NCT02595255

Brief Summary

While most of the children spontaneously recover menstruation or experienced normal puberty after chemotherapy, their ovarian reserve may be impaired by treatment inducing future infertility. Fertility preservation is currently proposed for selected prepubertal patients with a high risk of premature ovarian failure after treatment (mostly conditioning regimen for bone marrow transplantation). For patients with low or moderate risks, counselling is very difficult and no fertility preservation procedure is usually proposed for these patients as no marker of the ovarian reserve has been validated in this young population to assess the individual risk. The primary objective of the study is to prevent long-term treatment-related infertility by detecting the young patients who normally progressed to menarche but have a reduced ovarian reserve. These patients may benefit from particular follow-up and fertility preservation procedure.

Trial Health

80
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
275

participants targeted

Target at P75+ for all trials

Timeline
129mo left

Started Apr 2014

Longer than P75 for all trials

Geographic Reach
2 countries

10 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress53%
Apr 2014Dec 2036

Study Start

First participant enrolled

April 1, 2014

Completed
1.6 years until next milestone

First Submitted

Initial submission to the registry

November 2, 2015

Completed
1 day until next milestone

First Posted

Study publicly available on registry

November 3, 2015

Completed
6.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2021

Completed
15 years until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2036

Expected
Last Updated

May 4, 2020

Status Verified

April 1, 2020

Enrollment Period

7.7 years

First QC Date

November 2, 2015

Last Update Submit

April 30, 2020

Conditions

Keywords

chemotherapy/GnRH (gonadotropin-releasing hormone) analogues/lymphoma/children/fertility

Outcome Measures

Primary Outcomes (1)

  • AMH marker

    Blood test collection for serum storage. AMH values will be compared in the different groups and correlated with the cumulative doses of alkylating agents

    screening, 1 year after screening, every year during the first 3 year of follow-up, every 2 years until 18 year old

Secondary Outcomes (2)

  • Premature ovarian failure (POF)

    screening, 1 year after screening, every year during the first 3 year of follow-up, every 2 years until 18 year old

  • Ovarian reserve

    screening, 1 year after screening, every year during the first 3 year of follow-up, every 2 years until 18 year old

Study Arms (3)

High risk

Conditioning therapy for bone marrow transplantation or pelvic irradiation. Fertility preservation is usually already proposed in this group of patients. No intervention.

Other: No intervention

Moderate/low risk

Pathologies treated with chemotherapy regimen with moderate or low risk of inducing ovarian function insufficiency: AML (Acute myeloide leukemia), osteosarcoma, Ewing sarcoma, neuroblastoma, non-Hodgkin lymphoma, Hodgkin lymphoma, soft tissue sarcoma, ALL (acute lymphoblastic hormone), Wilms tumour, retinoblastoma. This is the study group we will compare with high risk and no risk patients. No intervention

Other: No intervention

No risk

Patients with chronic benign diseases or malignancies who don't receive any chemotherapy or other gonadotoxic treatment. No intervention

Other: No intervention

Interventions

No intervention

High riskModerate/low riskNo risk

Eligibility Criteria

Age3 Years - 14 Years
Sexfemale
Healthy VolunteersNo
Age GroupsChild (0-17)
Sampling MethodNon-Probability Sample
Study Population

The population for this trial is patients between 3 and 14 year old newly diagnosed with cancer or benign diseases treated by chemotherapy and/or pelvic irradiation with high or moderate risk of inducing premature ovarian insufficiency. The "no risk" group includes patients with chronic benign diseases (as pneumology or gastroenterology diseases, congenital hypothyroidism, growth hormone deficiency or RCIU…) or malignancies who will not receive any chemotherapy or other gonadotoxic treatment.

You may qualify if:

  • Patients from 3 to 14 year old included - Belong to one of these 3 groups (modified from Wallace et al, 2005):
  • High risk : Conditioning therapy for bone marrow transplantation or pelvic irradiation
  • Moderate/Low risk : Pathologies treated with chemotherapy regimen with moderate or low risk of inducing ovarian function insufficiency: AML, osteosarcoma, Ewing sarcoma, neuroblastoma, non-Hodgkin lymphoma, Hodgkin lymphoma, soft tissue sarcoma, ALL, Wilms tumour, retinoblastoma.
  • No risk (control group) : patients with chronic benign diseases or malignancies who don't receive any chemotherapy or other gonadotoxic treatment.

