NCT02668705

Brief Summary

Both the main and sub-studies will investigate how consent forms and other health care documents are explained to patients. The findings will be used to create a computer program that can successfully explain consent and other health-related forms to individuals who have difficulty reading and understanding consent forms on their own as a supplement to the normal consent process done in research settings.

Trial Health

57
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
101

participants targeted

Target at P50-P75 for not_applicable

Timeline
Completed

Started Sep 2015

Geographic Reach
1 country

1 active site

Status
terminated

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

September 1, 2015

Completed
5 months until next milestone

First Submitted

Initial submission to the registry

January 27, 2016

Completed
2 days until next milestone

First Posted

Study publicly available on registry

January 29, 2016

Completed
7 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 1, 2016

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

September 1, 2016

Completed
Last Updated

November 25, 2016

Status Verified

November 1, 2016

Enrollment Period

1 year

First QC Date

January 27, 2016

Last Update Submit

November 22, 2016

Conditions

Outcome Measures

Primary Outcomes (1)

  • the quality of the informed consent process

    as determined by verbally administering the Brief Informed Consent Evaluation Protocol (BICEP) instrument.

    immediately following the study interview

Secondary Outcomes (1)

  • knowledge of the mock study that was described during study visit

    immediately following the study interview

Study Arms (3)

Human RA

NO INTERVENTION

A sham research informed consent form will be explained by a research assistant

ECA

EXPERIMENTAL

A sham research informed consent form will be explained by an ECA (embodied conversational agent as presented on a touch screen computer)

Other: Embodied Conversational Agent

ECA + Human RA

EXPERIMENTAL

A sham research informed consent form will be explained by an ECA and then questions will be answered by a research assistant

Other: Embodied Conversational Agent

Interventions

A computer generated character that can administer informed consent to a potential research subject.

ECAECA + Human RA

Eligibility Criteria

Age21 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • understand spoken and written English (assessed by verbally asking candidates if they "understand spoken and written English")
  • Must be an established patient in the Boston Medical Center clinics.

You may not qualify if:

  • An issue determined by the patient's physician that would make this study inappropriate.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Boston Medical Center

Boston, Massachusetts, 02118, United States

Location

Study Officials

  • Michael Paasche-Orlow, MD, MPH

    Boston Medical Center

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
PARTICIPANT
Purpose
HEALTH SERVICES RESEARCH
Intervention Model
SINGLE GROUP
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
BMC Attending Physician

Study Record Dates

First Submitted

January 27, 2016

First Posted

January 29, 2016

Study Start

September 1, 2015

Primary Completion

September 1, 2016

Study Completion

September 1, 2016

Last Updated

November 25, 2016

Record last verified: 2016-11

Data Sharing

IPD Sharing
Will not share

Locations