NCT02840110

Brief Summary

Subjects treated with an ACTR product may participate in this long-term follow-up study after the completion of the final scheduled visit in the parent clinical study or other investigational setting, such as compassionate use, named patient Investigational New Drug application, expanded access program, or equivalent setting. No investigational product or treatment will be administered in this study. These subjects will be followed for safety monitoring on a schedule of decreasing frequency through 15 years post-ACTR treatment, in accordance with US FDA Regulatory guidance pertaining to long-term safety follow-up for study subjects receiving recombinant DNA-containing investigational products.

Trial Health

57
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
22

participants targeted

Target at below P25 for all trials

Timeline
Completed

Started Oct 2016

Longer than P75 for all trials

Geographic Reach
1 country

16 active sites

Status
terminated

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

July 13, 2016

Completed
8 days until next milestone

First Posted

Study publicly available on registry

July 21, 2016

Completed
2 months until next milestone

Study Start

First participant enrolled

October 1, 2016

Completed
4.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 23, 2020

Completed
4 months until next milestone

Study Completion

Last participant's last visit for all outcomes

February 23, 2021

Completed
Last Updated

October 11, 2021

Status Verified

October 1, 2021

Enrollment Period

4.1 years

First QC Date

July 13, 2016

Last Update Submit

October 4, 2021

Conditions

Outcome Measures

Primary Outcomes (5)

  • Long-term safety of ACTR T cell product as assessed by overall survival

    Total of 15 years after first receiving an ACTR T cell product

  • Long-term safety of ACTR T cell product as assessed by serious adverse events related to ACTR T cell product

    Total of 15 years after first receiving an ACTR T cell product

  • Long-term safety of ACTR T cell product as assessed by Grade 3 or 4 adverse events related to ACTR T cell product

    Total of 15 years after first receiving an ACTR T cell product

  • Long-term safety of ACTR T cell product as assessed by adverse events of special interest, regardless of grade or relatedness to the ACTR T cell product

    Total of 15 years after first receiving an ACTR T cell product

  • ACTR T cell persistence in subjects previously treated with an ACTR T cell product

    Total of 15 years after first receiving an ACTR T cell product

Study Arms (1)

Post-ACTR

Subjects who have previously been treated with an ACTR T cell product

Other: ACTR T Cell Product

Interventions

Post-ACTR

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Study subjects with disease progression after being treated with at least one dose of an ACTR T cell product in the parent study or other investigational setting

You may qualify if:

  • Willing to provide informed consent for participation in the study
  • Received at least 1 dose of an ACTR T cell product in an investigational or other treatment setting, such as compassionate use, named patient IND, expanded access program, or equivalent settings
  • Has completed study assessments and follow-up visits in the prior study or other investigational setting to the extent willing and able to do so
  • Able to comply with study requirements

You may not qualify if:

  • None

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (16)

Banner MD Anderson

Gilbert, Arizona, 85234, United States

Location

Mayo Clinic Arizona

Phoenix, Arizona, 85054, United States

Location

Yale University

New Haven, Connecticut, 06520, United States

Location

Mayo Clinic Florida

Jacksonville, Florida, 32224, United States

Location

Emory University Winship Cancer Institute

Atlanta, Georgia, 30322, United States

Location

Loyola University

Maywood, Illinois, 60153, United States

Location

Indiana Bone and Marrow Transplantation

Indianapolis, Indiana, 46237, United States

Location

University of Maryland

Baltimore, Maryland, 21201, United States

Location

Tufts Medical Center

Boston, Massachusetts, 02111, United States

Location

Masonic Cancer Center, University of Minnesota

Minneapolis, Minnesota, 55455, United States

Location

Duke University Medical Center

Durham, North Carolina, 27710, United States

Location

Ohio State University

Columbus, Ohio, 43210, United States

Location

Tennessee Oncology - Nashville

Nashville, Tennessee, 37203, United States

Location

Baylor University Medical Center, Charles Sammons Cancer Center

Dallas, Texas, 75246, United States

Location

MD Anderson Cancer Center

Houston, Texas, 77030, United States

Location

Medical College of Wisconsin

Milwaukee, Wisconsin, 53226, United States

Location

Biospecimen

Retention: SAMPLES WITH DNA

Blood for replication competent retrovirus (RCR) testing Remaining biological samples from other protocol procedures (e.g., blood for presence of ACTR+ T cells) may also be stored, at the discretion of the sponsor, for potential future biomarker analyses of T cells, DNA, RNA, and other cells or molecules to study immunology or gene therapy. Optional blood, bone marrow, and tissue samples also may be collected in the event of a subject's death if an autopsy is performed.

MeSH Terms

Conditions

Lymphoma, B-CellMultiple Myeloma

Condition Hierarchy (Ancestors)

Lymphoma, Non-HodgkinLymphomaNeoplasms by Histologic TypeNeoplasmsLymphoproliferative DisordersLymphatic DiseasesHemic and Lymphatic DiseasesImmunoproliferative DisordersImmune System DiseasesNeoplasms, Plasma CellHemostatic DisordersVascular DiseasesCardiovascular DiseasesParaproteinemiasBlood Protein DisordersHematologic DiseasesHemorrhagic Disorders

Study Officials

  • Jessica Sachs, MD

    Cogent Biosciences, Inc.

    STUDY DIRECTOR

Study Design

Study Type
observational
Observational Model
CASE ONLY
Time Perspective
PROSPECTIVE
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

July 13, 2016

First Posted

July 21, 2016

Study Start

October 1, 2016

Primary Completion

October 23, 2020

Study Completion

February 23, 2021

Last Updated

October 11, 2021

Record last verified: 2021-10

Data Sharing

IPD Sharing
Will not share

Locations