NCT02523118

Brief Summary

The purpose of this observational study is to find the best measures to define how well a person with eosinophilic disorder is doing. People with EoE, EoG, EoN and EoC normally undergo endoscopy and/or colonoscopy where cells are collected for microscopic analysis. Treatments are then decided based on how the cells look. We are aiming to compare different tissue components such as inflammatory cell types with clinical symptoms. We want to see if scores on standard questionnaires can give us an idea how well the person is doing.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,350

participants targeted

Target at P75+ for all trials

Timeline
300mo left

Started Jul 2015

Longer than P75 for all trials

Geographic Reach
1 country

19 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress30%
Jul 2015Jan 2051

First Submitted

Initial submission to the registry

June 22, 2015

Completed
25 days until next milestone

Study Start

First participant enrolled

July 17, 2015

Completed
28 days until next milestone

First Posted

Study publicly available on registry

August 14, 2015

Completed
35.3 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2050

Expected
1 month until next milestone

Study Completion

Last participant's last visit for all outcomes

January 1, 2051

Last Updated

September 12, 2025

Status Verified

August 1, 2025

Enrollment Period

35.4 years

First QC Date

June 22, 2015

Last Update Submit

September 11, 2025

Conditions

Outcome Measures

Primary Outcomes (1)

  • Mucosal eosinophilia (eos/hpf)

    Mucosal eosinophil levels are measured as eosinophils per high power field (eos/hpf). The primary outcome measure is to determine the change in mucosal eosinophil level (eos/hpf) and to determine if the change in mucosal eosinophil level in eos/hpf correlates with the change in scores on clinical outcome measure metrics.

    Duration of funding, at least 10 years

Eligibility Criteria

Age3 Years+
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Males and females ages 3 or greater with EoE, EoG, EoN or EoC.

You may qualify if:

  • Males or females 3 years of age and older
  • Mucosal eosinophilia:
  • EoE ≥ 15 eosinophils/HPF in the distal or proximal esophagus EoG ≥ 30 eosinophils/HPF in 5 HPF\'s in the body and/or antrum EoN ≥ 53 eosinophils/HPF in the duodenum and/or ≥ 56 eosinophils/HPF in the jejunum and/or ileum EoC ≥ 84 eosinophils/HPF from the transverse or descending colon and/or ≥ 32 eosinophils/HPF from the rectosigmoid colon or a biopsy from any colonic location with ≥ 100 eosinophils/HPF
  • \- Presence of symptoms is required for patients who are newly diagnosed but not required for patients who were previously diagnosed.

You may not qualify if:

  • History of intestinal surgery other than G tube placement
  • Enrolled in a blinded investigational study at the time of the first study visit
  • Have esophageal stricture (\<3mm)
  • Have other identifiable causes for eosinophilia (except Inflammatory Bowel Disease): infections, Gastrointestinal (GI) cancer, other GI inflammatory disease (e.g., Ulcerative Colitis or Crohn\'s Disease)

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (19)

Mayo Clinic Hospital

Phoenix, Arizona, 85054, United States

RECRUITING

Arkansas Children's Research Institute

Rogers, Arkansas, 72758, United States

RECRUITING

Rady Children's Hospital

San Diego, California, 92123, United States

RECRUITING

University of Colorado Denver

Aurora, Colorado, 80045, United States

RECRUITING

Children's Hospital Colorado

Denver, Colorado, 80218, United States

RECRUITING

Northwestern University

Chicago, Illinois, 60208, United States

RECRUITING

Ann and Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, 60611, United States

RECRUITING

Riley Children's Hospital

Indianapolis, Indiana, 46202, United States

COMPLETED

National Institutes of Health (NIH)

Bethesda, Maryland, 20892, United States

RECRUITING

Tufts University

Boston, Massachusetts, 02111, United States

COMPLETED

Mayo Clinic

Rochester, Minnesota, 55902, United States

COMPLETED

Icahn School of Medicine at Mount Sinai

New York, New York, 10029, United States

RECRUITING

University of North Carolina, Chapel Hill

Chapel Hill, North Carolina, 27599, United States

RECRUITING

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, 45229, United States

RECRUITING

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, 19104, United States

RECRUITING

University of Pennsylvania

Philadelphia, Pennsylvania, 19104, United States

RECRUITING

Vanderbilt University Medical Center

Nashville, Tennessee, 37232, United States

RECRUITING

Baylor College of Medicine & Texas Children's Hospital

Houston, Texas, 77030, United States

RECRUITING

University of Utah

Salt Lake City, Utah, 84112, United States

RECRUITING

Related Publications (1)

  • Safroneeva E, Pan Z, King E, Martin LJ, Collins MH, Yang GY, Capocelli KE, Arva NC, Abonia JP, Atkins D, Bonis PA, Dellon ES, Falk GW, Gonsalves N, Gupta SK, Hirano I, Leung J, Menard-Katcher PA, Mukkada VA, Schoepfer AM, Spergel JM, Wershil BK, Rothenberg ME, Aceves SS, Furuta GT; Consortium of Eosinophilic Gastrointestinal Disease Researchers. Long-Lasting Dissociation of Esophageal Eosinophilia and Symptoms After Dilation in Adults With Eosinophilic Esophagitis. Clin Gastroenterol Hepatol. 2022 Apr;20(4):766-775.e4. doi: 10.1016/j.cgh.2021.05.049. Epub 2021 May 29.

Related Links

Biospecimen

Retention: SAMPLES WITH DNA

Biopsies from the gastrointestinal (GI) tract may be collected and used to learn more about eosinophilic gastrointestinal disorders. Genetic analysis may be performed on some of these samples.

MeSH Terms

Conditions

Eosinophilic EsophagitisEosinophilic enteropathy

Condition Hierarchy (Ancestors)

EsophagitisEsophageal DiseasesGastrointestinal DiseasesDigestive System DiseasesGastroenteritisEosinophiliaLeukocyte DisordersHematologic DiseasesHemic and Lymphatic DiseasesHypersensitivity, ImmediateHypersensitivityImmune System Diseases

Study Officials

  • Marc E Rothenberg, MD, PhD

    Cincinnati Children's Hospital Medical Center

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Study Design

Study Type
observational
Observational Model
CASE ONLY
Time Perspective
OTHER
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

June 22, 2015

First Posted

August 14, 2015

Study Start

July 17, 2015

Primary Completion (Estimated)

December 1, 2050

Study Completion (Estimated)

January 1, 2051

Last Updated

September 12, 2025

Record last verified: 2025-08

Data Sharing

IPD Sharing
Will not share

Locations