

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Zaragoza, Spain

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Taichung, Taichung Municipality, Taiwan

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Changhua, Taiwan

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Hsinchu, Taiwan

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Kaohsiung City, Taiwan

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Taichung, Taiwan

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Tainan, Taiwan

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Taipei, Taiwan

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Taoyuan District, Taiwan

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Whitchurch, Cardiff, United Kingdom

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Hull, East Riding Of Yorkshire, United Kingdom

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Brighton, East Sussex, United Kingdom

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Maidstone, Kent, United Kingdom

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Metropolitan Borough of Wirral, Liverpool, United Kingdom

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Birmingham, United Kingdom

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Bristol, United Kingdom

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Camberley, United Kingdom

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Glasgow, United Kingdom

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Ipswich, United Kingdom

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Leeds, United Kingdom

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London, United Kingdom

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Manchester, United Kingdom

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Newcastle upon Tyne, United Kingdom

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Nottingham, United Kingdom

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Scunthorpe, United Kingdom

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Sheffield, United Kingdom

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Wolverhampton, United Kingdom

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Worcester, United Kingdom

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MeSH Terms

Conditions

Carcinoma, Non-Small-Cell LungLung NeoplasmsCarcinoma, BronchogenicBronchial NeoplasmsRespiratory Tract NeoplasmsThoracic NeoplasmsNeoplasms by SiteLung DiseasesRespiratory Tract Diseases

Interventions

Patient Reported Outcome Measures

Condition Hierarchy (Ancestors)

NeoplasmsBronchial Diseases

Intervention Hierarchy (Ancestors)

Health Care SurveysSurveys and QuestionnairesData CollectionEpidemiologic MethodsInvestigative TechniquesHealth Services ResearchHealth PlanningHealth Care Economics and OrganizationsPatient Outcome AssessmentOutcome Assessment, Health CareOutcome and Process Assessment, Health CareQuality of Health CareHealth Services AdministrationHealth Care Quality, Access, and EvaluationHealth Care Evaluation MechanismsPublic HealthEnvironment and Public Health

Study Officials

  • Danielle Potter, PhD, MPH

    AstraZeneca

    STUDY DIRECTOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Target Duration
3 Years
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

February 7, 2017

First Posted

February 15, 2017

Study Start

March 1, 2017

Primary Completion

November 8, 2017

Study Completion

November 8, 2017

Last Updated

February 8, 2018

Record last verified: 2018-02

Locations