NCT02539927

Brief Summary

Patients will be treated in accordance with the standard medical practice of the hospital where they have been recruited during their participation in this study. No additional assessments or tests will be required. SAGIT® is a new instrument developed by a group of acromegaly experts to help practicing endocrinologists to manage acromegalic patients and disease activity in their clinical practice and define acromegaly staging. It reports 5 elements: Signs and symptoms - S; Associated comorbidities - A; Growth hormone (GH) concentration - G; Insulin-like growth factor 1(IGF-1) concentration -I; Tumour size- T. The instrument has been pre evaluated during a qualitative pilot study. The purpose of the validation study is to define and validate the scoring of the SAGIT® instrument.

Trial Health

98
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
227

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Jul 2015

Typical duration for all trials

Geographic Reach
10 countries

33 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

July 1, 2015

Completed
6 days until next milestone

First Submitted

Initial submission to the registry

July 7, 2015

Completed
2 months until next milestone

First Posted

Study publicly available on registry

September 3, 2015

Completed
3 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 3, 2018

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

September 3, 2018

Completed
Last Updated

November 1, 2018

Status Verified

October 1, 2018

Enrollment Period

3.2 years

First QC Date

July 7, 2015

Last Update Submit

October 31, 2018

Conditions

Outcome Measures

Primary Outcomes (1)

  • Define and validate the scoring of the SAGIT® instrument

    Evaluating the ability of the instrument to discriminate subgroups of subjects with acromegaly (controlled vs not controlled).

    baseline

Secondary Outcomes (3)

  • The ability of the SAGIT® instrument to predict the occurrence of significant clinical event(s) and/or treatment change(s) over time.

    2 years

  • Define SAGIT® characteristics for different groups

    2 years

  • The association between the SAGIT® tool and patients' quality of life measured using Acromegaly Quality of Life (AcroQoL) scores.

    2 years

Study Arms (3)

Controlled

Not controlled

Control status yet to be clarified

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Patients suffering from Acromegaly in specialist care clinics and hospital clinics.

You may qualify if:

  • Treatment-naïve and non treatment-naïve patients with a diagnosis of acromegaly
  • Data required to complete the SAGIT® tool are available in the patient medical records and do not require additional assessments or tests

You may not qualify if:

  • Acute uncontrolled disease requiring intensive care

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (33)

Cedars-Sinai Medical Center

Los Angeles, California, 90048, United States

Location

The Emory Pituitary Center

Atlanta, Georgia, 30322, United States

Location

Cleveland Clinic

Cleveland, Ohio, 44195, United States

Location

Endocrinology and Metabolism

Pittsburgh, Pennsylvania, 15212, United States

Location

CHU de Liège

Liège, Belgium

Location

Federal University of Rio de Janeiro

Rio de Janeiro, 21941-913, Brazil

Location

University Hospital

São Paulo, 0503900, Brazil

Location

University Hospital

São Paulo, Brazil

Location

Department of Clinical Medicine - The Department of Endocrinology and Diabetes

Aarhus C, 8000, Denmark

Location

University Hospital, Dept of Endocrinology

Copenhagen, 2100, Denmark

Location

Hopital Neuro-Cardiologique

Bron, 69677, France

Location

Hopital de Bicêtre

Le Kremlin-Bicêtre, 94275, France

Location

CHU de Marseille - Hôpital de la Timone

Marseille, 13385, France

Location

CHU Larrey

Toulouse, 31400, France

Location

University Hospital

Essen, 45147, Germany

Location

Endoc Zentrum Fûr Endokrine Tumoren

Hamburg, 20357, Germany

Location

Private Clinique

Oldenburg, 26122, Germany

Location

Ospedaliera Spedali Civili di Brescia

Montichiari, 25018, Italy

Location

Azienda Ospedaliero Universitar a Fedderico II

Naples, Italy

Location

Azienda Ospedaliera di Padova

Padua, Italy

Location

Azienda Ospedaliero Universitaria Pisana-Endcrinologia 2

Pisa, Italy

Location

Endocrinology, University Hospital, Policlinica Gemelu

Rome, 00168, Italy

Location

LUMC Leiden,

Leiden, 2333 2A, Netherlands

Location

Radbound UMC

Nijmegen, Netherlands

Location

Erasmus MC

Rotterdam, 3000 CA, Netherlands

Location

University Hospital

Barcelona, Spain

Location

University Hospital

Madrid, 28046, Spain

Location

Hospital de Condia(CHUS) RVA Ramon Baltar S/N

Santiago de Compostela, Spain

Location

University Hospital Virgen del Rocio

Seville, 41013, Spain

Location

Aberdeen Royal Infirmary

Aberdeen, United Kingdom

Location

University Hospital

Cambridge, United Kingdom

Location

Université Hospital

Cardiff, United Kingdom

Location

Endocrinology and Metabolism Churchill Hospital

Oxford, United Kingdom

Location

Related Publications (2)

  • Giustina A, Bronstein MD, Chanson P, Petersenn S, Casanueva FF, Sert C, Houchard A, Melmed S. International Multicenter Validation Study of the SAGIT(R) Instrument in Acromegaly. J Clin Endocrinol Metab. 2021 Nov 19;106(12):3555-3568. doi: 10.1210/clinem/dgab536.

  • Giustina A, Bronstein MD, Chanson P, Petersenn S, Casanueva FF, Sert C, Houchard A, Melmed S. Staging and managing patients with acromegaly in clinical practice: baseline data from the SAGIT(R) validation study. Pituitary. 2019 Oct;22(5):476-487. doi: 10.1007/s11102-019-00977-5.

MeSH Terms

Conditions

Acromegaly

Condition Hierarchy (Ancestors)

Bone Diseases, EndocrineBone DiseasesMusculoskeletal DiseasesHyperpituitarismPituitary DiseasesHypothalamic DiseasesBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesEndocrine System Diseases

Study Officials

  • Ipsen Medical Director

    Ipsen

    STUDY DIRECTOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
OTHER
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

July 7, 2015

First Posted

September 3, 2015

Study Start

July 1, 2015

Primary Completion

September 3, 2018

Study Completion

September 3, 2018

Last Updated

November 1, 2018

Record last verified: 2018-10

Locations