You may not qualify if:

  • CNS (central nervous system) irradiation, cerebral tumour
  • Current or previous ovarian disease/surgery
  • Familial history of premature ovarian failure (no iatrogenic or surgical origins)
  • Previous known severe chronic disease potentially affecting normal growth or puberty (diseases inducing malnutrition, anorexia, genetic/congenital disorders as Turner, Kallman, BPES(Blepharophimosis, ptosis, and epicanthus inversus syndrome) syndromes, uncontrolled severe diabetes, Cushing Syndrome, auto-immune diseases, cystic fibrosis, severe renal dysfunction)
  • Genetic/congenital disorders inducing mental retardation

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (10)

Centre Hospitalier Chrétien (CHC)- Clinique de l'espérance

Montegnée, Liège, 4420, Belgium

RECRUITING

Universitair Ziekenhuis Antwerpen

Antwerp, 2650, Belgium

RECRUITING

Hôpital Universitaire Reine Fabiola (HUDERF)

Brussels, 1020, Belgium

RECRUITING

Universitair Ziekenhuis Brussels

Brussels, 1090, Belgium

RECRUITING

UZ-Gent

Ghent, Belgium

NOT YET RECRUITING

Universitair Ziekenhuis Leuven

Leuven, 3000, Belgium

RECRUITING

Centre Hospitalier Régional (CHR)-Citadelle

Liège, 4000, Belgium

RECRUITING

Centre Oscar Lambret

Lille, 59000, France

RECRUITING

CHRU Lille-Hôpital Jeanne de Flandre

Lille, 59037, France

RECRUITING

Hôpital Robert Debré

Paris, France

NOT YET RECRUITING

Related Publications (4)

  • Brougham MF, Crofton PM, Johnson EJ, Evans N, Anderson RA, Wallace WH. Anti-Mullerian hormone is a marker of gonadotoxicity in pre- and postpubertal girls treated for cancer: a prospective study. J Clin Endocrinol Metab. 2012 Jun;97(6):2059-67. doi: 10.1210/jc.2011-3180. Epub 2012 Apr 3.

    PMID: 22472563BACKGROUND
  • Wallace WH, Smith AG, Kelsey TW, Edgar AE, Anderson RA. Fertility preservation for girls and young women with cancer: population-based validation of criteria for ovarian tissue cryopreservation. Lancet Oncol. 2014 Sep;15(10):1129-36. doi: 10.1016/S1470-2045(14)70334-1. Epub 2014 Aug 14.

    PMID: 25130994BACKGROUND
  • Demeestere I, Simon P, Dedeken L, Moffa F, Tsepelidis S, Brachet C, Delbaere A, Devreker F, Ferster A. Live birth after autograft of ovarian tissue cryopreserved during childhood. Hum Reprod. 2015 Sep;30(9):2107-9. doi: 10.1093/humrep/dev128. Epub 2015 Jun 9.

    PMID: 26062556BACKGROUND
  • Imbert R, Moffa F, Tsepelidis S, Simon P, Delbaere A, Devreker F, Dechene J, Ferster A, Veys I, Fastrez M, Englert Y, Demeestere I. Safety and usefulness of cryopreservation of ovarian tissue to preserve fertility: a 12-year retrospective analysis. Hum Reprod. 2014 Sep;29(9):1931-40. doi: 10.1093/humrep/deu158. Epub 2014 Jun 22.

    PMID: 24958067BACKGROUND

Biospecimen

Retention: SAMPLES WITHOUT DNA

serum for hormonal assessment

MeSH Terms

Conditions

Lymphoma

Condition Hierarchy (Ancestors)

Neoplasms by Histologic TypeNeoplasmsLymphoproliferative DisordersLymphatic DiseasesHemic and Lymphatic DiseasesImmunoproliferative DisordersImmune System Diseases

Study Officials

  • Isabelle Demeestere, PhD

    Erasme ULB- Belgium

    STUDY DIRECTOR
  • Alina Ferster

    Queen Fabiola children's university hospital- Belgium

    PRINCIPAL INVESTIGATOR
  • Christine Decanter

    CHRU Lille, France

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Isabelle Demeestere, PhD

CONTACT

Study Design

Study Type
observational
Observational Model
CASE CONTROL
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

November 2, 2015

First Posted

November 3, 2015

Study Start

April 1, 2014

Primary Completion

December 1, 2021

Study Completion (Estimated)

December 1, 2036

Last Updated

May 4, 2020

Record last verified: 2020-04

Locations